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Age of Affected

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pota View Drop Down
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  Quote pota Quote  Post ReplyReply Direct Link To This Post Topic: Age of Affected
    Posted: 12 October 2007 at 9:16pm
I am new to this site. I am a 47 year old male and started feeling the leg, buttocks and hip pain about 4 months ago. At one point the hip pain was unbearable. Now the lower body pain has subided somewhat but the muscle tightness is still there. About 4 weeks ago my shoulders started hurting and now I can't lift my arms in bed in the morning, put on a shirt or towel dry my back without extreme pain. My GP referred me to a rhuematologist who is awaiting my blood test results as I write. When I askd her if I could have PMR, without any pause she told me I was too young. Medical websites state the average age for PMR is 70 with it occuring to people as young as 50. I am only three years from 50, yet she was quick too put the idea of PMR down. My question is, how many of you reading this are under 50 and have been diagnosed with PMR?
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RDSwede View Drop Down
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  Quote RDSwede Quote  Post ReplyReply Direct Link To This Post Posted: 13 October 2007 at 6:03am

Hi Pota!

I am male and 70. During the past two years we have had the discussion of age a few times. Only a year ago, most medical sites mentioned 60 as the lowest age, but (maybe through this board) now most mentioin 50 +, so there has been a change

netdoctor.co.uk says   It affects around 4 per 1000 people over the age of 50 but is rare under this age. The peak age PMR occurs tends to be between 40 and 59. Symptoms can start abruptly, or can come on over a week or two.

clevelandclinic.org says   People over 50 years old are typically affected with PMR and GCA. The average age of patients is 74. One-third of patients with GCA also have PMR.

medicinenet.com says   Patients with polymyalgia rheumatica are typically over the age of 50 years.   

There have also been people much younger on the board or similar boards. If you have pmr, prednisone will give you fast relief and usually with the relief, you know that you have pmr. You have to be patient when reducing the dosage and when you have your diagnosis you should study what has been said here about taperinbg too fast.

Ragnar

 

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  Quote pgr555 Quote  Post ReplyReply Direct Link To This Post Posted: 13 October 2007 at 9:39am
Pota, as Ragnar said, there are several earlier threads on this site about age.
About a month ago we did an informal poll of the site after both Chico & I
had been told by our docs we were too young (both 51 I think). About 1/2
who responded in 50's - other half 60's & 70's. At least 1 in late 40's. Is this
skewed by computer usage age? Who knows! But certainly the 70 age
average is either old data or inaccurate.

My doc finally decided it is PMR after ruling out all other possibilities. I
believe that is the correct wa to go anyway - being sure of the dx. Are you
on Pred? That is 1 quick way to help dx.
Good luck
pgr
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  Quote BobW Quote  Post ReplyReply Direct Link To This Post Posted: 13 October 2007 at 11:54am

Welcome, Pota.  As the data Ragnar and Pgr555 discuss, the age at which PMR starts probably resembles a bell curve.  The peak of that curve is unsure, but as with any bell curve, there are possiblilities way beyond the peak (in either direction) that PMR can be encountered.  In other words, it's possible that someone even in their 30's or 40's could be so diagnosed, and also possible that someone in their 80's or 90's could be.

    Your doctor can pretty well diagnose PMR with the prednisone test.  If no relief after several days on 15 to 20 mg, she can start looking elsewhere. But it sure sounds like you'll be in the same boat with us.  Good luck!

Best wishes, Bob
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  Quote pgr555 Quote  Post ReplyReply Direct Link To This Post Posted: 13 October 2007 at 12:49pm
DO the newbies have to row harder than us?
Should I crack my whip now? BTW, I see to be out of bourbon & my cigar has
burned out... You may have a cranky slave driver soon!
pgr
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Donna NY View Drop Down
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  Quote Donna NY Quote  Post ReplyReply Direct Link To This Post Posted: 13 October 2007 at 12:58pm

Hi Porta,

Glad to meet you, but wish it were on a poker forum instead of finding another who very well could have PMR.

I'm 52, diagnosed with PMR and GCA. Symptoms for PMR started when I was 51, but advanced to the symptoms you are describing.  I would get tangled in my bedsheets, and had difficulty putting on a shirt or jacket.

Sedrate was high 83.  Relief from Medrol (pred) within three days of starting medication. Age should not be a reference.  Not all of our bodies read the literature on a disease that is still be researched and studied.  Not all of our bodies are alike and respond the same way to medication or medical treatments.

Please hook up with a rheumatologist and ask your doctor to try you on predisone before nixing the idea you have PMR.  Why have to continue on with these severe symptoms for longer than necessary.

There are no-cure-all's for this disease, but it should be at least manageable.  Some have symptom's worse than other's but we can come here to the forum to run ideas past each other, and look for support when we are not feeling our best. 

Bob, did you assign him a place to sit on our water craft? Hope your doctor becomes more open minded about your diagnosis.  If not, find  doctor who will listen to you.

 

Donna, NY

Donna, PA
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  Quote BobW Quote  Post ReplyReply Direct Link To This Post Posted: 13 October 2007 at 1:21pm

Pgr555,  No sweat on the bourbon or cigar.  We've got plenty of good British Navy Rum, and a new box of cheap cigars.  And to answer your question regarding newbies....no, we are an equal opportunity outfit.  All rowers should get beaten the same amount for the same amount of work.  Unfortunately, PGR, lately you've been beating the portside rowers more than the starboard side group.  As a result, we've been going around in circles.  You need to straighten up!

Donna,  Pota will be up on the aft deck with the guys (along with the whip cracker and the drum banger) until properly diagnosed.  If he doesn't have PMR, he'll exit the boat via a short walk down a long plank.  If he joins us, we'll give him a short orientation tour with the rowers and then bring him up on the aft deck to supervise PGR.

Best wishes, Bob
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  Quote marianne1952 Quote  Post ReplyReply Direct Link To This Post Posted: 13 October 2007 at 3:23pm
I was 49 and thank god I found a doc who believed me. If your doc cannot get over the age factor find another!
Marianne in Colorado
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  Quote pgr555 Quote  Post ReplyReply Direct Link To This Post Posted: 13 October 2007 at 5:29pm
EXCUSE ME!!!! I need NO supervision! Its all the substances you are pouring
into my glass that are sending us in circles.

Watch out, Bob.I may turn that whip on the captain...

The rest of you, keep rowing. Anyone want to lead the cadence chant?
Maybe that could be Pota's job till we know if he is here to stay?
Your gentle, loving task mistress,
pgr
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  Quote BobW Quote  Post ReplyReply Direct Link To This Post Posted: 13 October 2007 at 6:04pm

Marianne,  You've made a great point.  There are too many doctors who think it's all mental.  I'd like for some on them to feel the same pain we experienced before the relief of prednisone and see how mental they think it is now.

As for you, pgr555 (can't you give us a name that doesn't sound like a robot on Star Wars?) Never think of turning the whip on the Captain (even if he is self-appointed).  That's a hanging offense!  But as long as you stay gentle and loving, what the hell?

And if Pota qualifies for our boat, I'll reassign him as assistant navigator to Ragnar.

Best wishes, Bob
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