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klynn141 
Senior Member
Joined: 19 May 2008
Location: Seattle, WA
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Posts: 304
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 Topic: sick of being sick
Posted: 06 November 2009 at 11:36am |
Has anyone gotten to a point that you just throw your hands up and say, whatever happens to me is going to happen. Oh well!
I am to that point. I am so stinkin' tired of having side affects from meds and wierd things happening to me. I am so sick of going to tons of dr appts trying to get answers from these doctors that are supposed to be so educated and not getting answers. I try to stay ahead of the game and research things that happen to me and see the doctors immediatley when something's not right just to get an answer of, it could be this or it could be that nothing definitave.
I've gone through being depressed to being mad to now just throwing my hands up and laughing when something else shows up. I'm tired of my husband not TRULY understanding that when I say I'm tired, I need to go to bed and am not being lazy or that doing all the housework is a huge deal for me and can not be superwoman like I used to be. and people at my work not truly understanding either. I'm tired of worrying how long I'll be around for my 2 boys and if I will be able to keep working.
I just am trying to get used to having "issues"
Thanks for letting me vent.
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Kelly -
Methotrexate, prednisone, clonazepam, mirtazapine, vit D and calcium
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rocckyd
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Joined: 26 January 2005
Location: United States
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Posts: 1212
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Posted: 06 November 2009 at 11:45am |
Yes...I am totally at that point. I have a huge pile of papers to grade since I have been going to bed so early this whole week. You know it will be a bad weekend when you are tired just thinking about the amount of work you need to do.... :(
Vent away....I hope you are able to get some relief this weekend. I am sorry that I don't have any real words of encouragement or advice-Just that I understand.
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Rebecca
RA, Sjorgens: Currently taking Rituxan, Plaquenil, Sulfasalazine, Perocet, Prednisone, Skelaxin, PT for chest wall inflammation, oh...and that funky jaw!
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Bodak
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Joined: 08 October 2007
Location: Somerville Vic.
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Posts: 1168
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Posted: 06 November 2009 at 11:58am |
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Hmm! Looks like you are a little fed up.
Woops, that might be an understatement.
Just let it all hang out and do what you can and just leave the rest.
I to get a little fed up with the looks, well you look ok.
Sometime you think that if only they could get hit by a bus would they then start to understand how you are feeling.
We know that is not an option.
No one will truly understand unless they have a taste of this disease, so like trying to quite smoking, one has to change your mindset.
Hang in there.
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klynn141
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Joined: 19 May 2008
Location: Seattle, WA
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Posts: 304
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Posted: 06 November 2009 at 12:10pm |
Thanks guys 
Bodak: This made me laugh...
"Sometimes you think that if only they could get hit by a bus would they then start to understand how you are feeling.
We know that is not an option."
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Kelly -
Methotrexate, prednisone, clonazepam, mirtazapine, vit D and calcium
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kelstev
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Joined: 16 March 2005
Location: Canada
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Posts: 3025
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Posted: 06 November 2009 at 12:14pm |
sorry you're having a rough time right now, Kelly.
Would your husband be willing to go to app't's with you in order to understand more about RA? If not,...maybe you could print out some info on RA and have him read it?
I hope things look up for you soon!
Kelly
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LinB
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Joined: 18 April 2007
Location: U.S & Mexico
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Posted: 06 November 2009 at 12:44pm |
Hi Kelly, vent away and then sit down with your husband and insist that he go to your doctor appts., specifically the RD. Get a copy of the spoon theory and make him read it. It's a great way to learn to pace yourself and very explanatory of the process. There's a copy of it on this forum somewhere. This is a priority issue and a step in your recovery process. You need his help and understanding.
We've all been where you are now, frustrated and disappointed beyond belief. I'm going to be brutally honest with you, it can escalate and worsen. It's very difficult to get the disease under control and sometimes more difficult to learn to pace, educate and emotionally center ourselves. I believe you're on the right track; you're super angry about the situation and many times that prompts us to do all the right things and gives us direction once the initial anger dissipates. Hang in there and keep going. Yes, it's frustrating but what choices do you have? You can never let RA win. Lindy
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We are all affecting the world every moment, whether we mean to or not. Our actions and states of mind matter, because we are so deeply interconnected with one another. Ram Dass
RA,Psa,OA
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leila
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Joined: 08 December 2008
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Posts: 353
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Posted: 06 November 2009 at 12:57pm |
Originally posted by LinB
. Yes, it's frustrating but what choices do you have? You can never let RA win. Lindy |
so true Lindy..
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Spelunker
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Joined: 08 March 2009
Location: At home.
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Posts: 1996
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Posted: 06 November 2009 at 2:26pm |
Originally posted by klynn141
Has anyone gotten to a point that you just throw your hands up and say, whatever happens to me is going to happen. Oh well! |
No, but I admit it is my nature to be stubborn, tenacious, and downright bull-headed. I have been overwhelmed, disconcerted, and dumbfounded and still am, nearly daily. I do sympathize with what you are experiencing...
| ... side affects from meds and wierd things happening to me. ... dr appts trying to get answers ...and not getting answers. I try to stay ahead of the game and research things that happen to me and see the doctors immediatley when something's not right just to get an answer of, it could be this or it could be that nothing definitave. |
If you current physicians are not giving you the answers you need, or not giving you definitive input on your complaints, it is time to start from square one with a whole new team. This is your health, your life and you deserve answers and input.
| I just am trying to get used to having "issues". |
I agree that having your husband accompany you on your doctors visits is a good start. Further, I highly recommend finding a therapist to assist you to work through the emotional and mental aspects of your "issues". Please do not "just get used to having "issues" learn how to surmount those issues. Best wishes, Shug
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Do not merely survive: thrive.
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waddie
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Joined: 10 October 2008
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Posts: 1559
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Posted: 06 November 2009 at 3:23pm |
Venting is good for the soul, it helps to relieve that mental burden that amplifies what is already aggravating your RA. Kelly, I know how you feel. You get to the point that if you knew a doctor visit would be positive, you still wouldn't go! I can tell you, for me, meditation sure helped (and still does). If it doesn't do much more than give you a few minutes to yourself, time to clear your mind, it is worth it in my book. If the only time you can find is just before going to bed, it will help you relax and clear your mind for sleep. Try not to worry too much about your sons, (easy for me to say), but instead focus on how much they adore you and the feeling that creates. You don't have to be supermom, just mom. Your DH does need to go with you on your RD visits - it helps to have an advocate anyway - and he will gain a better understanding of what you are going through. You hang in there, Kelly, you vent anytime you need to, we'll listen!  Humming really loud... 
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 Never give up, never surrender!!!
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waddie
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Joined: 10 October 2008
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Posted: 11 November 2009 at 5:59pm |
Klynn, how are you doing? I hope this is a better day for you. Do you get time off over Thanksgiving? Are your boys excited, digging through Christmas catalogs making a list? Feel better, girl, and let us know how you are doing! Waddie
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Never give up, never surrender!!!
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