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Vol 1 Issue 16
Arthritis Insight Newsletter * Vol. 1 Issue 16 July 19, 2000
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Welcome to the 16th issue of the Arthritis Insight Newsletter. All back issues will be posted at /community/newsletter/
Feel free to pass this newsletter around to others who may be interested.
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The information in this newsletter should not take the place of advice and guidance from your own health-care providers. Material in this newsletter is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Information presented here is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.
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Notes From Tina
(tina@arthritisinsight.com)
Things have been busy here this week! We've been working on the move of JRAworld. Hopefully by the beginning of next week this newest addition to Arthritis Insight will be up and running! Once that's done we'll begin work on the Shopping Section. If you have a product that makes life easier that you think we should make available in our shopping section, please let us know.
I am reading a great new book. It is called "Getting Up is Hard to Do-Life with Rheumatoid Arthritis", written by a new friend of mine, Wanda James. I am currently on chapter five (my reading time is severely limited!) and so far I can relate to just about everything Wanda has been through. Besides telling her story, Wanda included disease information, tips, resources and more. To order the book you can email Wanda at wjames@igs.net or call 1-800-458-3723.
Speaking of books, what do you think of having a Book Review section on the website? Members could submit reviews of books they have read and recommend to others. They wouldn't have to be arthritis related. I know many of us are avid readers and it might be fun to share what we like. Let me know if you like the idea and would participate.
I need to address some concerns that have arisen in the chatroom. First we seem to have some people that are meeting there nightly after everyone has gone and using the chatroom as a private meeting place and it doesn't appear that any of them are the least bit concerned with anything arthritis-related. If you happen to encounter them and they cause any problems send me an email, if I am online at the time I will be right in to take care of the problem! Also, I have had several complaints that the use of colored fonts in the chatroom is difficult on the eyes and I agree. Unfortunately I am unable to disable that option so I am asking everyone to please stick to the regular typeface.
That's it from me this week! Here's Ron! (By the way, I never yell at Ron! Don't believe everything he says! *grin*)
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Ron's Ramblin's
(ron@arthritisinsight.com)
Wow, another week has passed and already it is time to write this column before KJ starts yellin' for it. (She would never do that, would she?) I can hardly understand how the weeks can pass so quickly yet each day of arthritis pain can go by so slowly. There seems to be some magical dichotomy there. In thinking about it, I have come to the conclusion that there indeed must be several different time sequences. First there is the time related to being at work?How in the world could 40 hours seem so long, unless there is a BIG important deadline to meet, then how can it seem so short. How can the time between KJ asking me for my input for this newsletter be a week. It feels more like a couple of days. How can a day or a week or a year go by so quickly when your are having fun but let a nice big flare set in, that same day feels like a year. How can the time between birth and the time a child turns nine or ten be so short yet the years between ten and twenty seem so lo!
ng. It addles this old brain just to think about it. If anyone has an answer to this dichotomy, please let me know. Til next week-
(((((((((Hugs to all)))))))
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Your Weekly Giggle
Favorite Hymns for People Past a Certain Age (and those with arthritis I think!)
The Old Rugged Face
Precious Lord (Take My Hand And Help Me Get Up)
It's Well With My Soul (But My Back Hurts)
Nobody Knows The Trouble I Have Seeing
Amazing Grace (Considering My Age)
Just A Slower Walk With Thee
Count Your Many Birthdays, Name Them One By One
Go Tell It On The Mountain (And Speak Up)
Give Me That Old Timers Religion
Blessed Insurance
Guide Me O Thou Great Jehovah (I've Forgotten Where I Parked)
OK! Let's have fun with this! Submit your favorite song (doesn't have to be hymn) for people with arthritis! I like "I am gimp, here me groan!" Now I know you all can do better than that!
Check out all the jokes at /fun/jokes/index.html. Send yours in today!
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Tina's Tips
Many of us love to use our rice socks (/living/ricesock.html) , I know I do. Aya wrote to us about a warning she saw on another website. It looks like they can be flammable after they are used many times.
Here is the warning from http://www.makestuff.com/heating_pad.html
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Caution!
One of our readers wrote in with a cautionary note about heating pads
catching fire from smoldering on the inside. This may occur when the water
content of the filling is dried out and burned from many re-heatings. One
possible solution is to place a cup of water in the microwave when heating
the pads, to keep the interior moist. Another solution would simply be to
replace the filling after so many heatings.
Thanks, Dawn!
Toni says: I bought a similar product at a flea market and they recommended
spritzing it with water before nuking it so as not to "kill" the filling,
and make it last longer. Makes sense.
Thanks, Toni!
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And from Wendy:
Peeling potatoes can be very painful for me. So I buy Schwan's (they deliver easy to prepare food to your home) mashed potato nuggets. They are REAL mashed potatoes frozen into little balls. Ten minutes in the microwave, and little milk and butter, and PRESTO! mashed potatoes. They taste as good as the old fashioned kind.
Check out more tips at /living/tips.html and send in yours today to Tina@arthritisinsight.com
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What's New?
This week's Featured Discussion is Tests & Diagnostic Procedures. Check it out at
/feature/tests
Advice for Better Living
Seems my family and friends can understand pain much better than they understand fatigue. When I tell them I am too tired to participate in a particular activity I get the rolled eyes. How do you handle it?
/living/advice/
Expert Advice:
Are there supports for individual fingers? I have splints
for wrists which help but I also have one finger on each hand that is very
painful and swollen. I don't want to lock those fingers in one position but
need support for them periodically. What might be available and what type
physician or PT would have that for me? Any leads would be good. Thanks,
See our Expert answers to this and more questions at /medical/advice/
Disease Index
We expanded our Lupus Information to include all that was presented in our Featured Discussion.
/medical/disease/sle/
Club House
Are you ready to work out? Join our Exercise Club
/community/clubhouse/exercise.html
Member Stories
Char shares her thoughts as she is about to undergo Remicade treatments, maybe. She'll be keeping us informed in her Remicade Journal.
/community/stories/char1.html
The Message Boards are REALLY hoppin'!
/community/boards/
To see all of our latest additions see: /updates.html. Check it every morning and you won't miss a thing.
What's Coming?
Next week's Featured Discussion will be Back Problems! If you have back pain, we'd like to hear from you, please take a minute to fill out our survey:
/feature/survey.html
JRAworld will be up and running at its new location very soon! Watch for it!
Three member stories were submitted last night, look for them in the morning. And if you haven't sent in your yet, please do. We'd love to hear it.
What do you want to see on Arthritis Insight or in the Newsletter? Let us know and we'll do our best to accommodate!
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Arthritis Insight Chat /community/chat/
Dr. Barry Waters joined us Monday evening to talk about Tests & Diagnostic Procedures. We had some more time confusion, but we handled it and had a great chat. If you haven't attended one of Dr. Waters' chats, try to make it sometime. He is a great doctor with a wonderful sense of humor. The transcript is at
/community/chat/july172000.html
Please join us Monday July 24th to talk about Back Problems with orthopedic surgeon Dr. Ken Merriman.
The complete chat schedule can be found at /community/chat/schedule.html
The complete chat schedule can be found at /community/chat/schedule.html.
We need a few chat hosts. A host is responsible for welcoming everyone to the room and making folks feel at home. It really isn't a difficult job and it is only for an hour a week. If anyone would like to volunteer to host a chat, we'd be happy to have you. Just send us an email saying what time and day of the week you'd like to host and a little about yourself.
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Cooking With Char!
Hello everyone! The weather here in the heartland has cooled off in the last few days, and looks like it will stay that way for a bit.
The Iowa sweet corn is just now coming on strong. The varieties they use nowadays are so sweet and good! DH and I have been indulging. I won't post a recipe, because the best way to eat it is just dropped into boiling water for 3-5 minutes. Then served with butter. So its hardly a recipe at all. LOL
But this is a cooking column, so I guess I better type up a couple of recipes!
Here is one from a friend, Jan.
Cheesy Potatoes
I pkg. frozen hash browns
1 16oz. pkg of Velveeta cheese
1 pint heavy cream
1 stick butter or margerine
Melt cheese, cream, and butter over low heat. Pour over hash browns in a 9 by 13 pan. 375 to 400 degrees. My oven works with 400. Cover with foil for 30 minutes, remove foil, bake another 30 minutes. I sprinkle dried veggie in for a little color.
You can add ham, sausage, or cooked chicken for a one dish meal. I always have it for Christmas breakfast along with an egg casserole.
It sounds yummy and would work well for a brunch.
And here is a recipe from Cindy (who got the recipe from her Mom)-
Crock Pot Pork Chops
Take about 4-5 bone-in pork chops*
Flour them and then put them in a skillet to brown both sides (you do not cook them all you do is brown the outside)**
Take them out of the skillet and put them in a crock pot
Add 2 cans of Campbell's Chicken and Stars soup
Turn the crock pot on low and let it cook for about 6 hours (you can cook it for about 4 hours but the longer it cooks the more tender the pork chops are)
About 20 minutes before the pork chops are ready prepare some Stove Top Dressing as directed on the box
When it is finished cooking you add the dressing to the crock pot, stir and let it sit for about 10 minutes
The dressing will soak up the juices from the pork chops and the soup If you feel the pork chops or dressing is too dry, you can add a little bit of water at any time
After the dressing has been in the crock pot for about 10 minutes it is ready to be served
Note: my mom always likes to serve this with mixed vegetables but you can make a meal of this without anything else
*I prefer boneless, butterfly pork chops
**I usually skip this part and just put the pork chops in the crock pot; I haven't really noticed that it alters the taste any
Please send comments or suggestions to Char@ArthritisInsight.com.
And if you have specific recipes you are looking for let me know and I will see what I can do. Or if you have recipes you wish to share, sent them along to me.
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Notes and Insights:
October Happening In Ohio
When...October 12-15
Place...Wooster, Ohio
All the information is now on a website thanks to Kimmy! http://fadedjeans.com/ohio
It's a Baby Shower!
Many of you know that Amy, AKA Lake Goddess is very impatiently awaiting that phone call that will send her to China to pick up her new baby daughter. We're going to host a Cyber Baby Shower!
When: Thursday July 27th at 9pm Eastern time
Where: The Arthritis Insight Chatroom.
RSVP:
Krissyjo@aol.com or kelly@idmail.com
Thank You!
A big thank to Wanda James. In her book, Getting Up is Hard to Do-Life with Rheumatoid Arthritis, Wanda gives us two thumbs up!
"A beautifully designed website with a personal touch! Two thumbs up!"
Special Offers for Arthritis Insight Members
Whenever possible we will try get to our sponsors to agree to discounts and the like for our members. Here are our current special offers:
KAS Enterprises (http://www.kasenterprises.com/theraband.html?ai) has graciously offered to help us out in our quest for fitness. They have put together a special package of
Thera-Bands? and accessories. All for $19.99 with free shipping and a free instruction manual. If you mention Arthritis Insight you'll get double Frequent Buyer Bonus Points so you can earn free products!
Sore No More gel (http://www.sorenomore.com/) will send a free sample of the pain relieving gel to any Arthritis Insight Community Member who emails them at
dma@glogerm.com .
Therabath Paraffin Therapy Bath is offering $30 off of their regular price of the Therabath unit. Visit
http://www.wrmed.com/special_offer.htm
for more info.
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News
This week's News headlines:
FDA Recommends Approval of Remicade (Infliximab) With Methotrexate For Rheumatoid Arthritis Joint Damage
Vioxx (Rofecoxib) Available In Canada In Oral Suspension
Club To Distribute Marijuana to Ill Patients
Arthritis Patients Give New Artificial Knuckles a High Five
Leflunomide Benefits Rheumatoid Arthritis Patients
For complete news see /news/news.html
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Contribute
Have you written something you think our subscribers would like to read? Send it to
Tina@arthritisinsight.com
and maybe we'll use it in our newsletter.
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A Closing Thought The Cost of a Miracle
Tess was a precocious eight years old when she heard her Mom and Dad talking about her little brother, Andrew. All she knew was that he was very sick and they were completely out of money. They were moving to an apartment complex next month because Daddy didn't have the money for the doctor bills and our house.
Only a very costly surgery could save him now and it was looking like there was no one to loan them the money. She heard Daddy say to her tearful Mother with whispered desperation, "Only a miracle can save him now."
Tess went to her bedroom and pulled a glass jelly jar from its hiding place in the closet. She poured all the change out on the floor and counted it carefully. Three times, even. The total had to be exactly perfect. No chance here for mistakes.
Carefully placing the coins back in the jar and twisting on the cap, she slipped out the back door and made her way 6 blocks to Rexall's Drug Store with the big red Indian Chief sign above the door.
She waited patiently for the pharmacist to give her some attention but he was too intently talking to another man to be bothered by an eight year old at this moment.
Tess twisted her feet to make a scuffing noise. Nothing.... She cleared her throat with the most disgusting sound she could muster. No good..... Finally she took a quarter from her jar and banged it on the glass counter...... That did it!........
"And what do you want?" the pharmacist asked in an annoyed tone of voice. "I'm talking to my brother from Chicago whom I haven't seen in ages," he said without waiting for a reply to his question.
"Well, I want to talk to you about my brother," Tess answered back in the same annoyed tone. "He's really, really sick... and I want to buy a miracle."
"I beg your pardon?" said the pharmacist.
"His name is Andrew and he has something bad growing inside his head and my Daddy says only a miracle can save him now. So how much does a miracle cost?"
"We don't sell miracles here, little girl. I'm sorry but I can't help you." the pharmacist said, softening a little.
"Listen, I have the money to pay for it. If it isn't enough, I will get the rest. Just tell me how much it costs." The pharmacist's brother was a well-dressed man. He stooped down and asked the little girl, "What kind of a miracle does your brother need?"
"I don't know," Tess replied with her eyes welling up. "I just know he's really sick and Mommy says he needs an operation. But my Daddy can't pay for it, so I want to use my money.
"How much do you have?" asked the man from Chicago.
"One dollar and eleven cents," Tess answered barely audibly. "And it's all the money I have, but I can get some more if I need to."
"Well, what a coincidence," smiled the man. "A dollar and eleven cents -- the exact price of a miracle for little brothers."
He took her money in one hand and with the other hand he grasped hers, and said "Take me to where you live. I want to see your brother and meet your parents. Let's see if I have the kind of miracle you need."
That well dressed man was Dr. Carlton Armstrong, a surgeon, specializing in neuro-surgery. The operation was completed without charge and it wasn't long until Andrew was home again and doing well.
Mom and Dad were happily talking about the chain of events that had led them to this place. "That surgery," her mom whispered. "was a real miracle. I wonder how much it would have cost?"
Tess smiled. She knew exactly how much a miracle cost... one dollar and eleven cents.
... plus the faith of one little girl.
~Author Unknown
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Arthritis Insight Newsletter Copyright 2000
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