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AI Family Affair Part II

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maryhatz View Drop Down
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  Quote maryhatz Quote  Post ReplyReply Direct Link To This Post Posted: 22 September 2009 at 11:38am
I sort of feel like I'm on the outside looking into this family and would like to be more a part of it! Maybe sharing a bit of me will help you begin to know me. I'm single (divorced for looooong time) and have three grown kids who are all married and living in Seattle. I have 7 grandkids who are wonderful - of course! I get up there (about 150 miles) several times a year to see them. Would love to move closer but could not get a house as nice as I have here because of the prices up there. Also, I'm still working at a business I've had for 25+ years - clinical social worker, do a lot of evaluations for incapacitated persons who need a guardian to help them - usually elderly folks, sometimes DD kids who turn 18, sometimes someone who has been in an accident or has a serious illness that leaves them unable to make decisions. It's a business I can do even with RA at least for now. Lots of paperwork and court appearances. I love it! I was diagnosed with RA in May or June of 2008. Xrays taken last week show only mild changes in my hands and feet and blood work looks good. I'm getting back into sewing - stopped for a while because I just was not motivated. Am just about finished with a small lap quilt for my daughter-in-law as a comfort to her because her mom died in June and she is still having a hard time. Just have a few hearts to hand quilt on some of the blocks and it will be done. I'm already planning my next project - a wall hanging quilt for some very good friends who have become like family as they have helped so much since I got sick. We just got back from the Oregon coast where we had a wonderful sunny, warm weekend on the beach - not the usual weather for the Oregon coast at this time of year. It was 90 down there yesterday! We walked on the beach, had fresh crab for dinner Friday night, eggs benedict and champagne for Sunday breakfast, and plenty of good junk food for noshing! Took several walks on the beach just to make sure we didn't gain too much weight with all the eating and drinking! I really enjoy reading the posts on this forum and am beginning to get to know who is dealing with what - although there are so many of you, that is a bit difficult without going back to review old posts. Being my own boss gives me time to read posts in the morning when I'm resisting working! I hope this helps you begin to know who I am and what I enjoy. We all share the RA and it's related problems. It's fun to also share some of our personal lives with each other.   Take care.
Mary

Meds: Remicade, Plaquenil, Medrol, vitamins/supplements + many others for other conditions
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Spelunker View Drop Down
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  Quote Spelunker Quote  Post ReplyReply Direct Link To This Post Posted: 22 September 2009 at 12:02pm
Mary! thank you for joining us: you are certainly one of the family---that inclusion simply requires your presence herein.

Please provide some photos of your handicrafts! AND eggs Benedict requires an invitation to join you and your guests Approve.

I am so heartened to hear that you have experienced on "mild changes" in your joints and that you lab results are favourable. Good for you!

Again, thanks for joining us! Best wishes. Shug
Do not merely survive: thrive.
   
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kathy_in_wlsv View Drop Down
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  Quote kathy_in_wlsv Quote  Post ReplyReply Direct Link To This Post Posted: 22 September 2009 at 12:12pm
I love the idea of this thread.
Other than the MRSA issue, and the pancreatitis, things are good here.
 
Controlling the Fibro has controlled the RA pain.  I am on 5 mg of pred a day, which is managable, and 200 mg of Lyrica a day  I still have pain in toes, knees and hips but its very managable.
 
We are well into the routine of the school year which makes life wonderful. (Mark is a teacher  at a local high school as well as an adjunct professor at the local state U.) Ally is in second grade. Jakie is at home with me.. He will be 4 on Oct 5 and I am of divided minds about getting him into Nursery school, since if I do he will be in his 3rd year of school when he hits Kindergarten..  But he has no friends his own age.. Maybe I will contact the local moms group.
 
I always feel like the year begins in September.
 
Fall has started out just gorgeous here and little by little I am getting the  outdoor stuff put away..  I am just thrilled at how my container plants and hanging baskets did this year, and they are all still reblooming and reblooming. I will keep them out and try to overwinter both the geraniums and the begonias.. I haven't had to buy a vinca in years.. Not bad for someone with a black thumb.
 
I LOVE fall.
Life is GOOD!
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waddie View Drop Down
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  Quote waddie Quote  Post ReplyReply Direct Link To This Post Posted: 22 September 2009 at 10:37pm
Welcome Mary!  Your quilts sound lovely!  I wish I had the patience to quilt!  Do you do all the work strictly by hand or do you use a machine?  I get so frustrated when I sew!  I have a Christmas tree skirt I have been working on for.... well Embarrassed 6 years!  I know, I know!  It has become sort of a tradition - I drag it out every year and add a few things, don't finish by Christmas, then tuck it away for another year.  Maybe I should start earlier this year?

Milly, I am sooooo happy for you!  It feels so good to feel good!

Pinny, you sound as if you are feeling pretty good too!  I envy you your travels!

Lovie!  I am so proud of you!  A month without the monkey on your back is a great excuse to celebrate!  Hug  You have the hardest part done!  I am happy you are having the surgery.  I know stopping the RA meds may not be easy, but it sounds as though it will be worth it in the long run.  I will be thinking of you and sending my best surgery vibes, prayers and good wishes!

Allymom, did you hear about the CT?  Your spa trip sounds like a dream!

I am doing fine and my heart is beating strong.  I still have some aches and pains and I am looking for answers on the whole embolism issue but its fall and I am here and the weather has been nice and cool today!  I am happy and really don't have much to complain about other than a bit of lint in my navel but I don't think it will require surgery! Whew!

My first Cardiac rehab session went well and I look forward to my next on Thurs.  My RD was happy to see me and we have decided on a switch back to Humira ( no rashes since I stopped the Enbrel, though that could be due to the pred too) with the continuation of 5mg of pred started when I was in the hospital to keep me mobile (which worked).  I can now restart my fish oil and mino as well so I am on track to keeping RA quiet in my life.

Lynn, I miss you too and look forward to hearing about the wedding!

Snow, you are beyond peachy! Hug Fall is my abosolute favorite!  It means I survived another hot summer and my energy is renewed!  It just makes me want to do... something! 

Shug, Hug I wish I could see the sunset from your new patio!  What a smart idea that seems will double your enjoyment!  This is a great thread and we have a  wonderful family!   Thank you!

Enjoy the new day everyone!

WaddieHeart
Never give up, never surrender!!!
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CathyMN View Drop Down
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  Quote CathyMN Quote  Post ReplyReply Direct Link To This Post Posted: 23 September 2009 at 3:28am

It's great to hear what everyone is doing, what a good idea for a thread.

Like many others, the fall season is my favorite time of the year.  I love the colors and putting on that first comfy sweater of the season. When my kids were little, I liked that it got dark earlier and everyone was inside - it just felt cozy.  
This is my busiest time at work, so hoping it slows down enough so I can enjoy some of the season.   So far, I've lucked out and no increased actiivity with the added stress and long hours.  I have become smarter in the last year and have learned  that I need to pace myself, but it's in conflict with the need to perform to a high level.  May be time to lower my standards slightly or be willing to let others help out.   Oh well...that's a goal for next week.  
 
Not ready to start thinking about the holidays quite yet, but I know that they're fast approaching.   I do have quite a few tomatoes and peppers on my counter and more to pick, so I think I'll focus on short-term plans for now and figure out what to do with them this weekend.  I already made a batch of freezer salsa.  So it's either a 2nd batch or ??  I'm not a canner, so it has to be freezer style.  
 
Have a great week!
Cathy
 
 
Dx 2/07. meds: enbrel, mtx, relafen
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maryhatz View Drop Down
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  Quote maryhatz Quote  Post ReplyReply Direct Link To This Post Posted: 23 September 2009 at 9:48am
Waddie, Shug, etc - Thanks for the welcome! No, Waddie, I don't do all the quilting by hand! That's hard stuff so I only do some special parts by hand - if any. Most quilts I do all machine quilting. Keep working on your Christmas tree skirt - one day it will be ready for prime time! I have so many unfinished projects I've told my kids I have to live to 150! I also love fall but here in the northwest we are having a weird weather pattern - hot on the coast and in the valley and cooler on the east side of the mountains. It was 90 here yesterday and expected to be close to that today. I love the crisp fall evenings when I come home from work and all the lights are on in the neighborhood houses welcoming me home! Just gives that cozy feeling. Guess we'll have to wait for crisp for a few days! Have a good day everyone!
Mary

Meds: Remicade, Plaquenil, Medrol, vitamins/supplements + many others for other conditions
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Phatgirl2 View Drop Down
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  Quote Phatgirl2 Quote  Post ReplyReply Direct Link To This Post Posted: 23 September 2009 at 2:30pm
This is a great thread!  I love to hear how everyone is doing, especially the ones who are beating this dreaded disease, if only for one day. 
Phats
RA Oct 2006
pissed off.......
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Spelunker View Drop Down
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  Quote Spelunker Quote  Post ReplyReply Direct Link To This Post Posted: 25 September 2009 at 10:21am
In another thread I mentioned that while I was no longer using the wheel to throw pots, etc., that I was doing some hand-building. This is a wedding vase that was burnished after drying with a silver spoon and fired in a pile of garden and yard debris along with some pecan and mesquite chips that I had been hoarding for just such an exercise. The iridescent qualities of the burnished surface fired in organic material is difficult to capture, but I am well pleased with the outcome of the first clay project in far too long.


Do not merely survive: thrive.
   
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  Quote SnowOwl Quote  Post ReplyReply Direct Link To This Post Posted: 25 September 2009 at 10:58am
Originally posted by Spelunker

In another thread I mentioned that while I was no longer using the wheel to throw pots, etc., that I was doing some hand-building. This is a wedding vase that was burnished after drying with a silver spoon and fired in a pile of garden and yard debris along with some pecan and mesquite chips that I had been hoarding for just such an exercise. The iridescent qualities of the burnished surface fired in organic material is difficult to capture, but I am well pleased with the outcome of the first clay project in far too long.


 
OoooohOOOHooOOOo Clap I have a weakness for such pottery.  <drooling>  You should be pleased, that's GORGEOUS!  Wish I could see it in person, I'm sure it's even lovelier in natural light.
RA, Sjogren's, asthma
MTX 25mg/wk, Relafen 750mg 2xdaily, folic acid, biotin, supplemental vit D, calcium, and "for women" formula multivitamin; Combivent as needed for asthma
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buckeye View Drop Down
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  Quote buckeye Quote  Post ReplyReply Direct Link To This Post Posted: 25 September 2009 at 11:20am
I've been quiet because I am simply tired of talking about reading about , dealing with arthritis.  I'm currently rusting because of all our rain-though not as much as GA is getting.  not much is going on with me  I'm in the middle of a review on my disability status from my insurance company so am anxiously waiting that out
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