Good or bad - there's always that little voice in the back of your mind. Sometimes it eggs you on and sometimes it's pretty scary. We wanted to see what our members had to say about their expectations regarding their treatment, so we asked:
What are your hopes for your current treatment? Biggest fear?
My hopes are that it stops the damage. I have had quick and destructive damage in the two years since this all hit. My fears are that the medications will fade out of my body and stop helping me. I feel like my whole skeletal body is literally falling apart. And it is somewhat. I have severe spine damage, and am bone on bone in both knees. Other erosions as well. - Susan/Humira
Hope is that the Australian government will fund it after all. Fear is (a) they won't fund it and I will be back to square one (b) that I have another uti and either don't pull through it, or do and have to come off kineret. - Gill/Kineret
I have been ill with the flu for over two weeks and have not been able to take any medication. I am hoping that I can soon resume my medications but I am hoping that I will convince the doctors that I cannot afford all of them therefore I need to know what ones I can do without. My fear is that the medications won't work to help alleviate my pain and stiffness. This miserable disease has interfered with all aspects of my life. I just want to maintain a good level of functioning which is not happening right now. - Pam/Humira
To get off as many other meds as possible without losing quality of life. Biggest fear: I try not to think of that, but I would have to say that It would be that I would get used to the drug & it wouldn't be effective any longer. - Gloria/Humira
My hopes for my current treatment was getting a bit more relief than what I have experienced to date. My biggest fear is not being able to continue Humira when my RX plan runs out in 2 months. - Babcia/Humira
That it continues to work and doesn't become ineffective. - Elaine/Humira
Next treatment is Remicade. I am scared of having a reaction to it. It is my last hope until a new drug comes out. I have tried all the others, and They either don't work or I am allergic to them, or I suffer bad side effects. - Angela/Humira & Kineret
I hope I continue to get the pain relief from Humira. My biggest fear is that I might become allergic to it or that it will cease to be effective. - Barb/Humira
From what I've read about the drug,I hope to be able to play with my grandchildren. - Thomas/Humira
That it will put me into a remission state is my greatest hope. My greatest fear is that it will either fail me, or I'll end up sicker as a result of it. - Norma/Humira
The cost. - Barb/Humira
I hope that it continues to work well for me. My biggest fear would be that I develop some terrible side effect not yet known to be caused by the drug. - Anne/Humira
My hope is that it will control the swelling so I am in less pain. I want it to slow down the joint damage. My fear is that I will have to keep stopping it due to my sinus problems. I also was worried because I developed a cough, but only in the morning and evening. Now it is much better, so it was from the sinus infection. - Faith/Humira
I hope that the Kineret (along with everything else - Vioxx, Pred, Mtx) will keep things under control so that I can continue to function semi-normally. My biggest fear is that it will lose effectiveness for me as Enbrel and Remicade have already done. With each I came very close to having to go on at least a partial disability from work. - Beth/Kineret
I am taking, and have been taking, methotrexate for about fifteen years. It is very helpful with the pain, but I have much more deformity in my hands than I probably would have had with some of the newer biologic agents. Unfortunately, I have tried them all and couldn't stick with any of them due to side effects. - Christie/Kineret
That I continue to improve and maybe cross country ski and go on the bike trails again. Not being able to afford this medication--we are not poor/but not rich either. I will be on Medicare in June. - Roberta/Humira
That it works. Thta as a result of the missed dose, the medicine will no longer work. - Patricia/Humira
Biggest fear? That it will stop working. Otherwise that Kineret will not prevent damage. - Chloe's1/Kineret