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Vol 1 Issue 24
Arthritis Insight Newsletter * Vol. 1 Issue 24 September 13, 2000
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Welcome to the 24th issue of the Arthritis Insight Newsletter. All back issues will be posted at /community/newsletter/
Feel free to pass this newsletter around to others who may be interested.
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The information in this newsletter should not take the place of advice and guidance from your own health-care providers. Material in this newsletter is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Information presented here is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.
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Notes From Tina
(tina@arthritisinsight.com)
~~~~Waving to all the new members~~~~~~
Welcome!!
Wow, the weeks go by so quickly now. I can hardly believe it's time to write another one of these columns! Does that mean I am getting old?
I had an interesting experience Monday. I went to the hospital to have another stomach test. Not sure exactly what this one was I didn't know what to expect. Imagine my surprise when the tech said, "Here, eat this bowl of radioactive oatmeal in five minutes." Radioactive oatmeal? Was she kidding? 'Fraid not! I HATE oatmeal, even when it isn't full of chemicals. I dumped two packs of sugar on it and managed to choke it down. They then took scans of my stomach, which was glowing, to see how fast my stomach emptied. Is that not one of the most bizarre tests you've heard of? (And no my toilet didn't glow in the dark later that day! I turned out the lights and checked! LOL!)
I have an appointment with the stomach doc on Thursday, so we'll finally know the results of all these tests.
A number of you have asked if I've heard from my insurance company regarding another round of Prosorba Column treatments. No, I haven't, but I haven't pushed the issue either. I wanted to get this stomach mess taken care of first. If my appointment Thursday is full of good news then I'll be riding the insurance company all next week! They will cringe every time they hear my name. I give them ten days, then they'll approve it just to shut me up-works every time ;-) I hope to have my first treatment before the O.H.I.O get-together next month.
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Ron's Ramblin's
(ron@arthritisinsight.com)
We all hear so much about the negative medical experiences that we have, I thought I would take just a little time to talk about something positive. For the past few months, in addition to my rheumatologist I have been visiting a center for pain management and complementary medicine at one of the major hospitals in Indianapolis. Before I even was allowed to go to the center I had to provide a full medical history and have it evaluated to determine if they thought they could help me.
It has really been an interesting experience because there is an entire team that follows me. My team consists of a nurse case manager, an orthopedist who specializes in pain management, a psychiatrist, a counselor and a physical therapist. Periodically they all sit down and evaluate where we started and where we are now (an interesting concept, doctors and therapists who talk to each other). Each of these people has a caring attitude. From the moment I walk in the door, til the moment I leave, I feel that each person there really cares what happens to me. It is the only time I can remember that I have felt this positive about any medical facility. The physicians treat you with various traditional medications depending on the length, level and cause of the pain. The medication can be anything from ibuprofen up to the narcotics used for severe pain.
Another interesting thing about the pain center is included in its title, center for complementary medicine. I found this term very intriguing. What was complementary medicine? Were they going to take me off my meds and try some magic cure? I really did not understand. Well having been there a while, I am just beginning to understand what the operation is about. It is not about changing the traditional approach wholly but is about adding positive things to it. The center offers many different skills from acupuncture to hypnotism. Personally, I have been introduced to some relaxation and meditation exercises which have helped me immensely (I tend to be very tense all of the time), have been provided some dietary advice which should help and some dietary supplements. After being there for about three months, I am beginning to feel and act like the old Ron?the one who first joined this group. I am no longer so depressed and lethargic. I am full of energy and feel much !
better than I did.
I am not advocating this approach for everyone but it has worked for me. I think that the team approach where each person knows what the other is doing, and the caring nature along with the proper medications and complementary approaches have turned my life around. I had become a Zombie who really was blank. I just wandered around. I once again have focus and a sense of usefulness. I am learning to anchor myself and not become so detached. I am learning to relax; I am learning all over how to be the real me. I have learned to be much more accepting of myself and of others, I have learned to let go of the trash that I carried around for years. I fully believe that by helping myself emotionally and mentally I have helped myself physically. I am a positive person now. What more could I ask for?
((((((((((((((((((((((((Warm Hugs For All)))))))))))))))))))))))))))))))))))
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Your Weekly Giggle
Mis-Translations From All Around The World...
A sign in a Swiss hotel
"Because of the impropriety of entertaining guests of the opposite sex in the bedroom, it is suggested that the lobby be used for this purpose."
A sign at a Thai donkey ride
"Would you like to ride on you own ass?"
In a laundry in Rome
"Ladies, leave your clothes here and spend the afternoon having a good time."
From a letter in response to an inquiry about accommodation
"Dear Madam: I am honorable to accept your impossible request. Unhappy it is, I have not bedroom with bath. A bathroom with bed I have. I can though give you a washing, with pleasure, in a most clean spring with no one to see. I insist that you will like this."
A sign in a Paris hotel
"Please leave your values at the front desk"
In a Bangkok dry cleaner's
"Drop your trousers here for best results"
A sign in a hotel across the street from a Russian cemetery
"You are welcome to visit the cemetery where famous Russian and Soviet composers, artists, and writers are buried daily except Thursday."
A sign in a Japanese hotel
"You are invited to take advantage of the chambermaid."
Check out all the jokes at /fun/jokes/index.html. Send yours in today!
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Tina's Tips
Arthritis can affect your ability to do even the simplest of tasks. I've heard some people say, "Accept your limitations." I'm not sure accepting them is the way to go. I prefer to challenge those limitations, work around them, finding alternate ways of achieving the same goal. Every week I'll share some tips I've found to work around those annoying limitations and I hope all of you will send in your tips too. We may not be the next Martha Stewart, but sometimes the simplest things can help so much.
We've got some great product recommendations this week:
From Carol:
I bought an Oreck sweeper and I love it. The upright weighs only 8 pounds and is very easy to push or carry from one place to another. The other thing I really like about it is that the attachments are not connected to the upright. There is a small sweeper that is about the size of a shoe box that has an extendable hose and attachments to use when you are vacuuming furniture, steps or along walls and corners. It has a strap connected to the box that you can put over your shoulder (or crisscross it which I do) to carry it along. So when you're cleaning you don't have to bend over, change attachments and push any buttons to go from vacuuming the floor to smaller areas. You can plug both of them in and go from one to the other with ease. Not only are they easy to maneuver, but both sweepers do a great job! They sweep up even little tiny dog hairs from my 2 dalmatians. I've never been able to get all those those little needle-like hairs up with my other sweeper. And I'm not
nearly as exhausted after vacuuming so it gets done more often!!! It's arthritis friendly!!!!
And from Donna:
I have a Good Grips, Rolling Herb Mincer that is wonderful when you need to mince herbs. It has a large handle and you just roll it over your herbs a couple of times and the herbs are minced. I found mine at a hardware store, but I am sure you could find them at any place that sells kitchen wares.
Check out more tips at /living/tips.html and send in yours today to Tina@arthritisinsight.com.
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What's New?
This week's Featured Discussion is Depression & Arthritis.
Check it out at /feature/arthritis
Advice for Better Living
Arthritis & food-has anyone food certain foods that make symptoms worse?
/living/advice/
Expert Advice:
Two new questions from our international members. /medical/advice/
Question of the Week
What is the BEST thing arthritis has done for you?
/community/question/
Questions From Friends & Family
My Mom has had RA for several years. She's had several surgeries and has had numerous problems. Despite feeling bad, she will not slow down. She works fulltime, volunteers in her spare time, gardens on the weekend, etc. I am afraid she is just hurting herself by pushing it. Shouldn't she just slow down before she makes things worse? How can I get her to slow down?
Tell us what you think.
/living/family/questions/
Member Stories
Isn't it time you sent yours in?
/community/stories/
Our Shining Star
We know there are many inspiring people out there with arthritis, we've been lucky to meet many of them. We want to find more of these people. We're not talking about climbing mountains or running a marathon, if you can that's great, but most of us just aren't able. We're talking about being a good friend, being a role model, just being an all around inspiring person. You can nominate your mother, your child, your brother, your online pal, your neighbor, anyone who has arthritis hat you think is incredible, even yourself! We will accept nominations until September 25th. On September 26 we will begin voting. Every member of our community will be able to vote. On October 2nd we will announce our winners!
We have two nominations so far. TWO! C'mon, tell us about your Shining Star.
/contest/index.html
Exercise
We took the information presented in the Exercise Featured Discussion and created an Exercise section in the Better Living area.
/living/exercise/
Ask the Webrarian
Someone was looking for pictures of the Lupus rash and we found some.
/resources/webrarian/
Message Boards
There are 378 people using our message boards! Stop by and see what everyone is talking about.
//forum
Due to lack of participation, the Clubhouse has been closed.
To see all of our latest additions see: /updates.html
. Check it every morning and you won't miss a thing.
What's Coming?
Our next Featured Discussion will be for those New To Arthritis. Remember how scare you were when you heard those words, "You have arthritis." Please help others and fill out our survey.
/feature/survey.html
Next week at JRA World the Featured Discussion will be Arthritis & Dating, maybe. We can't do this one alone. Please share your experiences and fill out our survey.
http://jraworld.arthritisinsight.com/feature/survey.html
What do you want to see on Arthritis Insight or in the Newsletter? Let us know and we'll do our best to accommodate!
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Arthritis Insight Chat
/community/chat/
We had a great turnout Monday night for our Depression & Arthritis Chat with Walt Hanks. I think it was very beneficial for everyone that attended. The transcript has been posted at
/community/chat/sept112000.html
This Monday, September 18th, Dr. Barry Waters join us once again to answer questions from those that are New to Arthritis. It starts at 9:30pm Eastern time, come early, Dr. Waters always packs the house!
*Don't forget our NEW CHAT!
Wednesday nights at 10pm Eastern time is Parent's Support Chat in the JRA World chatroom for those of us with children that have arthritis with JRAWhostDonna. Thanks Donna!
The complete chat schedule can be found at /community/chat/schedule.html.
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Cooking With Char!
char@arthritisinsight.com
Hello, Hello! Summer was back over the weekend, but fall will be here tomorrow. The weather is so changeable this time of year, it is hard to know what to wear or to cook, for that matter. Most folk eat more lightly on hot days.
But autumn will be truly upon is, in no time.
And with that thought in mind, I have some budget conscious, super easy, crock pot recipes for you. Over the next few weeks I will have many more. Today's are chicken recipes requiring less 6 or less ingredients. I think for most of these recipes you can substitute cut up chicken hind quarters for the chicken breasts. The cooking time will just be a bit longer.
Crockpot Italian Chicken
About 2 lb. of chicken (boneless chicken breasts recommended)
1 pkg. dry Italian spaghetti sauce mix
1 sm. can diced tomatoes (15 oz.)
1 sm. can tomato sauce (8 oz.)
Place the chicken in the crock, sprinkle with the dry mix
Add the can of tomatoes and the can of tomato sauce
Cook on low all day (7-9 hr.)
Or on high 3 1/2 to 4 1/2 hrs
Serve with pasta and Parmesan cheese and garlic bread.
Hawaiian Chicken
About 3 lb. of chicken parts
salt and pepper to taste
1/2 C soy sauce
1/2 C chopped green onions
1/2 C honey
1 can chunk pineapple
Sprinkle chicken with salt and pepper and place in Crockpot. Combine soy sauce, pineapple with juice, and green onion and pour over chicken.
Cover and cook on low for about 7 hr.
Serve with rice.
Cola Chicken
1 whole chicken (1 1/2 lb to 2 1/2 LB)
1 C ketchup
1 large onion thinly sliced
1 C of Coke or Pepsi or other cola drink
Wash and pat chicken dry
Salt and pepper to taste
Put chicken in Crockpot with the onions on top
Add cola and ketchup
Cook on low for 6 to 8 hr.
Creamy Dijon Chicken
4 to 6 boneless chicken breasts
1 pkg. Dijon mustard sauce mix
1 can cream of mushroom soup
Combine all ingredients in Crockpot
Cover and cook on low 6-8 hr.
Italian Dressing Crockpot Chicken
4-6 chicken breasts
1/4 C white wine
1 pkg. dry Italian salad dressing mix
Brown chicken in skillet.
Place chicken in Crockpot
Sprinkle dry salad dressing mix over chicken
Add wine Cook for about 4 hr. on high
(I haven't tried this one yet, but I'll bet if you add about a 1/2 cup of water, you can increase cooking time and put it on low for 6-8 hrs)
If you have questions, comments or suggestions, please address them to Char@arthritisinsight.com
And dont forget, I am looking for holiday recipes folks. I got one this week, so I know SOMEBODY is paying attention. LOL
God bless and see you next week.
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Notes and Insights:
From Donna:
October Happening In Ohio
When...October 12-15
Place...Wooster, Ohio
The deadline for reserving rooms is this Monday! Make your reservations today!
There will be a Pizza Party at the hotel on Thursday, sponsored by those great folks at Arthritis Insight ;-). Friday activities include an Amish Country Tour with lunch at an authentic Amish Restaurant, outlet mall shopping and a cocktail party at the home of the Hostess with the mostest, Donna! Saturday we'll hang out and do whatever anyone wants to do?the list of area activities is really quite long and have dinner at the Town & Country. Sunday we'll meet for breakfast and say our tearful goodbyes. If you have the opportunity to attend this or any other online support group gathering, do it, you won't regret it. Imagine four days spent with other people that limp just like you do. People that won't give you a funny look when you pop 10 pills with dinner, people that know exactly how you feel. The friendships that are formed will last a lifetime.
Complete information is posted at http://fadedjeans.com/ohio
Happy Birthday!
Happy Birthday Katie! Check out all the birthdays at /community/birthday/
and make sure to send them an arthritis-friendly e-card: /cgi-bin/postcards/postcard.pl
Help us and help yourself!
Help us and help yourself!
We've begged, we've pleaded, now we are paying! Internet sites typically pay 15% commission to any ad agency that brings them a sponsor. Well, we're offering that commission to you! Refer any potential advertiser to us and receive 15% of the price of their ads!
Special Offers for Arthritis Insight Members
Whenever possible we will try get to our sponsors to agree to discounts and the like for our members. Here are our current special offers:
KC Comfort Zone (www.kccomfortzone.com)
KC Comfort Zone offers Innovative Products for Healthy Living. Safe, instant, portable, reuseable hot and cold Therapy packs as well as many other products for your comfort. KC Comfortzone will give Arthritis Insight members free shipping on ALL orders! And they'll donate 10% of your order total to the Arthritis Foundation. Just put (arthritis) next to your name on the order form.
KAS Enterprises (http://www.kasenterprises.com/theraband.html?ai) has graciously offered to help us out in our quest for fitness. They have put together a special package of Thera-Bands? and accessories. All for $19.99 with free shipping and a free instruction manual. If you mention Arthritis Insight you'll get double Frequent Buyer Bonus Points so you can earn free products!
Sore No More gel (http://www.sorenomore.com/) will send a free sample of the pain relieving gel to any Arthritis Insight Community Member who emails them at dma@glogerm.com.
Therabath Paraffin Therapy Bath is offering $30 off of their regular price of the Therabath unit. Visit http://www.wrmed.com/special_offer.htm for more info.
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Weekly News Summary
Wendy Tindell
Fosamax (Alendronate) Shows Continued Benefits After Seven Years
TAMPERE, FINLAND -- May 10, 2000 -- The latest results from a study on Fosamax(R) (alendronate sodium), Merck & Co., Inc.'s osteoporosis medicine, showed that after seven years of continuous use the drug continued to build bone in the spine, maintained bone at the hip, and was generally well-tolerated in the trial. The results presented at the 27th European Symposium on Calcified Tissue were derived from the largest, randomized, long-term study of an osteoporosis therapy. Merck plans on continuing the study for another three years to examine the efficacy and safety of Fosamax for a total of 10 years.
"With the availability of alternative osteoporosis treatment options in recent years, many physicians and patients have expressed interest in learning more about the long- term effects of these therapies," said investigator Richard Tonino, M.D., associate professor of medicine, University of Vermont College of Medicine. "Now patients and physicians can feel reassured that continued use of Fosamax provides continued bone benefits while maintaining a good safety and tolerability profile."
http://www.pslgroup.com/dg/1d0f9e.htm
Medicare Drug Coverage: Senate Democrats Offer Prescription
New Bill Will Square Off Against Republican Proposal
By Sean Martin
WebMD Washington Correspondent
May 10, 2000 (Washington) -- President Clinton Wednesday introduced 73-year-old widow Betty Dizik as "Exhibit A" at a White House event touting congressional Democrats' new
Medicare prescription drug legislation. Dizik purchases supplemental "Medigap" insurance, but it does not include prescription drug coverage. She works five days a week for Meals on Wheels, but with $23,000 inyearly income and $450 in monthly drug costs for a heart condition and diabetes, she must skip medications to make ends meet elsewhere. "I'm
charity," she said. "I'm just asking for a little help." A study released today by the Older Women's League claimed that women spend 13% more than men do for prescription drugs, despite the fact that on average, their incomes
are 40% lower. About one-third of the nation's senior citizens have no drug benefit even as medications make up an increasing part of health care and drug prices are the highest in the world. "We would never think of creating Medicare today without it," Clinton said Wednesday.
http://www.ahn.com/inhealth/NewsBasicDisplay.asp?DocID=6294
Splitting Drugs for Pain in Twain
Leaving the addiction behind in morphine, heroin
By Nicolle Charbonneau
HealthSCOUT
WEDNESDAY, May 10 (HealthSCOUT) -- Clipping the pain relief part of morphine and heroin from the addictive part of these opiates may one day lead to new ways to treat both pain and drug addiction, says new research.
These drugs relieved pain in mice bred to lack a chemical receptor in their brain, and the animals don't become addicted to them, says a report in the latest issue of Nature. The critical element missing in these mice is called the substance P receptor, found on the outside of brain cells. Substance P is a neurotransmitter -- a chemical that carries messages from nerve cells to other cells -- that has been linked to pain relief and depression.
http://www.healthscout.com/cgi-bin/WebObjects/Af.woa/8/wo/
la8000c2400to00029/0.0.7.5.4.1.
0.13.2.3.1.0
New Hope for Sufferers of Psoriasis-Related Arthritis
Jean Lawrence, Medical Writer
A new, injectable medication called etanercept and marketed under the trade name Enbrel is achieving significant results treating psoriatic arthritis (a form of the joint-inflaming disorder linked to the skin disease psoriasis). Better yet, the new drug also improves the skin lesions caused by the disorder. Philip J. Mease, MD, medical director of the Division of Clinical Research at the University of Washington in Seattle and lead investigator of a trial of etanercept recently reported to the American College of Rheumatology, says psoriatic arthritis has been getting more recognition lately but is not really on the rise. Nevertheless, 7 million Americans suffer from psoriasis and about a tenth to a third of those develop arthritis symptoms linked to this genetically passed, noncontagious disorder.
http://cbshealthwatch.netscape.com/netcenter/p/G_library/
article.asp?contentType=library&PageType=general&RecID=207590&
Channel=23
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Life and Laughter with Arthritis
(ron@arthritisinsight.com)
No funny stories this week, so you have to listen to another one of Tina's:
This took place a couple of years ago when my medication related GI troubles began. I was scheduled for a scope of BOTH ends with some xrays to follow. My Mom went with me because I wouldn't be able to drive home with the drugs they give for a scope.
They knocked me out and did the scopes. They let me wake up a little bit before sending me to x-ray, but not fully. So there I sat in outpatient xray in my little gown while every one else in the waiting room is in street clothes, really didn't bother me, because I had happy medicine and didn't care! I sat down next to my mom and went directly to sleep. Which shouldn't have been a big deal, right? Wrong, I snore VERY loudly. My mom elbowed me and told me everyone was looking at me, I thought that was very funny and began to giggle.
If you've ever had a colonoscopy you know that they fill your bowels up with air, and what goes in must come out! And out it came, LOUDLY, many times. I thought that was hysterical and began giggling harder. According to my mom the people around me got up and moved and every one in the waiting room was snickering at the drugged, half clothed, snoring, farting, giggling lady. My own Mother even got up and left me there all alone! She couldn't take it any longer. She still reminds me of this!
Now stop laughing at me and send us your funny or embarrassing arthritis story!
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Contribute
Have you written something you think our subscribers would like to read? Send it to Tina@arthritisinsight.com and maybe we'll use it in our newsletter.
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A Closing Thought
~ABC's OF FRIENDSHIP~
Accepts you as you are
Believes in "you"
Calls you just to say "HI"
Doesn't give up on you
Envisions the whole of you (even the unfinished parts)
Forgives your mistakes
Gives unconditionally
Helps you
Invites you over
Just because
Keeps you close at heart
Loves you for who you are
Makes a difference in your life
Never Judges
Offers support
Picks you up
Quiets your fears
Raises your spirits
Says nice things about you
Tells you the truth when you need to hear it
Understands you
Values you
Walks beside you
Xxoxoxoxoxoxo
Yells when you won't listen and
Zaps you back to reality
- Author Unknown
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Arthritis Insight Newsletter Copyright 2000
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