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Vol 4 Issue 146
Arthritis Insight Newsletter * Vol. 4 Issue 146 April
2, 2003
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Welcome to the 146th issue of the Arthritis Insight Newsletter.
All back issues will be posted at /community/newsletter
Feel free to pass this newsletter around to others who may be
interested.
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The information in this newsletter should not take the place of
advice and guidance from your own health-care providers. Material
in this newsletter is provided for educational and informational
purposes only. Be sure to check with your doctor before making
any changes in your treatment plan. Information presented here is
the opinion of the authors and has not necessarily been approved
or endorsed by the medical advisors.
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Notes From Tina
(Tina@arthritisinsight.com)
Tina Underwood aka KrissyJo
Greetings Everyone!
The weather has warmed up and I've survived Spring Break with the
kids. Life is good!
Fundraiser is moving along - we've raised enough money to catch
us up and keep us going for a few months. I just wanted to thank
everyone that has donated so far - every single dollars helps!
Don't forget we've got some great prizes for our top contributors
you can find information on prizes and how to donate at:
/help/fundraiser2003
We *still* haven't heard from our February Arthritis Warrior.
Nancy Phillips - if you're out there - please, please drop
us a line!
Moving on - here's Ron...
~Kimmy
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Ron's Ramblin's
(Ron@arthritisinsight.com)
Ron Griffin aka IndyRon
Wow, it actually feels like spring has arrived. Thank goodness.
The flowers are blooming, the trees are budding and life is all
in all pretty darned good. It is hard to believe that I have been
retired for a month now. Where did it go. I seem to be busier now
than I have been in a long time. I guess that is a good thing,
but somehow I thought that the "TODO" list was supposed
to be getting shorter, not longer. Oh well, one project at a time
and we will get them done... and if not, who cares.
I have had Evan here with me for a week now and the twins for a
few days... We really have been having a ball. I had forgotten
how good it feels just to be outside and doing almost anything.
Today, we redid the front of the Condo and put in a new flower
bed with a "rock wall" around it. I certainly am glad
that I had three healthy kids to send on search and rescue
missions to liberate rocks to stand guard around the garden. LOL,
they seemed to have a ball finding just the right stone for the
right spot.
I hope that each of you has a wonderful and relatively pain free
week this week.. Until next time:
(((((HUGS))))) to all
~Ron
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Your Weekly Giggle
Little Helpers
Have you noticed that children sometimes try to be helpful, but
it makes your life more complicated?
I heard a story about a mother who was sick with the flu. Her
darling daughter wanted to be a good nurse. She fluffed the
pillows and brought a magazine for her mother to read. And then
she showed up with a cup of tea.
"You're such a sweetheart," the mother said as she
drank the tea. "I didn't know you could make tea."
"Oh, yes," the little girl replied. "I put the tea
leaves in the water like you do, and I boiled it, and then I
strained it into a cup. But I couldn't find a strainer, so I used
the flyswatter."
"You what?"
And the little girl said, "Oh, don't worry, mom. I didn't
use the new flyswatter. I used the old one."
Check out all the jokes at:
http://arthritsinsight.com/fun/jokes
Send yours in today!
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Tina's Tips
Tina@arthritisinsight.com
Arthritis can affect your ability to do even the simplest of
tasks. I've heard some people say, "Accept your
limitations." I'm not sure accepting them is the way to go.
I prefer to challenge those limitations, work around them,
finding alternate ways of achieving the same goal. Every week
I'll share some tips I've found to work around those annoying
limitations and I hope all of you will send in your tips too. We
may not be the next Martha Stewart, but sometimes the simplest
things can help so much.
Many, many thanks to Betty for this week's tip:
Arthritic Hands? In attempting to open those large containers of
laundry detergent my hands took a beating until I discovered (by
accident) if you just grip the lid and turn only the container
off comes the lid with a minimum of effort...same putting the lid
back on. Rest the container on something if necessary to steady
the booger!
Check out more tips at
/living/tips.html and send in yours
today to Tina@arthritisinsight.com Keep those tips coming!
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Whats New
Check out all the latest updates at /updates.html
Fundraiser 2003
We'd like to thank Valerie Marsden, Joy Ackerman, Alice Hudson,
Eugena Hall, Nann Bell, Sylvia Smith, Karen Krasean, Joanne
Paradise, Diane Keeney and Betty Horne for their generous
donations!
/help/fundraiser2003
Rosie's SOS
She's back and she's navigating...
/living/family/sos
Members CAN
Rickie creates and Jen learns!
/community/can
Photo Album
Take a walk through Cindy's garden...
/community/photo
Our Pets
Barb tells us about her cat Lucky.
/living/pets/pets.html
Newsletter
The very latest edition is up and ready for you.
/community/newsletter
News
KaeKae's been working hard. All the latest arthritis and general
health news gathered from all over the internet - just for you.
/news
Our Pets
Patti tells us about her pooches.
/living/pets/family.html
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Arthritis Insight Chat
/community/chat
The Arthritis Insight Chatroom is a great place to spend a cold,
snowy evening. Stop in a warm up with your friends next to the
fireplace. We always have hot cocoa and coffee ready!
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Cooking with Char
Char LeFleur
Char@arthritisinsight.com
Hello friends! And welcome to SPRING! The early flowers are
almost blooming, the trees are starting to leaf out, the grass is
greening, and I love spring!! Although Saturday morning we woke
up to snow on the ground. (sssshhhhhiiiiivvvveeeerrrrr!!!) But
April is here! And that means Gimpfest is getting closer all the
time!
Just a reminder that my husband and I will be hosting Gimpfest in
Iowa this summer. Please see Gimpfest: Iowa for
dates and details. They really are more fun than you can imagine!
So please, attend if you possibly can. You won't regret it!
I recently had a request for vegetarian recipes. Well, I am an
omnivore, through and through, but I managed to find
these----enjoy! (They actually sound like they would taste
great!)
Cabbage Casserole
Ingredients:
1 small head of cabbage, shredded or chopped fine
1 large jar of favorite spaghetti sauce (or make your own)
1 cup rice (I used white, but I'm sure that brown would work too,
though you may need to add more water)
1 cup water
1 cup of sliced mushrooms (I'm sure other veggies would work too)
Directions: In a dry, nonstick skillet "fry" the rice
until it's brown in color. Then put half of it in the bottom of a
large casserole dish. Layer half of the shredded cabbage on top
of it. Mix the water and the spaghetti sauce and then pour half
of it over the cabbage. Spread half of the mushrooms over this.
Then repeat your layers. Bake for about an hour in a 350 degree
oven.
Creamy Rice & Spinach Casserole
Ingredients:
several cloves garlic, minced
1 medium to large onion, chopped
3-4 Tbs. olive oil
3-4 Tbs. flour
2 cups soy milk (plain)
1 cup vegetable broth
salt & pepper to taste
1 10-oz package frozen chopped spinach, thawed & drained
4 cups (cooked) brown rice - approx.
Directions: In a large pot, saute garlic & onion in olive oil
until softened. Sprinkle w/ flour & stir until mixture is
pasty. Add soy milk & broth. Cook, stirring, at a low boil
until sauce thickens. Season w/ salt & pepper. Remove from
heat & stir in spinach & rice. Add just enough rice so
that mixture is still creamy, not dry. Bake in a greased, 3 qt.
9x13 pan at 350 deg. for about 30 minutes, until bubbly. Reheats
well. Pasta could be used instead of rice. This recipe is very
flexible, so use your imagination. We like it with lots of
garlic! Serves: 6-8
Rainbow Enchilada Casserole
Ingredients:
1 medium red onion, chopped 1" square
1 medium yellow pepper, "
1 medium red pepper, "
1 can black beans, drained
1 can chickpeas OR kidney beans, drained
juice of 1 lime
2 cloves garlic, chopped
2 jars salsa (we like hot!), 22 oz. each
1 pkg. fat free flour tortillas
salt to taste
pepper to taste
Directions: Combine the vegetables, garlic, lime juice, salt and
pepper in a large bowl. Allow to marinate about 2 hours if
possible. Cover the bottom of a 9 X 13 casserole dish with one
jar of salsa. You may want to heat the tortillas for 15 sec. each
in the microwave, if they are frozen. Fill each tortilla with a
few tablespoons of the veggie mixture and roll tightly. Place
each tortilla, seam side down into the casserole, atop the salsa.
Take any remaining vegetables and combine with the second jar of
salsa and pour atop the tortillas in the casserole. Bake
uncovered in a 350 degree oven for 30-40 min. Remove and allow to
cool for 10 min. This tastes WONDERFUL and it's virtually fat
free! Additionally, we've found it tastes even better the next
day! For an even more substantial variation, add 2 crumbled,
heated Boca burgers (vegan) to the veggie filling. You can also
add hot sauce, lemon juice (if you don't have a lime handy) or
any other vegetable to the filling, although we've found this
seems to taste (and keep) the best! Serves: 4-5
If you have questions, comments or suggestions, or have recipes
you would like to share, please send them to Char@arthritisinsight.com.
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U.S. Food and Drug Administration
FDA Consumer Magazine
March-April 2003
http://www.fda.gov/fdac/features/2003/203_dtc.html
The Impact of Direct-to-Consumer Advertising
By Carol Lewis
When it comes to advertising prescription drugs on radio and
television and in magazines, doctors say that, for the most part,
the ads help people more than hurt them. Preliminary results of a
Food and Drug Administration survey, released in January, also
indicate that most physicians view direct-to-consumer (DTC) ads
as one of many factors that affect their medical practices and
their interactions with patients.
For decades, prescription drug makers promoted their products
exclusively to health-care professionals, who were expected to
interpret drug information for their patients. But about 15 years
ago, partly because of the increase in the number of patients
making their own health-care decisions, some manufacturers began
to produce ads targeted to consumers. Since then, DTC advertising
has become a popular promotional tool.
The FDA oversees the advertising of prescription drug products
under the Federal Food, Drug, and Cosmetic Act and related
regulations. That means the agency must ensure that prescription
drug information provided by drug firms is truthful, balanced,
and accurately communicated. This is accomplished through a
comprehensive surveillance, enforcement, and education program,
and by fostering better communication of labeling and promotional
information to both health professionals and consumers.
The 500-physician survey, released in January 2003, is the third
in a series of evaluations that the FDA is using to understand
better why doctors prescribe the way they do.
Comparison of this and two previous surveys indicates that
awareness of DTC ads is increasing. For example, 81 percent of
respondents in 2002 reported seeing or hearing an ad for a
prescription drug. This figure is up from 72 percent in 1999. But
58 percent agreed strongly that DTC ads make the drugs seem
better than they really are.
The results of all three surveys, which will be summarized in a
final report expected to be issued early this year, will help the
agency decide whether advertising rules need to be changed to
ensure better public understanding of a drug's risks and
benefits.
"Much of our compliance and enforcement activity is spent
trying to ensure that companies don't low-ball risks in the ad
and provide inflated expectations of benefit," says Janet
Woodcock, M.D., director of the FDA's Center for Drug Evaluation
and Research.
Other highlights of the survey include:
- Most physicians agreed that because their patients saw a DTC
ad, he or she asked more thoughtful questions during the visit.
Some thought the ad made their patients more aware of possible
treatments.
- Many physicians thought that DTC ads made their patients more
involved in their health care.
- Physicians thought that they had to provide additional
information to patients beyond what had been retained from the
DTC ad. About 75 percent of physicians surveyed believed that DTC
ads cause patients to think that the drug works better than it
does, and many physicians felt some pressure to prescribe
something when patients mentioned DTC ads.
- Eight percent of physicians said they felt very pressured to
prescribe the specific brand-name drug when asked.
- The ads can prompt thoughtful discussions between patients and
physicians that result in needed treatments being
prescribed--often not the treatment mentioned in the ad.
- DTC ads help educate patients about their health problems, and
provide greater awareness of treatments. The study demonstrated
that when a patient asked about a drug, 88 percent of the time
they had the condition that the drug treated. And 80 percent of
physicians believed patients understood what condition the drug
treats.
- Doctors believe that patients understand that they need to
consult a health-care professional about appropriate treatment.
Eighty-two percent responded either "very well" or
"somewhat" when asked if they believe that their
patients understand that only a doctor can decide if a drug is
right for them.
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Member Stories
Kari's Story
Gee, what category will you put me in? I don't know what I have.
I've been poked and prodded and disgusted by the medical
community.
First the good stuff. I just got married in February to the most
wonderful man in the world, who has had RA for 15 years and has
damage in his elbow, wrists and ankle. I'm 44 and I have 3 kids
from a previous marriage who are 21, 18 and 16 and they're great
kids ... I'm proud of them. I also work full-time as a systems
analyst.
About a year and a half ago I started having problems with my
right elbow & shoulder. I was diagnosed with tendonitis of
the shoulder, bursitis and tendonitis of the elbow. My elbow was
red and swollen out about 2 inches. I looked like popeye (LOL).
Then other places started becoming sore (knees and hands) and I
was feeling very tired and sick. I went to a clinic and was given
Prednisone and it was miraculous. Everything disappeared and I
felt great. That was last November. I really thought it was gone.
It started coming back again in around May this year. Slowly, it
has gotten worse and now I'm worse than before. It's also changed
somewhat. I have stiffness in the morning that makes it
impossible to get ready for work. Sometimes the stiffness lasts
all day. I have a lot of pain in the evening too and sometimes my
joints get stiff after resting. I rarely have any swelling, but
when I do, it's huge. However, my hands are 'bigger' and my rings
have gotten too tight. My feet too. My shoulder is just awful and
it grinds so bad that you can hear it when I move. My knee too.
The worst problem is the fatigue. All I do now is work and go
home and rest. I've also lost my appetite and have lost some
weight. Another thing that's new is that my hands feel like they
are contracting ... I feel a 'pulling' sensation so that my hands
want to close and I don't know what that is about.
I've also developed Raynaud's. It makes my hands, knees and feet
very sensitive to temperature change and can go from ice-cold to
very warm in seconds. I believe this has impacted the diagnosis
process.
I've never had x-rays. They don't test my blood anymore. I have
positive ANA but it's low. Synovitis has shown on a scan but the
doctors pooh-pooh that. I've been told I have fibromyalgia but I
don't believe that. I've never slept better in my life and
sometimes even sleep 10 hours. I sleep so deeply now that I
sometimes sleep right through the alarm and it wakes my son down
the hall. He has to come and awaken me. So, I don't see how they
can say I have fibromyalgia. Plus you need to test positive for
14 out of 18 tender spots, and I only test positive in 6. So, go
figure that one out.
I don't know what to do anymore. I hurt all the time, but it
fluctuates a lot. Some days I'm really fine and other days I'm
almost incapacitated. Sometimes it's my hands that are bad, or my
wrists, or my elbows. It never stays in one spot, except for my
shoulder.
Having said all of that (whine, whine), I actually have a
wonderful life. I miss being active but I don't have the energy
to try anything. I take 400mg of celebrex a day and that helps a
lot. I guess I'll just forget about a diagnosis for now. Either
it will get better or worse. Time will have to tell, I guess.
Thank goodness for my husband (who believes I have RA).
To see more of Kari's story and the rest of stories go on over
to:
/community/stories
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Notes and Insights:
Birthday Board!
Happy Birthday Amanda aka Giggles, Phyllis Acres, moon aka
moonhair, Amanda (Mandi) Stone, DRU and Cris!!!
Check out all the birthdays at
/community/birthday
and make sure to send them an arthritis-friendly e-card:
/cgi-bin/postcards/postcard.pl
Fundraiser 2003
We don't like to beg, but we're having a hard time staying
online. The cost of keeping Arthritis Insight running is large
(to us anyway), and while there are still no salaries being paid,
there are monthly bills that need to be covered if we want to
stay online.
Our solution? We're having a Fundraiser.
It's been two years since we've had one - and we know we're not
the only ones out there asking you to part with your money, but
if you can help, please check out the Fundraiser information at:
/help/fundraiser2003
Gimpfest 2003 -- Iowa, Here We Come!
Come be part of the fun when dozens of gimps head to Stuart, Iowa
on July 24-27.
Get all the details here:
http://www.fadedjeans.com/iowa/
AJAO Regional Conference
"Taming Juvenile Arthritis"
June 2003 - Phoenix, Arizona
The Arthritis Foundation is proud to host the 2003 American
Juvenile Arthritis Organization (AJAO) Regional Conference,
"Taming Juvenile Arthritis." The American Juvenile
Arthritis Organization leads the effort to improve the quality of
life for those affected by childhood arthritis and related
diseases. This 3-day conference is geared towards children,
teens, young adults and family members who are affected by
juvenile rheumatoid arthritis and other childhood rheumatic
diseases
http://jraworld.arthritisinsight.com/community/involved.html
JRA JAMFEST: General Information:
Dates: Saturday May 17, 2003 - Sunday May 18, 2003
Target Audience: Kid Friendly,General Audience
Time: 11:00 a.m.- 5:00 p.m.
Phone: 502-589-6620, ext 106
Location:
Derby Flea Market & Traders Circle:
2900 South 7th Street Road,
Louisville, KY 40216
Ticket Information: free admission, fee for games, raffles, etc..
Event Details/Other Comments:
JRA JamFEST is a two day event to benefit FACES. FACES is Facing
Arthritis with Compassion, Encouragement and Support, a group for
children, teens and young adults living with juvenile rheumatoid
arthritis (JRA). All proceeds will go directly to FACES and will
help us sponsor children and their families to JRA conferences,
JRA camps, and other juvenile arthritis related events! Join us
for a day of live music on May 17th featuring Doubleback and
headlining, Wayne Young and the Youngsters!!! May 18th enter our
Karaoke Contest! Come out for the fun, entertainment, games,
prizes, food, drink, information and lots more!!!!
Join the Arthritis Dieters!
This is a group of people with arthritis who want to lose weight
with others who know of the challenges of living with is
arthritis. All those medications that make living with arthritis
tolerable, but pile on the pounds. This group has been set up to
give us a protected group where we can talk to others who know
what it is like.
http://groups.yahoo.com/group/arthritis-dieters/
Wanna help?
Having surgery? Starting a new drug or treatment? Filing for
disability? Keep an Arthritis Insight journal so all of our
members can share and learn from your experience. If you want to
keep a journal just let us know.
Write an article!
We always need articles on all subjects relating to arthritis.
C'mon folks, we can't do this without you.
Ken Akers Cheer Fund
Donations to the Ken Akers Cheer Fund will be used to send
flowers and gifts to those community members who are
hospitalized, flaring or just in need of some good cheer.
/community/kenscheerfund
Thank You!
A great big thank you to NeedaBasket.com
(http://needabasket.com). NeedaBasket is now Arthritis Insight's
official gift basket company. They are giving us a great discount
and are donating baskets for our Arthritis Warriors.
Special Offers for Arthritis Insight Members
Whenever possible we will try get to our sponsors to agree to
discounts and the like for our members. Here are our current
special offers:
Sore No More (http://sorenomore.com)
gel will send a free sample of the pain relieving gel to any
Arthritis Insight Community Member who emails them at dma@glogerm.com.
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AI Help Desk
Linda Peck
Linda's taking the week off - see ya next week!
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Weekly News Summary
Karen Sears
kaekae@arthritisinsight.com
More health news can be found on our site:
/news/
PLEIOTROPHIN
UPREGULATED IN RHEUMATOID ARTHRITIS SYNOVIAL MEMBRANE
Pleiotrophin (PTN), an embryonic growth and differentiation
factor, is also expressed in synovial tissues of adults patients
with rheumatoid arthritis (RA) and affects the proliferation of
synoviocytes.
Medscape, Mar 27 (free registration required)
SMOKING
BOOSTS MEN'S RISK FOR RHEUMATOID ARTHRITIS
Smoking may double the risk of rheumatoid arthritis in men, but
it does not seem to affect women's risk of the disease, a new
study from Finland suggests.
Yahoo News, Mar 26
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Contribute
Have you written something you think our subscribers would like
to read? Send it to Tina@arthritisinsight.com and maybe we'll use
it in our newsletter.
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A Closing Thought
PC PRAYER
Author Unknown
Dear Lord:
Every single evening
As I'm lying here in bed
This tiny little prayer
Keeps running through my head.
God bless my Mom and Dad,
And all my family.
Keep them warm and safe from harm
For they're so close to me.
And God, there is one more thing
I wish that you could do.
Hope you don't mind me asking,
Bless my computer too.
Now I know that it's not normal
To bless a mother board,
But listen just a second
While I explain to you 'My Lord.'
You see, that little metal box
Holds more than odds & ends
Inside those small compartments
Rest so many of my FRIENDS.
I know so much about them
By the kindness that they give
And this little scrap of metal
Takes me in to where they live.
By faith is how I know them
Much the same as you
We share in what life brings us
And from that our friendship grew.
Please, take an extra minute
From your duties up above
To bless those in my address book
That's filled with so much love!
Wherever else this prayer may reach
To each and every friend,
bless each email Inbox
And the person who hits Send.
When you update your heavenly list
On your own CD-Rom
Remember each who've said this prayer
Sent up to God.com.
Amen.
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let us know.
Arthritis Insight Newsletter Copyright 2003
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