thanks
InsightHostKJ> Texas go ahead
Texas> Italian Docs have article on net concerning use of Rifamycin mixed with joint fluids.. Any positive thoughts about this type of serum?
Katie> ?
lilybell> ?
td> ?
DrWaters> Haven't heard about it.
InsightHostKJ> Katie...go ahead
Katie> Can you please explain why some doctors will give intramuscular injections of cortisone during a flare and others are totally against this. My RD say no...internist says yes and that it would help my allergies too.
Texas> www.aicareuma.orgif you have time to read about it Dr Waters..many thanks
DrWaters> Because it's no better than pills and much more expensive.
DrWaters> OK, Texas.
InsightHostKJ> TD go ahead
td> Should I be on anything like calcium supplement when taking 7.5 mg prednisone?
DrWaters> Almost always yes. 600 bid pc
Marcia> ?
td> fosimax?
sassynlexnzac> ?
InsightHostKJ> lily go ahead
lilybell> should i have other nsaid with antibiotics..vioxx does nothing..current dr very forthcoming
lilybell> not very forthcoming
lilybell> sorry
DrWaters> Fosamax or Actonel for post-child bearing age females and all adult males.
lilybell> what are those?
DrWaters> NSAID's in general don't help much for RA or PA.
0
InsightHostKJ> to prevent osteoporosis in those on prednisone lily
lilybell> never heard mention of those
lilybell> not on pred
3
InsightHostKJ> Sand...did u have another question?
DrWaters> Lilybell needs doctor transplant, too.
InsightHostKJ> that was in answer to someone elses question lily
sandrich> what do you think of glucosamine, shark oil, etc.?
lilybell> amen
Bren> ?
DrWaters> Glucosamine probably is helpful in OA. I tried it but it made me too gassy and I was grossing out too many patients.
InsightHostKJ> ewwww
sassynlexnzac> lol sorry couldnt help but laugh
sandrich> lol
Lucy> hehe
InsightHostKJ> Marcia go ahead
Lucy> just open windows
InsightHostKJ> Stinky Dr!
DrWaters> Doubtful if any supplements other than glucosamine effective.
Katie> not even omega #
Katie> 3
DrWaters> They're sealed shut in Florida.
Marcia> I have been on pred 4 over 13 years, 20mg per day. Just started on the kineret. Do u think if the kineret kicks in, i will b able 2 come off the pred, mayb ever?
DrWaters> Oh yeah, Omega 3 is good too.
Katie> ?
DrWaters> Doubtful.
InsightHostKJ> why?
DrWaters> 20 mg! Maybe get down to 10, but off?
InsightHostKJ> what if she was on 5?
DrWaters> THEN yes.
InsightHostKJ> Sassy your turn
* InsightHostKJ breathes a huge sigh of relief
Melanie> lol
sassynlexnzac> i heard u say that some drugs affect calcium what drugs should i stay away from if i can't produce my own blood calcium?
0
sassynlexnzac> (hypoparathyroidism)
DrWaters> You really need to discuss this with your endocrinologist.
sassynlexnzac> k
InsightHostKJ> Bren go ahead
Bren> You said new drugs will be better than Enbrel. Were you referring to Remicade and Kineret? Any other drugs?
DrWaters> No, I meant the new Abott drug (once every 2 weeks sq) and others not out yet.
Bren> What's the name of it?
InsightHostKJ> Katie go ahead
DrWaters> Don't know.
Katie> Is Omega 3 specifcally good for RA and if so How much per day?
DrWaters> Good for everything but bleeding problems. 3 Grams daily minimum.
InsightHostKJ> D2E7
InsightHostKJ> is the name
Bren> Thanks KJ
DrWaters> Of Star Wars guy?
InsightHostKJ> LOL
InsightHostKJ> Sounds like it
Katie> thanks
Texas> 2d
Katie> R2D2
InsightHostKJ> Dr waters how is kineret working for your patients?
DrWaters> Bad.
Katie> ?
InsightHostKJ> no results?
InsightHostKJ> or side effects?
DrWaters> What's been your experience.
DrWaters> No results.
InsightHostKJ> Best thing that ever happened to me
InsightHostKJ> Katie..go ahead
DrWaters> I'm getting around only 20%% of Enbrel or Remicade failures that respond to kineret. Higher in patients never on those.
Katie> everything on this new drug from Abbot sounds so good...is there a possibility that MTX may be a drug of the past...
DrWaters> Maybe.
swimmer> ?
Katie> oh m y gosh
InsightHostKJ> swimmer go ahead
DrWaters> Anyone here FAIL or RESPOND to kineret?
swimmer> If Enbrel is maybe still working, but I switch because of the shortage, will I have a better success rate
InsightHostKJ> katie..personally i think it will be a LONG time before mtx is a thing of the past....we still have no comparable track records with the new drugs. We KNOW the long term effects of mtx
swimmer> and can you go right from one to another
DrWaters> i AGREE WITH kj.
sandrich> ?
Katie> I know KJ..but I am just wishing, although with the addition of Nexium to my cocktail...my stomach is doing so much better
DrWaters> What disease is it that causes me to keep hitting the cap locks key?
Katie> lol
InsightHostKJ> Capititis?
Texas> Dyslexic Fingers
DrWaters> WHen prilosec goes generic switch to that.
InsightHostKJ> sand go ahead
sandrich> are you near NC so i can come to your office? I'm not kidding!
Katie> ok...so far internist give me samples..but I here samples are going to be athing of the past too
su-boo> ?
DrWaters> No, I'm in Florida. My favorite patient just moved back to NC. Maybe I'll move, too.
InsightHostKJ> swimmer ask yours again, i think it got missed
swimmer> LOL...
sandrich> i will pay your flight!!!!!!!lol
DrWaters> What do you patients think of drug marketing?
swimmer> OK...If Enbrel is maybe still working for me and I switch to a new drug because of the shortage problems, will my success rate be higher, and can I switch from Enbrel to another right away
Katie> FALSE HOPES
bedipped> lol Dr. Waters you don't want to know
swimmer> I have a strong opinion on that...obviously Enbrel has been marketed too good
DrWaters> Yes, Kineret working well in switchovers.
Bren> Too expensive
InsightHostKJ> you mean do we beleive all these meds will have us ice ckating and playing baseball tomorrow
DrWaters> Baseball.
InsightHostKJ> i did pitch a few today...must be working! lol
Texas> I am disgusted with their 2-3 page magazine advertisements.. They can take that money and lower the prices a bit. Have seen 20-50%% increases in my med costse
swimmer> I am still waiting to do that Celebrex Yoga
DrWaters> I didn't mean that. I meant all the MONEY spent on marketing that raises the cost.
InsightHostKJ> LOL Swimmer
Lucy> lol
Katie> Most of them trivialize what RA is really all about....LOL Swimmer me..too..lets do a commercial together..betcha we won't sell any drugs
Melanie> Should be put in programs to assist patients. the market is there - don't need all the smoozing.
swimmer> I could do without my enbrel coffee cup and cooler
InsightHostKJ> i am still seeing enbrel commercials and they dont even have any..what a waste
Lucy> lmao
bedipped> hey at least you got one, Swim...lol
InsightHostKJ> lol swimmer....or my kineret starter kit...
DrWaters> Are any of you in the Radius registry program.
Lucy> RA is a big money business
Lucy> what's that
swimmer> Plus, once you hear all the side effects on those commercials...why would you want to take any
Katie> and that Enbrel sight...what a bunch of nothing...what is it called Access or something...baby info..
InsightHostKJ> whats that?
InsightHostKJ> lol katie.....i agree
DrWaters> Immunex pays us Rheum's to collect data on RA patients.
InsightHostKJ> and i was worried it would be competition for us
Texas> ???Radius Registry?
DrWaters> Yes.
Lucy> I know the doctors are in on the bucks
InsightHostKJ> dont they have enough info????
DrWaters> I would think so.
bedipped> was wondering what more they needed
Melanie> Data only, Dr. W? or specific info on patients?
DrWaters>vThat's my point.
swimmer> like what kind of data?
Gary> isnt that private?
InsightHostKJ> and how much are they paying you? LOL
swimmer> can you let them know how mad we are about the shortage?
Katie> I actually wrote Diane Sawyer after she interviewed Kathleen Turner plugging the Immunex site Arthritis Access and told her if she wanted to really learn about enbrel to come to your site KJ
DrWaters> Stuff like pain 1 to 10. What you can or can't do. Same questions at every follow-up visit. It's BS.
Texas> I am an Enbrel Casualty..
Katie> Texas share your story with Dr. Waters..I would like his opinion
Marcia> so am i
InsightHostKJ> lol katie....they won't....we aren't a major big bucks company
su-boo> me too
DrWaters> The patients have to sign a 5 page long consent form.
InsightHostKJ> what a waste dr w
su-boo> I didn,t consent to no use of my arms
DrWaters> Who's Kathleen Turner?
Marcia> lol
su-boo> actress
Katie> now doing a play on Broadway
Katie> she has RA
InsightHostKJ> The AF hounded her for years to come out and she wouldnt..Immunex pays her and she does
su-boo> not too famous lol
swimmer> in the nude for one part
InsightHostKJ> IRKs me to no end
DrWaters> Oh, I know now. She has RA?
InsightHostKJ> i bet SHE is getting her enbrel thru the shortage!
InsightHostKJ> yup Dr W
Texas> I was on Enbrel less than 6 months went into heart failure after a week in hosp was recovering some of ejection fraction back up to 60 %% then went back on Enbrel and failure again Ejection fraction back to 20%% then finally after months of coreg back to 33 %%
Katie> I wanted to jump through the TV and shake them both....they were acting like the Immunex site was a non for profit fabulous site to help people understand RA....Maddening
su-boo> BS
Texas> All the docs seem to agree was Enbrel
Marcia> BS
Marcia> ?
DrWaters> I hope your doctor submitted a report to FDA and Immunex.
swimmer> ?
InsightHostKJ> go ahead marcia
Marcia> what is BS?
su-boo> lol
Texas> I had to fire that Doc. He didn't know much about much.
su-boo> LOL
DrWaters> Bad synovitis.
Marcia> ohhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhhh, i get it now...lmao
InsightHostKJ> ROFL
su-boo> ahaha
Marcia> gggeeeeeeeezzzzzzzzzz
Katie> LOL....lots of that...specially with news shows....LOL
Marcia> duh
su-boo> marcie marcie lol
su-boo> mardia
su-boo> lol
DrWaters> Time for one last question.
InsightHostKJ> who wants to ask it?
td> ?
InsightHostKJ> go TD
td> Do you reccomend Fosinex?
DrWaters> Never heard of it.
td> or anything else with pred?
su-boo> ?
DrWaters> A lot of patients need a little pred.
Bren> *I think td means Fosomax*
td> yep
DrWaters> Yes, Fosamax or Actonel for non-child bearing age females on Pred.
InsightHostKJ> Dr Waters..thank so much!
Marcia> thanks
InsightHostKJ> We always learn so much from you
td> Thank you Dr. W
Melanie> Thanks again, Dr. W.
Texas> Thank You, Dr Waters..anytime you are ready to moveto Texas, we'll pack your bags!
Katie> Thanks...helpful as always....We really appreciate you taking the time
Bren> Thank you
bedipped> thx Dr.
su-boo> T Y
alf> ty
swimmer> thanks
DrWaters> Hopefully soon we'll have a real cure. Keep your spirits up. Bye.
DonnaM> Thank you Dr W I always enjoy your informative and humorous visits
Sue22> Thanks so much, Dr. Waters.
su-boo> bye
InsightHostKJ> bye! sleep well
DrWaters> Bye, thanks.
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