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Home Community Newsletter Vol 5 Issue 169

Arthritis Insight Newsletter * Vol. 5 Issue 169 October 22, 2003

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Welcome to the 169th issue of the Arthritis Insight Newsletter. All back issues will be posted at
community/newsletter
Feel free to pass this newsletter around to others who may be interested.

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The information in this newsletter should not take the place of advice and guidance from your own health-care providers. Material in this newsletter is provided for educational and informational purposes only. Be sure to check with your doctor before making any changes in your treatment plan. Information presented here is the opinion of the authors and has not necessarily been approved or endorsed by the medical advisors.

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Notes From Tina
(
Tina@arthritisinsight.com)
Tina Underwood aka KrissyJo

Tina's not feeling well this week but she wanted to make sure we mention that the American College of Rheumatolgy's Annual Scientific Meeting starts tomorrow in Orlando. Don't forget to watch the update page (
updates.html) for all the latest news from sunny Florida.

-Kimmy

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Ron's Ramblin's
(
Ron@arthritisinsight.com)
Ron Griffin aka IndyRon

Another beautiful "Indian Summer" day here. I have the house opened up and a wonderful fairly warm breeze is blowing. The leaves are just beyond their color peak but are still pretty and have started falling. This is one of my favorite times of the year. I had the kids down this past weekend for my birthday and they were more than happy to be outside and doing things like walking in the woods looking at all the wonderful things. We even managed to find an old pear tree and an apple tree which were loaded with fruit.

It just doesnt get much better.

~Ron

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Your Weekly Giggle
Colonoscopy humor:

A physician claims these are actual comments from his patients made while he was performing colonoscopies:

  1. "Take it easy, Doc, you're boldly going where no man has gone before."
  2. "Find Amelia Earhart yet?"
  3. "Can you hear me NOW?"
  4. "Oh boy, that was sphincterrific!"
  5. "Are we there yet? Are we there yet? Are we there yet?"
  6. "You know, in Arkansas, we're now legally married."
  7. "Any sign of the trapped miners, Chief?"
  8. "You put your left hand in, you take your left hand out. You do the Hokey Pokey...."
  9. "Hey! Now I know how a Muppet feels!"
  10. "If your hand doesn't fit, you must acquit!"
  11. "Hey, Doc, let me know if you find my dignity."
  12. "You used to be an executive at Enron, didn't you?"
  13. "Could you write me a note for my wife, saying that my head is not, in fact, up there?"

Check out all the jokes at:
fun/jokes
Send yours in today!

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Tina's Tips
Tina@arthritisinsight.com

Arthritis can affect your ability to do even the simplest of tasks. I've heard some people say, "Accept your limitations." I'm not sure accepting them is the way to go. I prefer to challenge those limitations, work around them, finding alternate ways of achieving the same goal. Every week I'll share some tips I've found to work around those annoying limitations and I hope all of you will send in your tips too. We may not be the next Martha Stewart, but sometimes the simplest things can help so much.

A great one from Lorri:

I make rice bags...like the high priced herbal packs for the freezer or microwave. The rice lasts forever,does not melt and is flexible. It can be used from the freezer or after 2 minutes in the microwave.

I cut two rectangles out of cotton cloth,any size. I sew it wrong sides together leaving about 1 1/2 inches open to turn. Turn it right side out and fill with white rice leaving about 1 inch not filled. I hand stitch or machine stitch it closed. Store in freezer for cold packs. Lasts from 20 minutes to 1/2 hour cold. If heat is needed, microwave for 2 minutes. If from freezer,microwave for 2 1/2 minutes.

I have used these for 2 years and get relief from pain right away, from arthritis pain to migraines.

Thanks Lorri!!

Find more on rice bags/socks at:
living/ricesock.html

And don't forget they heat up fast! Be careful - and make sure you replace dried out rice so they don't catch fire when heated in the microwave. :)

Check out more tips at
living/tips.html and send in yours today to Tina@arthritisinsight.com Keep those tips coming!

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Whats New

Question of the Week
Free gifts, love 'em or hate 'em?
community/question

Arthritis Warrior
Some new nominees! Check em out!
warrior/

Fight the Fatigue
Bev shares some fatigue fighting wisdom.
living/fatigue/

Arthritis Warrior
Our Arthritis Warrior..err... Princess for September. See who it is!
warrior/

Member Stories
KJ updates her Kineret Journal. Does your journal or story need updating?}
community/stories

Birthday Board
Buncha birthdays added. Who has a birthday today?
community/birthday

Thank you!
A big thank you to Donna M, Kate, Elizabeth N, Judy S., Marilyn B, Stephanie R, Terry B, Mark M, Elizabeth G, Jan C, Susan G, Corey N, Sarah B, Delores P and Vicki V. for their recent donations. We can't do it without you!

Newsletter
The latest issue is up and waiting for you!
community/newsletter/

News
Karen has all the arthritis and health related news from around the web.
news/

Check out all the latest updates at
updates.html

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Arthritis Insight Chat
community/chat

Time to get the party started! Got some extra time? Can't sleep? Drop into the chatroom to talk to other members that know exactly what you're going through.

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Cooking with Char
Char LeFleur
char@arthritisinsight.com

Hello again friends! Indian Summer continues here in Iowa. We had temps in the upper 80s on Monday. Funny thing is, we could still have a white Halloween. It wouldn't be the first time. LOL

With Halloween coming up, how about a traditional treat---popcorn balls. Bet you didn't know there were so many ways to make them, did you?This collection even includes CHOCOLATE Popcorn Balls. A fun way to make a memory with your kids. Enjoy!!

RAINBOW POPCORN BALLS

1c Light corn syrup
1c Sugar
1pk Strawberry gelatin powder; -or lime gelatin (or any flavor you desire)
1 1/2c Salted peanuts-coarsely chopped; optional
Red or green food coloring
1/2c Unpopped popcorn-pop popcorn in 3 tbl oil

Turn the popped corn into bowl and add peanuts if desired In a one quart
saucepan combine corn syrup, and sugar. Cook, stirring with a wooden spoon,
until sugar dissolves. Without stirring bring mixture to a full rolling
boil. Remove from heat and add gelatin. Stir until dissolved and add food
coloring. Pour over popcorn and mix. Butter hands and form into balls.

CONFETTI POPCORN BALLS

5c popcorn, air-popped
1/2c candy coated pieces
1/3c unsalted peanuts
2TB margarine -- melted
3c miniature marshmallows -- melted

In a prepared mixing bowl, combine popcorn, candy coated pieces, and
peanuts. Place margarine and marshmallows in a 4-cup microwave-safe
measuring cup. Microwave on high for 2 minutes or until melted and smooth,
stirring once halfway through cooking. Pour over popcorn mixture; stir
quickly to coat. With buttered hands, quickly shape mixture into balls.
Place on waxed paper. Let stand at room temperature 1 hour.

CHOCOLATE POPCORN BALLS

1/4c White corn syrup
1/3c Water
3/4c Sugar
2TB Molasses
1TB Butter
1oz Unsweetened chocolate
1t Vanilla
1/2c Popcorn: popped
1c Roasted peanuts

In a heavy saucepan, put the corn syrup, water, sugar, molasses and butter. Cook over moderate heat to 280~ on a candy thermometer. Remove from heat and add the chocolate and vanilla. Stir to combine. Pour over the popped corn and peanuts. Form into balls.

OLD FASHIONED POPCORN BALLS

2 qt Popped corn
1c Karo light or dark corn-syrup
1c Firmly packed dark brown-sugar
1/4c Water
1t White vinegar
2tb Margarine

Servings: 10

Place the popped corn in a large greased bowl or
pan.In a heavy 2 qt saucepan, stir together corn
syrup, sugar, water and vinegar. Stirring constantly,
cook over medium heat until mixture boils. Continue
cooking, stirring occasionally, until temperature
reaches 260 degrees on a candy thermometer or until a
small amount of mixture dropped in very cold water
forms a ball hard enough to hold its shape, yet
plastic. Remove from heat; stir in margarine. Slowly
pour over popcorn, stirring to coat well.

When cool enough to handle, yet still quite warm,
quickly shape into balls with well-buttered or
oiledhands. Wrap individually in plastic wrap.
Makes about 10 3 inch balls.

** Option ** Substitute 2 Tblsp of praline liqueur for
2 tblsp of the water.

EASY POPCORN BALLS

Mazola No Stick corn-oil cooking spray
3qt Freshly popped popcorn
1c Karo light corn syrup
1c Sugar
1/2t Salt
1t Vanilla

Spray large roasting pan with cooking spray. Add popped corn; keep
warm in 250 degree F. oven. In heavy 2-quart saucepan, combine corn
syrup, sugar and salt. Cook over medium heat, stirring constantly,
until mixture comes to a boil. Cook without stirring 10 minutes or
until temperature reaches 290 degrees F. on candy thermometer. Remove
from heat; stir in vanilla. Slowly pour over popcorn, stirring to
coat evenly.

Cool popcorn, stirring, just until mixture can be handled. Immediately
spray hands with cooking spray. Quickly shape popcorn into 3-inch
balls.

If you have questions, comments or suggestions, or have recipes that you would like to share, please send them to
Char@arthritisinsight.com.

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From the FDA & CDC:
FDA and CDC Statement Concerning Rumors About Recalled Lot of Influenza Vaccine
http://www.fda.gov/cber/flu/flurclstmt.htm

Rumors have been circulating that state that a "contaminated" lot of flu vaccine has been recalled by the FDA. This is false. No contamination of any flu vaccine has been identified anywhere in the U.S. and the FDA has not recalled any lot of flu vaccine. As with any vaccine, flu vaccine is capable of causing some side effects, these are very rarely severe. Most side effects from flu vaccine are mild such as arm soreness, redness or swelling where the shot was given, fever, or achiness. More serious reactions to the flu vaccine do occur, but they are rare. While FDA and CDC are currently investigating several recent reports of possible significant allergic reactions to flu vaccine, it is important to note that the number and type of reactions reported to date are not unexpected. The reactions reported, not all of which may have been caused by the administration of vaccine, do not, at this time, suggest any problem with the flu vaccine. However, FDA and CDC will continue to investigate these and any other reports and will provide any further information as available. While serious reactions to flu vaccine are rare, each year about 114,000 people in the U.S. are hospitalized and about 36,000 people die because of the flu. The flu vaccine is the best way a person can protect themselves and their loved ones against influenza. October and November are the best months to get vaccinated - however, vaccination in December or later still provides considerable protection.

Questions & Answers on Inactivated Influenza Vaccines for use in 2003-2004
Inactivated Influenza Vaccines for use in 2003-2004
http://www.fda.gov/cber/flu/flurclqa.htm

Is any influenza vaccine being recalled?

No. There is, to date, no recall of any influenza vaccine that has been produced for use in the 2003-2004 influenza season.

Why are there rumors that influenza vaccine is being recalled?

Two individuals at a single medical center had clinical symptoms suggesting allergic reaction after influenza vaccine administration; the first individual developed severe symptoms suggesting allergy immediately after administration of the influenza vaccine, and the second person developed symptoms within a day of receiving the influenza vaccine, but it is unclear whether a severe allergic reaction occurred. Both of these individuals had received vaccine from the same lot of vaccine. The medical center prudently questioned whether a pattern of adverse reactions was developing for this lot of vaccine. Further review of all information indicates that one of the individuals had underlying lung disease and was subsequently diagnosed with pneumonia.; Similar adverse reactions have not been reported in other locations where the same lot of vaccine has been in use. Review of manufacturing data indicates that the lot of vaccine meets all manufacturing requirements and release specifications and suggests no irregularities. Investigation of these cases is continuing.

What could cause FDA or a manufacturer to initiate a recall of a product?

A recall could be initiated if, among other reasons, vaccine presented a substantial hazard to the public health, such as an unexpected and otherwise unexplained number or severity of adverse reactions.

Are inactivated influenza vaccines produced for 2003-2004 season safe?

Yes. When inactivated influenza vaccines are used according to instructions given in the package insert, they are safe. Before they are released for use, influenza vaccines undergo extensive evaluation, including tests to ensure that the influenza viruses have been properly inactivated, that the active and inactive ingredients are present in the correct quantities, and that the vaccines are sterile. Influenza vaccines are highly effective and prevent thousands of deaths each year.

What kinds of adverse events are most common after administration of inactivated influenza vaccine?

Most adverse reactions to inactivated influenza vaccine are related to the bodys response to the vaccine components at the site of injection. Most commonly, there is inflammation at the injection site, which may result in redness, swelling or pain. Less frequently, more general reactions occur including fever, malaise (a vague feeling of being ill), and muscle aches.

Are serious immediate allergic reactions to inactivated influenza vaccines common?

No, but a few such reactions are reported with inactivated influenza vaccine use every year. Serious immediate reactions can occur within a few minutes to a few hours in people who likely have allergies to components of the vaccines, which may contain very small amounts of residual egg protein. Immediate allergic reactions can appear in a mild form as itching and hives; however, in the severest form, allergic reactions can result in difficulty breathing, loss of blood pressure, and, while prompt medical treatment is usually effective, even death.

What can be done to prevent or treat severe immediate allergic reactions?

First, the vaccine is contraindicated for people with a history of hypersensitivity to eggs or egg products or other components of influenza vaccines. Additionally, as with all vaccines, it is prudent that recipients remain under observation for the first 15-30 minutes after the vaccine is injected to detect and treat any rare, serious allergic reactions and that medications, such as epinephrine and benadryl, used to treat such reactions, be available for immediate use.

How do I report adverse reactions?

Reports on adverse reaction to influenza vaccine or any other vaccine should be sent to the Vaccine Adverse Reporting System (VAERS) which is jointly operated and reviewed by FDA and CDC. VAERS can be reached at 1-800-822-7967 or on the internet at
http://www.vaers.org/

What are the benefits of influenza vaccine?

Influenza (flu) is a highly infectious disease of the lungs, and it can lead to pneumonia. Each year about 114,000 people in the U.S. are hospitalized and about 36,000 people die because of influenza. Most who die are 65 years and older. But children younger than 2 years old are as likely as those over 65 to have to go to the hospital because of influenza. The influenza vaccine is highly effective in preventing disease and thus saving lives.

Centers for Disease Control and Prevention (CDC) - National Immunization Program at:
www.cdc.gov/nip

CDC Influenza website at:
www.cdc.gov/ncidod/diseases/flu/fluvirus.htm

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Member Stories
Shannon's Story

My name is Shannon, I am 32 years old, married with two boys (ages 7 & 4 1/2). I was diagnosed one month ago with Rheumatoid Arthritis. Then, after follow-up blood work, I was also diagnosed with Lupus. My "journey" began following a car accident in January 2002. We were rear ended on a freeway off-ramp. At the time the car hit us, I was turned around in the passengers seat getting something for my son. In the weeks that followed, I thought I had just hurt my shoulder and neck. I was sent to an orthopedic and for physical therapy, but the doctor couldn't find anything (and told me I shouldn't be taking pain pills for nothing) and physical therapy made things worse. Things went on like this for months. I started to notice how tired I was when my kids started complaining that I was always sleeping. Then in April of this year, I started having pain in places that I hadn't noticed before. It started with my hips and pretty soon I couldn't walk without a cane or crutch. It would last for a week or so, and then go away for a while. My masseuse started talking about arthritis related diseases and MS, which scared me, so I didn't look into them. Then, one morning I woke up and my hands were swollen and my wrists hurt so bad I couldn't move them. I wore wrist splints for awhile, hoping it would just go away. I finally gave up and went back to my PCP who ordered some blood work, but said not to really expect any answers. I got a call a few days later, "Surprise", he said. My RA test was negative, but the ANA was positive. I was referred from there to a Rheumatologist, but the wait was 3 months to get in. My PCP didn't want to give me any medication until we knew what we were dealing with. He did give me medication to help me sleep, which seemed to at least help with that. Fast forward 3 months and I was FINALLY diagnosed. I am on Vioxx and Plaquenil now, neither of which seem to be doing anything, but I am told to give it a little more time. I am allergic to the sun, when I go out in it, I suffer with terrible itching spells. I feel like my skin is crawling. I now have to add allergy medicine to my arsenal. I am worried about what the future holds for me. I have an extremely supportive husband and my kids have been great, but I worry that I am not able to be "super-mom" anymore. My family tries to be helpful, but they can only do so much. I get tired of people telling me to sit down and relax, and then take over for me. I am not an invalid yet!! And then there are those who look at me and see a perfectly healthy woman, who should not be using those handicap motorized carts in the grocery store. There is no happy medium anymore and I am finding that hardest to deal with. This site has been so helpful to me, especially the people who visit the chat room. It is nice to have a place to go that everyone understands each other and can sympathize and offer real advice.

To see the rest of stories go on over to:
community/stories

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Notes and Insights:

Birthday Board!
Happy Birthday to Linda G., Susan aka smallfry, Kendall, Laura D. Smith, Grannyjan, Brian Dowd, Mary Hofstetter and Teresa!!!
Check out all the birthdays at
community/birthday
and make sure to send them an arthritis-friendly e-card:
cgi-bin/postcards/postcard.pl

Join the Arthritis Dieters!
This is a group of people with arthritis who want to lose weight with others who know of the challenges of living with is arthritis. All those medications that make living with arthritis tolerable, but pile on the pounds. This group has been set up to give us a protected group where we can talk to others who know what it is like.
http://groups.yahoo.com/group/arthritis-dieters/

Wanna help?
Having surgery? Starting a new drug or treatment? Filing for disability? Keep an Arthritis Insight journal so all of our members can share and learn from your experience. If you want to keep a journal just let us know.

Write an article!
We always need articles on all subjects relating to arthritis. C'mon folks, we can't do this without you.

Ken Akers Cheer Fund
Donations to the Ken Akers Cheer Fund will be used to send flowers and gifts to those community members who are hospitalized, flaring or just in need of some good cheer.
community/kenscheerfund

Thank You!
A great big thank you to NeedaBasket.com (
http://needabasket.com). NeedaBasket is now Arthritis Insight's official gift basket company. They are giving us a great discount and are donating baskets for our Arthritis Warriors.

Special Offers for Arthritis Insight Members
Whenever possible we will try get to our sponsors to agree to discounts and the like for our members. Here are our current special offers:

Sore No More (
http://sorenomore.com) gel will send a free sample of the pain relieving gel to any Arthritis Insight Community Member who emails them at dma@glogerm.com.

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Weekly News Summary
Karen Sears
kaekae@arthritisinsight.com

TETRACYCLINES SAFELY REDUCE DISEASE ACTIVITY PARTICULARLY IN PATIENTS WITH EARLY RHEUMATOID ARTHRITIS
Improvement of disease activity is observed with tetracycline treatment in patients with rheumatoid arthritis, particularly in combination with minocycline, and in the treatment of patients with early disease, according to a recent Canadian study.
Doctor's Guide, Oct 21 (free registration required)

PROMISING EARLY RESULTS WITH KYPHOPLASTY TREATMENT OF OSTEOPOROTIC VERTEBRAL COMPRESSION FRACTURE
Significant improvements in local sagittal alignment, pain, and daily activity levels are observed after kyphoplasty in patients with osteoporotic vertebral compression fractures (VCF), according to a recent American study.
Doctor's Guide, Oct 21 (free registration required)

RISK OF LOW BONE MINERAL DENSITY HIGHER IN INFLAMMATORY BOWEL DISEASE
The risk of low bone mineral density (BMD) in patients with inflammatory bowel disease (IBD) increases with age, lower body mass index and severity of disease, according to a new study reported here at the 68 th Annual Scientific Meeting of the American College of Gastroenterology.
Doctor's Guide, Oct 21 (free registration required)

STUDY: MONKEYS HELP SHOW IF VIRUS CAUSES MS
Little monkeys called marmosets may help scientists discover whether viruses cause multiple sclerosis, researchers reported on Monday.
Yahoo News, Oct 20

AMGEN'S ARTHRITIS DRUG APPROVED FOR WEEKLY DOSE
The U.S. Food and Drug Administration has approved once-weekly dosing of Amgen Inc.'s rheumatoid arthritis drug Enbrel, the company said on Monday.
Yahoo News, Oct 20

FEELING DOWN MAY PROMOTE INFLAMMATION
Even a mild case of the blues can affect the immune system in older people, new research suggests.
Yahoo News, Oct 17

CAD NOT MOST COMMON COMORBIDITY IN LUPUS PATIENTS
Although coronary artery disease (CAD) is an "important" comorbid condition in patients with systemic lupus erythematosus (SLE), study findings suggest that SLE itself, infections, and renal failure pose more of a problem than CAD.
Medscape, Oct 17 (free registration required)

LOW RISK OF GASTROINTESTINAL TOXICITY WITH OVER-THE-COUNTER DOSES OF ASPIRIN, ACETAMINOPHEN, AND IBUPROFEN
The rate of serious gastrointestinal (GI) events is low in rheumatoid arthritis (RA) and osteoarthritis (OA) patients who take low-dose aspirin, acetaminophen, or ibuprofen alone; though the rates increase with concomitant NSAID and corticosteroid use, say researchers.
Doctor's Guide, Oct 17 (free registration required)

HIGH PREVALENCE OF ANTERIOR CRUCIATE LIGAMENT DEGENERATION IN PATIENTS WITH OSTEOARTHRITIS AFTER TOTAL KNEE ARTHROPLASTY
Degeneration within the anterior cruciate ligament (ACL) is common in patients with severe osteoarthritis who have undergone total knee arthroplasty, particularly in younger patients, according to a recent American study.
Doctor's Guide, Oct 17 (free registration required)

SCHERING FILES FOR U.S. HORMONE PATCH APPROVAL
German drugmaker Schering AG said on Thursday it had filed for U.S. Food and Drug Administration (FDA) approval for its low-dose estrogen patch Menostar, used to prevent osteoporosis.
Medscape, Oct 16 (free registration required)

ROFECOXIB IS EFFECTIVE TREATMENT OPTION FOR OSTEOARTHRITIS PATIENTS THAT DO NOT RESPOND TO CELECOXIB
Patients with osteoarthritis who did not respond to celecoxib therapy report improved health status and pain relief during treatment with rofecoxib, according to a Spanish study.
Doctor's Guide, Oct 16 (free registration required)

AUTOANTIBODIES TYPICALLY PRECEDE DIAGNOSIS OF SYSTEMIC LUPUS ERYTHEMATOSUS
Autoantibodies are present many years before the clinical diagnosis of systemic lupus erythematosus (SLE), according to the results of a study of stored serum published in the Oct. 16 issue of the New England Journal of Medicine . The appearance of autoantibodies follows a predictable course.
Medscape, Oct 15 (free registration required)


More health news can be found on our site:
news/

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Contribute

Have you written something you think our subscribers would like to read? Send it to
Tina@arthritisinsight.com and maybe we'll use it in our newsletter.

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A Closing Thought
Blurred Vision
by: Author Unknown, Source Unknown

A businessman was highly critical of his competitors' storefront windows. "Why, they are the dirtiest windows in town," he claimed. Fellow business people grew tired of the man's continual criticism and nitpicking comments about the windows. One day over coffee, the businessman carried the subject just too far.

Before leaving, a fellow store owner suggested the man get his own windows washed. He followed the advice, and the next day at coffee, he exclaimed, "I can't believe it. As soon as I washed my windows, my competitor must have cleaned his too. You should see them shine."

Confucius once declared, "Don't complain about the snow on your neighbor's roof when your own doorstep is unclean."

---------------------------------
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advertising@arthritisinsight.com
If you wish to unsubscribe to this newsletter,
just let us know.
Arthritis Insight Newsletter Copyright 2003

Staff
Page last updated on October 23, 2003

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making any changes in your treatment plan.
Information presented on ArthritisInsight.com is the opinion of the authors and
has not necessarily been approved or endorsed by the medical advisors. The
information contained on this web site may not be published, broadcast or
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