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Home Community Newsletter Vol 1 Issue 25

Arthritis Insight Newsletter * Vol. 1 Issue 25 September 20, 2000

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Welcome to the 25th issue of the Arthritis Insight Newsletter. All back issues will be posted at /community/newsletter/ Feel free to pass this newsletter around to others who may be interested.

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The information in this newsletter should not take the place of advice and guidance from your own health-care providers. Material in this newsletter is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Information presented here is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.

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Notes From Tina
(tina@arthritisinsight.com)

Hello, I hope everyone has had a great week!

I finally have the results of my stomach tests and though the results aren't great they good have been a lot worse. One of my biopsies came back changed from last year. It is not cancerous, but it is considered pre cancerous, so although that wasn't good news, it certainly could have been worse.

They've changed my medication and suggested a surgery that may or may not decrease the odds that it will eventually be cancer. I haven't made a decision on that one yet. Need time to do some researching first.

I also had a rheumatology appointment this week. Insurance is really stalling on the Prosorba coverage. He is sicing his nurse on them and then I will begin my barrage of phone calls. They just can't comprehend that I don't have a lot of options here. And of course it isn't their body that is falling apart, so they don't really care. I am his only patient that has succeeded in getting coverage for the Prosorba treatments, several others have tried with no luck. And of course many other folks are out there fighting for Remicade or Enbrel and many other treatments. Why does it have to be so difficult to get the medical care we need? Why do insurance companies get to decide what is best for us instead of our own doctors? It just isn't right.

I had lunch with Donna yesterday and we discussed some of the details of the OHIO get together. I think everybody will have a GREAT time. If you haven't made your reservations yet, you better hurry! I don't know if there are rooms left or not.

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Ron's Ramblin's
(ron@arthritisinsight.com)

OK, enough of this blue funk I have been in. I am really looking forward to the changing of the season, not that I would wish the cold weather on any of us, but fall is one of my favorite seasons. I like the crispness and cleanness of the air, the fact that you can quit cutting grass, I like the colorful transition from the hot muggy Summer heat to the cold frigid winter blasts (at least of those north of the Ohio River). It seems that it is natures way of easing us from one extreme to the other. She puts on her finest and most colorful garb and teases us with cool weather followed usually by an Indian summer. If you don't know what those are, they are those absolutely beautiful warm days in the midst of the oncoming cold. They are the days when I used to love to smell the leaves burning, and see the families out raking leaves, the children romping and jumping into the piles. The air would be filled with the smell that only burning leaves could produce. Then as the sun begins to set another odor starts to join the leaves. The families have quit their chores for the day and have built a warm and glowing fire in the fireplace. Gathered together reading, listening to radio or the stereo or even watching a family program together in front of the fireplace. Maybe popping corn over the fire or roasting chestnuts, or as I did as a kid, baking potatoes. Guess my age is showing a bit, but I have to admit that there are many things I miss about the slower pace of life as I was growing up. When the summers away from school seemed forever, and the school year an eternity. Just thinking out loud here, but maybe we should all reflect on the slower pace of days past. Have we really advanced as a culture. I don't mean technologically because that part of our lives is skyrocketing. I have heard for years how the computer is going to save us time, how it is more efficient, as I sit here, I have to wonder if it has accomplished that or if it has just replaced the family as a form of entertainment. I don't intend for that statement to be argumentative at all, for I am wed to my computer as much or more than anyone else here. But still, sitting on a riverbank with my dad catching catfish has a great appeal. I guess getting older does have its benefits. I can now live the good times over and over again.<G>.

On another note, I know each of you out there knows someone who would qualify for the Shining Star Award. Please take some time to click on the contest logo on the front page of the site and see who has been nominated. If your shining light is not there, take a few minutes to nominate them. Who knows, you may just be someone's shining light in the darkness of arthritis.

For this week, ((((((((((((((HUGS TO ALL)))))))))))))))
~Indy

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Your Weekly Giggle

Midlife

Midlife is when you go to the doctor and you realize you are now so old, you have to pay someone to look at you naked

The good news about midlife is that the glass is still half-full of course, the bad news is that it won't be long before your teeth are floating in it

Midlife women no longer have upper arms, we have wingspans, we are no longer women in sleeveless shirts, we are flying squirrels in drag

Midlife has hit you when you stand naked in front of a mirror and can see your rear end without turning around

You know you are getting old when you go for a mammogram and you realize it is the only time someone will ask you to appear topless in film

You know you've crossed the midlife threshold when you're in the grocery store and you hear a Muzak version of "Stairway to Heaven" in the produce department

Midlife is when you bounce (a lot), but you don't bounce back (It's more like Splat!)

Midlife brings the wisdom that life throws you curves and that you're now sitting on your biggest ones

It's very hard to "get jiggy with it" in midlife jiggly, yes; jiggy, no

Midlife is when your 1970s Body-by-Jake now includes Legs-by-Rand McNally (more red and blue lines than an accurately scaled map of the state of Wisconsin)

Midlife is when you want to grab every firm young lovely in a tube top and scream, "Listen, honey, even the Roman Empire fell, and those things will too!

Midlife can bring out your angry, bitter side. You look at your latte-swilling, beeper-wearing know-it-all teenager and think, "For this I have stretch marks?

Midlife is when you start to repeat yourself and your chins follow suit

Midlife is when you realize that if you were a dog, you'd need a control top flea collar

Midlife is when your memory really starts to go- The only thing you still retain is water

You become more reflective in midlife You start pondering the "big" questions-what is life, why am I here and how much Healthy Choice ice cream can I eat before it's no longer a healthy choice?

Check out all the jokes at /fun/jokes/index.html. Send yours in today!

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Tina's Tips

Arthritis can affect your ability to do even the simplest of tasks. I've heard some people say, "Accept your limitations." I'm not sure accepting them is the way to go. I prefer to challenge those limitations, work around them, finding alternate ways of achieving the same goal. Every week I'll share some tips I've found to work around those annoying limitations and I hope all of you will send in your tips too. We may not be the next Martha Stewart, but sometimes the simplest things can help so much.

A great suggestion from Dorothy:

My humble suggestion for clothing to deal with casts, braces, and other dressing impediments is: take a pair of fleece "sweats", and cut side seam of the top from the bottom just above the ribbing (or if needed, through the ribbing) all the way up through the armhole and through the underarm seam and cuff. Measure this distance from start to finish, buy a plastic zipper at least 2 inches longer than the measurement and sew in the zipper with the bottom at your waist and the open end at your wrist. You can then close the zipper as much as the brace/cast/whatever will allow. You can dress with much less jarring and movement. If you need help with the zipper installation, probably a dry cleaners will be able to sew it in.

And from Orrion:

Hi I dont have RA, but I live with my grandparents who do, and might have a few "hints" someone might be able to use. Ive heard that bee stings help circulation in swolen "spots" but this never seemed to help those I live with but as a result of trying every home remidy in the book the onily substitute is a hot heating pad sewn togather to fit an arm/leg as a sleeve. It sometimes helps the pain and often reduces the swelling.

Check out more tips at /living/tips.html and send in yours today to Tina@arthritisinsight.com.

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What's New?

This week's Featured Discussion is New to Arthritis. /feature/arthritis 

Advice for Better Living
How do people deal with calling in sick to work when they're having one of those days where you wake up and can't move? Tell us!
/living/advice/  

Expert Advice:
3 new questions from folks new to the arthritis experience.
/medical/advice/ 

Question of the Week
What is the most helpful thing someone has done to help you while you were suffering with arthritis?
/community/question/  

Questions From Friends & Family
I've read and heard about many different remedies for arthritis that really work according to those who have tried them. Yet when I tell my mother-in-law about these things that will help her, she does not listen to me. Doesn't she want to get better? 
Whoa! I have a feeling we are going to get many responses to this one! OK folks, let's hear from you. 
/living/family/questions/  

Member Stories
We have several new stories this week. Do we have yours?
/community/stories/ 

Our Shining Star
Check out our nominees and nominate the Shining Star in your life!
/contest/index.html 

Photo Album
On the cover of the Rolling Stone...well...okay so it isn't the Rolling Stone. Tina's cover shot and accompanying article in Insight Arthritis, a magazine published by the Northeast Ohio Arthritis Foundation.
/community/photo/ 

Member Websites
Two great new sites, our members are so talented! Does having arthritis make people creative? Or do creative people get arthritis? Something to ponder!
/community/websites/index.html 

To see all of our latest additions see: /updates.html  Check it every morning and you won't miss a thing.

What's Coming? 

Our next Featured Discussion will be Good Medical Records & How to Keep Them. Do you keep accurate medical information at home? Tell us about it, fill out our survey.
/feature/survey.html  

What do you want to see on Arthritis Insight or in the Newsletter? Let us know and we'll do our best to accommodate! 

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Arthritis Insight Chat
/community/chat/

We had another great chat with Dr. Barry Waters on Monday. We just love his sense of humor. The transcript of the New to Arthritis Chat has been posted at 
/community/chat/sept182000.html


The complete chat schedule can be found at /community/chat/schedule.html. 
 

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Cooking With Char!
char@arthritisinsight.com

Hello again! Another week has come and gone. Here in Iowa, we have been having some unseasonably warm days. Up into the 90s a couple of times. It is time for fall. HEAT BEGONE!!! LOL It was worth a try.

Lets start cooking!

Have you ever bought the stuff they call "sandwich spread", at the grocery store? It is usually about $1 or more for a small tub of it. No need to pay those prices, it can be made very quickly and easily at home.

Get out your food processor or food grinder
In a food processor, pulse until all ingredients are very small. In a food grinder, just run everything through it.
For a small batch (makes about 10 sandwiches) 
You start with 1-12 oz package of hot dogs
1/2 medium onion
sweet pickles or sweet pickle relish (If you use pickles, either run through the grinder, or pulse in your processor with onion and hot dogs). (If using relish, about 1-2 heaping tablespoonfuls, according to your taste.)
Add just enough mayo type salad dressing or mayo, to make it all spreadable.
Great for those Saturday lunches when little Johnny has to be at soccer practice at 12:30 and Susie has to be at dance lessons clear across town at the same time, and you have had to spend the whole day, taking care of the cleaning and the laundry, and you have company coming for dinner tomorrow.

And here is a recipe for the company dinner on Sunday.

Crockpot Beef Stroganoff
2 lb. of lean beef cut into cubes
about 2 dozen small mushrooms or larger mushrooms sliced, or a couple small cans of sliced mushrooms.
1 can cream of mushroom soup
1 16 oz carton of sour cream
3 oz of cream cheese
Worcestershire sauce
salt and pepper to taste
Place beef in bottom of Crockpot
Salt and pepper 
place soup on top of beef
place mushrooms on top of soup
add enough Worcestershire sauce to coat mushrooms
Cook on low for about 10 hrs.
Add sour cream and cream cheese during last 30 minutes
Add a couple tbs. of cornstarch mixed with just a little water, to thicken sauce during the last 30 minutes.
Serve over rice or noodles. Add a salad and dessert and dinner is ready!

If you have comments or suggestions, please send them to me at Char@arthritisinsight.com  

I am planning a special series of columns as the holidays approach. Please send me your favorite holiday recipes, decorating ideas, and entertaining ideas for the holidays. Remember, I can't do this without you.

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Notes and Insights:

From Donna:
October Happening In Ohio
When...October 12-15 
Place...Wooster, Ohio
Just a couple more weeks! Is everyone ready?
Complete information is posted at http://fadedjeans.com/ohio

Happy Birthday!
Happy Birthday Kim McCarthy 2, Mary Z. and Marilyn!
Check out all the birthdays at /community/birthday/ and make sure to send them an arthritis-friendly e-card: /cgi-bin/postcards/postcard.pl 

Help us and help yourself!
We've begged, we've pleaded, now we are paying! Internet sites typically pay 15% commission to any ad agency that brings them a sponsor. Well, we're offering that commission to you! Refer any potential advertiser to us and receive 15% of the price of their ads!

Special Offers for Arthritis Insight Members

Whenever possible we will try get to our sponsors to agree to discounts and the like for our members. Here are our current special offers:

KC Comfort Zone (www.kccomfortzone.com) KC Comfort Zone offers Innovative Products for Healthy Living. Safe, instant, portable, reuseable hot and cold Therapy packs as well as many other products for your comfort. KC Comfortzone will give Arthritis Insight members free shipping on ALL orders! And they'll donate 10% of your order total to the Arthritis Foundation. Just put (arthritis) next to your name on the order form.

KAS Enterprises (http://www.kasenterprises.com/theraband.html?ai) has graciously offered to help us out in our quest for fitness. They have put together a special package of Thera-Bands? and accessories. All for $19.99 with free shipping and a free instruction manual. If you mention Arthritis Insight you'll get double Frequent Buyer Bonus Points so you can earn free products!

Sore No More gel (http://www.sorenomore.com/) will send a free sample of the pain relieving gel to any Arthritis Insight Community Member who emails them at dma@glogerm.com.

Therabath Paraffin Therapy Bath is offering $30 off of their regular price of the Therabath unit. Visit http://www.wrmed.com/special_offer.htm for more info.

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Weekly News Summary
Wendy Tindell

FDA Approves Azulfidine EN-Tabs (Sulfasalazine) To Treat Rheumatoid
Arthritis In Children
Azulfindine EN-Tabs is now the only sulfasalazine that is FDA approved for treatment of both adult and childhood RA. The FDA approved Azulfidine for treatment of children who have five or more affected joints that did not respond well to normal NSAIDS.
http://www.pslgroup.com/dg/1ddfd2.htm 

Vioxx (Rofecoxib) Available In Canada In Oral Suspension 
There is now a new option in pain medication for people with swallowing difficulites. Up until now, Naprosyn was the only pain medication used for arthritis that came in liquid form. Since as many as 22% of people over 55 have difficulity swallowing, Doctors had a dilemma finding medication patients could take that would also help the pain.
http://www.pslgroup.com/dg/1d9d42.htm 

EULAR: Rofecoxib Associated With Greater Blood Pressure Increases And Oedema Than Celecoxib
All Cox-2 inhibitors are not the same, says new study. Patients taking both Vioxx and Celebrex were studied as a part of saftey comparison study. The study found that patients on Vioxx had significantly higher systolic blood pressure that those on Celebrex.
http://www.pslgroup.com/dg/1d922a.htm 

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Life and Laughter with Arthritis
(ron@arthritisinsight.com)

Another Tina story, this happened this week.

Saturday morning my husband looked at my car and told me I had not renewed my plates in August like I should have, so I was driving on expired plates. Knowing my luck I want to get it done ASAP!

We drove to the License Bureau with a half hour to spare. Then we wait in line for 20 minutes. While standing in line I notice this huge sign that says something like, "Writing of a bad check to this office is considered a felony and punishable by up to six months in prison and confiscation of your car." Yikes!

Then it's my turn. I had her my registration and wait for her to pull it up on the computer. She pushes a few buttons then gets a perplexed look on her face. "They have your account locked, you wrote a bad check last year." I DID WHAT? So now I am a felon!! Me! A felon! She gives me a number to call and tells me she cannot renew my plates. Of course, it is Saturday so the State office is not open.

I drive home on those expired plates, thinking the entire time that this was impossible. It was possible I wrote a bad check, accidents happen. BUT I certainly would have taken care of it, especially a check made out to the State!

So I spend the next day being called a felon by my family. Hubby calls me his "little outlaw." The kids ask if I am going to jail, and everyone gives me a quarter for that one phone call I will be allowed to make. A lawyer friend informs me that if I get pulled over for anything I will be handcuffed and taken to jail. I wonder if they have prednisone in prison? Or internet access? How will I survive??

I laugh good naturedly, but keep thinking that I must have had some serious brain fog last year-surely I would have taken care of a bad check to the State.

Monday morning I call the State BMV to find out what is going on. Prepared to settle a debt, I have my credit card ready. I explain who I am and give my license number. She says, "Your check didn't clear the bank?oh wait a minute?YES it did. Sometimes our computers just burp." BURP? Your computer BURPED and I could have been taken to jail???

That's the end of my ordeal, right? Wrong. I had planned on meeting fellow Arthritis Insight member Donna for lunch and decide to go get my plated renewed before I go. I go back to the license bureau, which of course is in the opposite direction. I go there and renew the plates without problems, it went right through this time. 

I get my sticker and decide I better put it on before I go to lunch or would surely get a ticket. I bend down in the parking lot to stick it on. OH no! I forgot my plates have a frame and cover. Not wanting to take the time to go home and get a screwdriver I head to the store across the street. Now do you suppose they sell one screwdriver? 

Of course not! My only option is a package of 6. So I buy six damn screw drivers and put the sticker on the plate, FINALLY.

Then I meet my pal Donna for lunch and of course she thinks it is all just hysterical and can't wait to tell the chatroom folks. And she didn't waste anytime in doing just that Monday evening!

Now stop laughing at me and send us your funny or embarrassing story!

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Contribute
Have you written something you think our subscribers would like to read? Send it to Tina@arthritisinsight.com and maybe we'll use it in our newsletter.

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A Closing Thought

Don't Look Back 

As you travel through life there are always those times 
when decisions just have to be made, 
when the choices are hard and solutions seem scarce 
and the rain seems to soak your parade! 

There are some situations where all you can 
do is to simply let go and move on, 
gather courage together and choose a direction
that carries you toward a new dawn. 

So pack up your troubles and take a step forward. 
The process of change can be tough. 
But think about all the excitement ahead,
if you can be stalwart enough! 

There could be adventures you never imagined
just waiting around the next bend
and wishes and dreams just about to come true
in ways you can't yet comprehend! 

Perhaps you'll find friendships that spring from new interests,
as you challenge your status quo
and learn there are so many options in life, 
and so many ways you can grow! 

Perhaps you'll go places you never expected 
and see things that you've never seen, 
or travel to fabulous, faraway worlds and
wonderful spots in between! 

Perhaps you'll find warmth, affection and caring, 
a "somebody special" who's there
to help you stay centered and listen with interest 
to stories and feelings you share. 

Perhaps you'll find comfort in knowing your friends 
are supportive of all that you do 
and believe that whatever decisions you make, 
they'll be the right choices for you! 

So keep putting one foot in front of the other 
and taking your life day by day. 
There's a brighter tomorrow that's just down the road. 
Don't look back, you're not going that way!

- Author Unknown 

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Arthritis Insight Newsletter Copyright 2000

Staff
Page last updated on September 20, 2000

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