My mom has taken 2 doses of remicade. She said 2 weeks ago she was eating corn on the cob and suddenly as she moved her jaw to chew, she could here this loud crackling noise in her ears. It has been driving her nuts since. Everytime she moves her jaw she hears it. She says you can hear it if you put an ear near her jaw. She mentioned it to the rd and he didn't know what it was, and basicly made light of it. Anyone experienced this?
Thanks
Jodi
Oh yes! I have it and mine is quite loud. :) Some have diagnosed it as TMJ - my Rheumy told me it's a part of my RA. I'm sure there are others who have had this same experience. My jaws hurts sometimes - but most of the time it's the loud crunching. Ugh!
Hugs,
Jen
Yes, I get that sound as well when it is not inflammed with inflammation like it is right now. It is a weird sound that is for sure.
I also can tell when I have inflammation in my jaw, mainly my right side, because my hearing is muffled in that ear from the pressure of the inflammation.
I remember when I was a kid, I could move my jaw outta place and then pop it back into place. Talk about a bolt of lightning to your head!! Joints popping outta place is no fun
After about a year, the ringing and popping started to worsen and get louder, so at that point, my RD decided to take me off Remicade and try Rituxin. When the Rituxin failed, we decided to try Remicade one more time, but as soon as I received the first dose, the ringing and popping came back, only this time much worse. In fact, it's been almost 4 months since my last Remicade dose, and I'm still having some issues with it, even though it is getting better.
I would be sure and tell your Mother to talk to her RD about this, as (according to my RD) it could possibly be a sign of ototoxicity, which could possibly lead to nerve damage and hearing loss.
[QUOTE=Jodi_Girl]
My mom has taken 2 doses of remicade. She said 2 weeks ago she was eating corn on the cob and suddenly as she moved her jaw to chew, she could here this loud crackling noise in her ears. It has been driving her nuts since. Everytime she moves her jaw she hears it. She says you can hear it if you put an ear near her jaw. She mentioned it to the rd and he didn't know what it was, and basicly made light of it. Anyone experienced this?
Thanks
Jodi
[/QUOTE]
I've had ear infections and ear problems my whole life. They seem to run in the family - my father and oldest son have the same issues. I would get it checked out by an ENT (ear, nose, throat doctor). It could be TMJ, it could be an ear infection (they don't always cause pain and fever) or it could be something else. One thing I've learned with the husband's heart condition and my RA - don't always assume the cause of new symptoms is your primary disease!!! Oftentimes it is a new and treatable condition.
I asked rheumatologist. I wondered if it was OSTEOARTHRITIS, because as you know we can also get osteoarthritis and still have rheumatoid arthritis. This is where I do the LUCKY LUCKY ME DANCE!
Reason I say it could also be osteoarthritis is that when I began Humira, ALL my other symptoms and pains went away, except for this jaw crunching.
My jaw crackles and you might think it is in the ear, but the sound comes from the ear that the jaw is making.
Now you can do the LUCKY LUCKY ME DANCE! In fact, all of us can do it. I wonder what else is going to happen.
When I had my humira injection Tuesday in my inside thigh, two days later, it is a big red mark, like the time before. I really think it depends on how it is injected. One nurse left NO MARK. I put cortisone cream on it, but will take awhile to go away. Anyone have other remedies? I also have Arnica gel as well for bruising.
Joanne[QUOTE=Brisen]
Jodi - I was on Remicade for about a year, but was recently taken off if it because I was having ear ringing and popping. It actually started with my very first dose, so my RD sent me to an ENT for evaluation. She was unable to determine if it was related to the Remicade, so we decided to just keep and eye on it and continue with the infusions. After about a year, the ringing and popping started to worsen and get louder, so at that point, my RD decided to take me off Remicade and try Rituxin. When the Rituxin failed, we decided to try Remicade one more time, but as soon as I received the first dose, the ringing and popping came back, only this time much worse. In fact, it's been almost 4 months since my last Remicade dose, and I'm still having some issues with it, even though it is getting better. I would be sure and tell your Mother to talk to her RD about this, as (according to my RD) it could possibly be a sign of ototoxicity, which could possibly lead to nerve damage and hearing loss. [/QUOTE] I was on remicade a while back and RD noticed I couldn't at all hear well so he took this micro thin high tech looking curved needle , expertly jammed it in there, and pulled out more earwax than I had ever seen. He the cleaned the other side. He got about 4 stacked quarters of i out. Never heard better since
Peace and FYI
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