Home Community Member Stories Theresa's Lupus Journal

Theresa's Lupus Journal

HaagFarm@aol.com  

July 29, 2001 

Today is hot and very humid here in Kansas and it is playing hell with my joints. My fatigue level is at an all-time high and seems I have to make myself even breathe.

I am on my last day of the Prednisone taper and dr. says I will have to start another one tomorrow since it has not relieved the pain in my chest wall nor the inflammation. I have had an easier time believing my inflammation levels since we started testing with the CRP test instead of the regular sed rates. It seems they were never correct. Nurse says the normal level on the CRP is from 0 to .4. My last test on Wed. was 1.7, so now I know I am in a flare and it's not all in my head.

I will be curious as to what my rheumy says at next month's appt. and whether he will keep me on the methotrexate since I will have been on it for 2 years. I think it has lost it's effectiveness, but don't know what my condition would be without it!

Thank God for air conditioning this month. Now, if He will just show me how I will pay my electric bill!

I hope to find some e-mail pals to chat with. I am 47 years young and have seven grown children. I spin, knit, weave, crochet and anything that keeps my hands busy. I live with my SO (significant other) and he has been an angel this last month and my last hospitalization last weekend. I guess he really does love me. lol.

I'll write again tomorrow if my hands don't melt in this heat.