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Home Community Member Directory Judy aka jdysparkle

Member Directory

Name: Judy Staren
Chatroom Nickname: jdysparkle
Age: 50
Gender: Female
Located: suburbs of Chicago, Il
Type of Arthritis: Rheumatoid, Fibro, Myofacial Pain Syndrome, Medications: Methotrexate, prednisone, methodone, vitamins, folic acid, ventolin, caltrate 600D elavil, celexa, valium, dyazide, ortho-est, zanaflex, senokott
Surgeries: None related to R/a. Many ab surgeries related to ovarian problems/polycyctic ovarian syndrome
Hobbies: Astrology
AOL Instant Messenger: jdysparkle
E-mail address: Jdysparkle@aol.com
Other Stuff: I have had Asthma since I was 3 years old, which is now 47 years. I believe the R/A and asthma are related. I have had pneumonia and was hospitalized every year at least once a year for this since 1993. Altho some of the pneumonias were not "real pneumonias" but severe inflammations. I think this was a pre-curser to my R/A.

My Mom as R/A and Lupus. My sister has Reynauds. I was just diagnosed with R/A definately in January at Mayo Clinic, also fibro, chronic myofacial pain and chronic pain syndrome. But I had MRI's on my back that indicated inflammatory arthritis disease a month before I was hospitalized with pneumonia. I also have severe back problems: spondolythesis on my Lumbar spine, spondolosis on my cervical spine, I also have degeneratiave disc disease. I have been very ill since my last pneumonia in May and have been on bedrest most of the time. The back pain is more unbearable than the R/A most of the time however,they do tend to play games as to which hurts worse and when.I am allergic to all NSAIDS. So after trying several pain killers including oxycontin which I was allergic took, My anesthesiologist put me on methodone which really healped. I need some epidurals but I can't do them until I am off prednisone for a while. I would like to talk to anyone about this. I'm so glad I found this site. I wonder if anyone else has asthma and R/A both. I have a 14 year old daughter. This has been very hard on her. She doesn't understand why I can't do anything any more and have to rest so much. She thinks I am lazy. So many people think I have become lazy, or am just using this disease not to go anywhere! I can't sit thru a movie. I can't do much of anything. I'm so disgusted. I think I could handle it better if I had support. That's why I was so happy to find this site. My Mom gave up on doctors about 2 years ago. She was also diagnosed at 50 and had to quit her job at 59. She lost half of her pension doing this. So she is still bitter about that. So many of the meds she was given many years ago had such bad side effects that she just stopped taking them and uses aspirit and lives the life of a semi-invalid. Which is what I am afraid of. I am suppose to be doing pool therapy which when I went once I thought it was wonderful, then my creatine kinease level shot up and I had to be on full bedrest for a while until the test was repeated. I haven't been able to go back to the pool therapy since. I really want to go. I know it will help not just the R/A but the other problems too. I hope this letter isn't too dire. I just have yet to find a good sense of humor about all of this yet. God Bless you all!

Page last updated on January 9, 2002

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