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babs10 
Senior Member
Joined: 09 March 2008
Location: USA
Online Status: Offline
Posts: 4816
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 Posted: 12 September 2009 at 7:52pm |
so sorry to hear of all your troubles, Tanya... It often happens that way to any of us.. raining and pouring down on us.
Sometimes we need to look at things that happen as blessings in disguise.
I've not read through all the postings.. but I wanted to say something about your RD...
I'm sorry that he moved 2 hours away but it doesn't seem that he was really helping your situation! We need aggressive medical interventions!! We need to stop the progression of destruction! I hope your new RD is one who takes this business seriously and gets down to the business of helping you arrest this disease!!
Best to you!
Babs
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When you are Real most of your hair has been loved off and your eyes drop out and you get loose in your joints and very shabby once you are Real you can't be ugly except to people who don't understand
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mom of 2
Newbie
Joined: 02 September 2009
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Posts: 28
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Posted: 12 September 2009 at 8:46pm |
Hi Tanya!
I am 44 and was diagnosed with RA and Celiac disease in 04/09. Now my RD thinks I actually have rhupus even though my Lupus titers are negative. I know exactly how you feel because I feel the same way and nobody really does understand this condition unless they have it. No one in my family has this either although it is hereditary and sometimes skips a generation. For years I was tested for Lyme once or twice per year as I have been fatigued with achy joints and feeling depressed since I was a teenager. I really don't have swelling in my joints but most days my feet crack every time I walk and I have days where my knees feel like they were hit by a board. My fingers and toes hurt 24/7 and I type for a living so my fingers always take a beating. I broke my wrist 2 years ago in a horse accident. I had the same wrist broke when I was 12. Now I have a plate and screws in it. Out of all my joints I must say it feels the best! Weird, huh?
I too have a horse (there must be a horsey thing among us)! I have only been out trail riding twice this year which really discourages me. I have a friend who rides her for me right now.
Right now I am being treated with prednisone, Vicodin, Lexapro, and hydroxychloroquine. The dose of the hydroxychloroquine had to be lowered because I got nightmares from it.
I say if you feel up to being with the horses, go do something with them even if it is only grooming them. It may actually make you feel better  As for the ex-BF, don't worry about him, you are much better off without him 
Chin up girl! Don't let this stuff get the best of you! I figure it may make me feel like crap but it and I will come to an understanding one of these days.
I wish you luck!
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JasmineRain
Senior Member
Joined: 07 August 2007
Location: United States
Online Status: Offline
Posts: 6099
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Posted: 12 September 2009 at 9:52pm |
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Many antidepressants are available in liquid concentrate form (especially the SSRI's); perhaps that would be easier to take. They can definitely help - I think of them as 'training wheels.' Most people don't need them forever - perhaps 6 months or a year. They can help get your thinking 'back on track' until you can learn some coping mechanisms. Definitely see a psychologist/counselor in addition to the psychiatrist - it's my experience that psychiatrists focus on the medical part of mental issues, but the counselors are very good at teaching you the life skills and coping mechanisms you need to deal with the issues facing you.
I can relate to your difficulties with hydroxychloroquine. When I first started taking it, I was nauseated and tired all the time, and also itched all over. Thankfully those problems gradually abated around 2-3 months, which is when it finally started to help with the pain/inflammation.
Talk to your pharmacist about your pill-swallowing issues. You're certainly not the first person to have difficulties in that area, and your pharmacist is trained to help you. He/she is a very important member of your medical team. Find a good one, get to know him/her, and get all your scripts filled at that pharmacy.
You WILL get through this!!!
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RA, meds, Coke
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hiking_gal
Senior Member
Joined: 06 March 2008
Location: Pennsylvania
Online Status: Offline
Posts: 455
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Posted: 14 September 2009 at 7:34am |
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Hi Tanya, I don't get on here very often but wanted to respond and welcome you to the forum. Taking care of 36 horses is a lot. I take care of my 2 and they can make me tired some days. It is fun just brushing them, so don't give up entirely on the horses. They are good therapy! You have a lot on your plate. It sounds as if you are taking corrective steps with the rd and the psychiatrist. Keep on posting and I hope you feel better soon! HG
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Hunniebun
Newbie
Joined: 09 September 2009
Location: BC, Canada
Online Status: Offline
Posts: 19
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Posted: 14 September 2009 at 12:44pm |
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Thanks again everybody for the replies, I really appreciate it. I have been referred to a new Rheum and now I am just waiting to be called with the appointment date for him. My family doctor told me to stop taking the Plaquenil (sp?) if I wanted to and can handle being off it, which I'm pretty sure I can do as I prefer to be able to eat instead of feeling like I'm going to puke 24/7. When I see the new Rheum I'm going to ask about liquids or injections instead of pills...
My EI is going to run out soon and I still have not found a job so that too is stressing me out big time. I am starting this career decision making program thing on thursday since I cannot go back to my old job, and was told not to apply for anything physical because it would just make me worse, yet I have no skills for another other than horses so its like ???????? So my funds will run out, I take this course, more than likely will get accepted for government funded re-training because of my health, but I can't have a job while I'm on that so its just like ok...Kick me off, EI, so then I HAVE to get a job otherwise I will miss very important bill payments and screw myself over...Only to have to QUIT that job because you MUST go to school full time when the government pay for it.
AHHHHHHHHHHHHHHHHH!!!
Sorry, haha...Did I just scream?
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Hunniebun
Newbie
Joined: 09 September 2009
Location: BC, Canada
Online Status: Offline
Posts: 19
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Quote Reply
Posted: 14 September 2009 at 12:52pm |
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I always hit reply too fast...
Funny and nice thing about the pharmacist bit is my best friendis going to school to BE a pharmacist...So phew, somebody I am comfortable with and who already knows and understands me.
UGH I HATE the way my mind has been lately, panicking 24/7, depressed, scared...yargh...
This whole Unemployment Insurance thing is driving me nuts. I would have tried a lot harder than I had to look for a new job, but they told me they'd call me so I could start this program and get on the road towards school BEFORE my EI was close to running out, but nope...They called me months down the road so I have like no time now. Each time I called they said to wait for them to call me, and make sure I wasn't working. Like....ROAR!!! It's so confusing!!!
Besides...Nobodies going to hire a "professional sh*t shoveller". I need to update my skills...I wish I had done all this sooner...Back when I was on medical insurance for 4 months to recover from my hand surgery, I didn't know I had arthritis yet, they were just starting to do blood tests to try and figure out why my fingers kept staying in a bent position, assuming it was only trigger finger, but then it started happening in all my fingers...And then a little while later I got all the lovely news...
What makes it even more rude is that when you are on medical benefits, you do NOT have to look for a job, so I didn't even bother, and now I see why that was stupid of me. When I was switched over to Regular unemployment benefits, they added those 4 months onto my claim, including those payments and saying thats 4 months of time I could have used to job search so its just like...WTF...sorry...
I hope what I'm rambling on about in here makes sense. I feel like such an idiot about it all, feel like I should have acted sooner but I didn't know and ARGH...Brain is so messed up...
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Hunniebun
Newbie
Joined: 09 September 2009
Location: BC, Canada
Online Status: Offline
Posts: 19
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Posted: 14 September 2009 at 12:53pm |
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Oh one of the reason I didn't bother to look for a job too hard was because I was supposed to get married, and my ex told me not to worry about working, and well...That all hit the fan REAL quick...
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maryhatz
Senior Member
Joined: 09 April 2009
Location: USA
Online Status: Offline
Posts: 109
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Posted: 17 September 2009 at 10:42am |
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Tanya - how are you? Haven't seen any postings since 9/14 and I'm wondering if you have found some relief from the depression. Please let us know!
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Mary
Meds: Remicade, Plaquenil, Medrol, vitamins/supplements + many others for other conditions
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Hunniebun
Newbie
Joined: 09 September 2009
Location: BC, Canada
Online Status: Offline
Posts: 19
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Posted: 18 September 2009 at 8:10am |
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Hi there, thanks for thinking about me, I really appreciate it. I havent been successful in getting one on one counselling, so they are starting me in a group for 10 weeks first starting Oct 26th, so I still have to wait a month or so...But thats alright, its something I guess...
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