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colinberry View Drop Down
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  Quote colinberry Quote  Post ReplyReply Direct Link To This Post Topic: MY Recovery story
    Posted: 05 August 2009 at 9:05am
I've been diagnosed with psoriatic arthritis for two years, but it surfaced about a year and a half before that. First in a finger then a knee, then it went through my hands. At my worst it hurt to button my shirt.  I was given two drugs that made me sick, and methotrexate which feels like poison for treatment. About a year on metho. I had ups and downs with metho in terms of effectiveness. I started researching alternatives and started finding information on diet and autoimmunity. It's like following threads which I did for about a year or more before I tried something. Side story- I also found an antibiotic treatment which I tried but am not sure if it did anything because I did it at the same time as dietary changes. I've seen references to the idea that gluten or nsaids can be a cause of autoimmunity.  Stress may be a factor. I had ample of both of these at one time. But these could be triggers.  But you may be able to fix almost all of this with diet. I've been off all medications for a little while now and am ok. Came off the methotrexate in May, and stopped the antibiotic treatment end of June. It does amount to a lifestyle change. What I did first was to go gluten free which I feel made a difference. I felt a gradual reduction of symptoms, feelings in my toes, hands which is mainly where it's mainly been...I think the metho stopped it from going further until I was able to control it through diet. So I'm gluten free, no wheat, barley, rye products. The other thing is supplements - vitamins, and especially omega 3 supplements. I also exercise vigorously cycling 5-6 times/week.  The other thing I've done is worked to balance my omega 3 to omega 6 ratio. This is supposed to control inflammation response.  Over the last 75 years this has been a huge change in our diets...resulting in higher incidence of autoimmunity in industrialized countries.  With all the prepared foods, vegetable oils, margarines, our omega 6 intake has gone way up relative to omega 3. It's supposed to be around 1:1 or 1:4 omega 3 to omega 6. Too much 6 promotes inflammation. This in part may cause autoimmunity from my researches. This is the other thing I've fixed in my diet. I thought I was eating reasonably well too. So I'm off all prepared snack foods, chips, etc. You find other things- and the craving goes away. So what I have now is minimal...and I hope to beat that too. But no morning stiffness, just a little joint sensitivity in one finger. The psoriasis is still there but mild and I hope to beat it over time. The drugs work fast, dietary changes occur slowly. I feel the disease is not being fueled any more. I do have occasional upticks- too much stress can cause it. Definitely, I've become sensitive to certain foods- what they call nightshades- tomatoes, potatoes, eggplant, peppers. I can have some of these occasionally, but I react if I have them a couple of days in a row. This food sensitivity thing is also a result of the autoimmunity.  Let me know what you think. If you ask your rheumatologist about it they'll tell you you're crazy...but they don't know anything about diet. All they do is push the drugs. That's their training.  Maybe my story could help you.  Start researching on your own...there's a lot to sort through.

Best Wishes,
 
ColinSmile

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Spelunker View Drop Down
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  Quote Spelunker Quote  Post ReplyReply Direct Link To This Post Posted: 05 August 2009 at 11:58am
Colin, welcome to ArthritisInsight forum. Thank you for sharing your story. It is truly heartening when folks report enhanced quality of life---regardless of how they achieved it. Although I have RA, I too have had success with high doses of omega 3's. Additionally, there are several regular posters in the RA section of this site that are doing wonderfully with high doses of fish oil in combination with DMARDS and/or other therapies.

I dropped by you homepage...incredible. Your artwork is joyous, filled with light and life and touches me deeply. I am deeply in a state of "I WANT". I want Luminescence!

Best wishes, Shug


Do not merely survive: thrive.
   
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colinberry View Drop Down
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  Quote colinberry Quote  Post ReplyReply Direct Link To This Post Posted: 05 August 2009 at 12:26pm

Hi Shug,

Thanks so much for your comments on my work. 

What do you take on a daily basis for omega 3's, I'm never quite sure.  I know they recommend dosages, but for people who have issues it probably should be different.  I've tried to shut off as many sources of omega 6 as I can. 

Thanks,

Colin

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  Quote Spelunker Quote  Post ReplyReply Direct Link To This Post Posted: 05 August 2009 at 1:40pm
Right now I am not taking any supplements at all secondary to some recent surgery; but I was following the formula discussed by JasmineRain:

Originally posted by http://arthritisinsight.com/forum/forum_posts.asp?TID=22413&PID=250600#250600

The important thing is not the number of capsules, but rather the omega-3 content of them.  Research seems to indicate that a dosage of 3 grams or more per day of omega-3 EFA is needed to obtain benefit for RA.  The capsules I take have 750mg combined EPA + DHA omega-3 EFA's per capsule.  I normally take 6 per day (3 in the AM and 3 before bed), for a total of about 4.5 grams omega-3's per day.  Regular fish oil capsules usually have around 300mg each, so you would need at least 10 per day in order to start seeing any benefit.  In addition, I always take enteric-coated capsules.  They break down in the small intestine rather than in the stomach.  This has couple of benefits: it helps prevent stomach upset that some experience from taking regular fish oil capsules, and the fish oil doesn't get degraded in the harsh environment of the stomach.

Do make sure you keep your doctor and pharmacist informed of any supplements you take - including fish oil.  Like anything else, they have potential for adverse reactions and interactions with other meds.

Do not merely survive: thrive.
   
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Teenee View Drop Down
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  Quote Teenee Quote  Post ReplyReply Direct Link To This Post Posted: 13 August 2009 at 9:05pm
Awaiting Enbrel treatment.  PSA (without psoriasis).  Initially diagnosed with Fibro. (yeah right); turns out to be Lyme disease and Babesiosis.  The pain is beyond belief.  Walking is next to impossible.  Seeing infectious disease dr. tomorrow.  Joints are swollen.  Feels like all tendons and ligament are ripping on my bones.  Can't go on Enbrel until other infections treated.  Anyone had LD or babs?
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