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I am a nurse, so everyone (family and friends) has always turned to me for advice and help. I have some family members that won't take an aspirin without asking me first. I have enough on my own plate right now, multiple surgeries, a hell of a flare, teenager problems, etc. How can I get the message to these people that I am not the free clinic and I have more of my own problems than I can handle without them adding theirs?
Got a polite way to say 'go away'?
LOL...I know this problem all too
well!!
Heres an idea for you...Start acting like your not sure what they should
do...
1.) Tell them you'll have to call them back and convieniently forget, if
they call back tell them you were so busy you just forgot and
apologize... if you do this regularly, they will figure out that you are
busy with your own stuff...
2.) Just tell them that your not sure what they should do and maybe they
should call the docs office to find out...Or, direct them to a search
engine online if they have a puter, that way they might start using that
instead of you...
3.) Just find ways to not answer their questions, whatever you can think
of...the more you answer, the more they think you know...be polite but
not so smart....lol
After a while they will quit calling you altogether... -Wayney
You bet. "I am not a doctor and that sounds serious or (not), perhaps you should consult your Physician." I find then they discover the ability to see a physician on their own. It also should let them know they are over bounds. -Toni
This happens to me as well, 'cause I've
been an MRI tech for 23 syears.... soon to be on disability. :(
My saving grace was that my baby sissy
decided to become an RN, so most questions I fob off to her. We also
have a system within my family. Medical questions go past my Mama or
Baby Sissy first, and, if they an't answer, then they call me and check
my condition at the moment. If I'm too sick to answer, and sissy doesn't
know, we send them to WebMD.
They're not always happy, and it took several years of kind but firm
"I'm sorry" responses, but now, with the middleman system,
things are much better.
Hope this helps.
Laura
Having oral problems due to the medication I take, I have tried mouth washes and even brushing my tongue, to try and get rid of this fowl coating, has anyone else got this type of problem? and if so can you suggest ideas to get rid of it .
The answer was for myself was acidophilus.
You can buy this in a capsule form from a pharmacy or health food
outlet.
Also yogurt with acidophilis and bifidis also helps.
I had oral thrush due to mtx and prednisolone therapy.
After a couple of weeks it cleared up.
As long as I stick to this regieme. No white furry tongue occurs
-rosie.
This may sound stupid, 'cause my guess is you've already
tried it, but
have you had any suggestions from your Rheu to use oral Nystatin
<sp?>? Tastes like poop, it's for babies with thrush. You don't
swallow it, just swish it around in your mouth and then <I think>
wait a couple of minutes before you spit it out.
This has helped me, but I've only had your problem once.
Good Luck!
Laura
How does everyone deal with the frustration? I will be living alone next year for the 1st time since I was 22(now 51). Any tips for me? I have difficulty driving - need tips
The
best thing I?ve done to help with driving is to get a power inverter
so I can plug in my heating pad while I drive.
It converts the DC power to AC, so you can plug it in.
Having the heating pad really helps keep the pain in check.
Another
friend recommended getting a steering wheel cover, to increase the size
for an easier grip. I?m
having a lot of trouble with my hands and shoulders when I drive and
I?m going to look for one next. -Carol
P
I am dealing with some severe pain right now. Walking is very difficult, as is standing. I have small children and that means lots of holiday preparation. How will I ever get my shopping done, house decorated, cookies baked? HELP!
Hello, I know what you are going through. I have RA,
Fibromyalgia, Bursitis, Gout, Reynaud's Syndrome and Frieburg's Disease.
But mostly I have 5 kids from 3 to 15, a dog, two cats and a husband
that is deployed. How to get through the holidays! #1 remember Jesus is
the reason for the season! Everything else is hype. I have found several
things that help and make it so much easier.
Decorate a little bit at a time. I pulled out my rolling desk chair and
rolled around the tree as the kids helped decorate. Sometimes less is
more. For holiday lights, since my husband is gone, I bought some of
those large suction cups with the hooks for wreaths. I hung them on the
windows and bought light up snowflakes and hung on the hooks. Even down
here in the deep south I have snowflakes falling now!
For shopping I go to Amazon.com a lot. They have toys, clothes, books,
movies, electronics, etc.--you don't have to have a credit card. You can
process your order and they will give you the information to send in a
check. Time may be getting limited to do this but they do take credit
cards too, including debit cards and I have had no problem with
security. Delivered to my door. For wrapping I just use gift bags.
For holiday baking sometimes instant is good too! For homemade candy-I
buy a huge candy cane, put in ziploc bag and break with a hammer. Then I
melt white almond bark, pour broken candy cane in pan, stir and pour out
on wax paper. This is delicious and pretty. I just break into pieces and
wrap in pretty plastic wrap. Quick bread mixes are so easy, just use
aluminum foil bread pans, cranberry bread is so pretty, bake and wrap
with plastic wrap and tie with bow. Makes a great present too!
Mainly remember Jesus and your family, spend time together, pray
together and be thankful you have each day to be with your family.
I hope I have helped. If you have any questions, please feel free to
email me back.
God Bless and Happy Holidays!
Lisa M.
Keep your decorations low, as in low enough to be at your kids? level. This will save on the climbing that can be pretty scary when you are unsteady. Since things are at their level they should be things kids can touch & take off the wall to play with if they are irresistible. This means they really ought to be paper. It?s inexpensive and with paint & glitter (I just adore the chunky white kind-it really is quite snow-like) it can look GORGEOUS. If your family or friends raise an eyebrow smile angelically and say ?Christmas really is for the children you know.? Let anyone over about 2 yrs help with the painting and glittering. With any luck you can turn cleanup into water play and most of your work will be supervisory. It?s not exactly a Martha Stewart Christmas, but I would bet it?s one your whole neighborhood would be envious of. I hope that this has helped a bit! Dena
I don't mean to do commercial advertising exactly but, for shopping, it's hard to beat Amazon.com. They've even added clothes this year. They still have books, but also tools, toys, music, videos, everything for household and kitchen, and/or all kinds of electronics from PDAs and cell phones to well, hundreds of thousands of choices. I recommend them because I've done literally hundreds of transactions without a hitch. It's a fast, easy, safe, joint friendly way to go. And as for decorating? Remember Tom Sawyer and the fence whitewashing job? Bet you can convince some of your single friends that it's actually FUN. I have several who live in apartments far from their families and they don't do anything themselves or have the room for boxes of accumulated Christmas decor - and they have a blast coming over here to do the place up. Some eggnnog, a few boxes of cookies, etc. and it's a done deal. As for the cooking. Most of the major supermarket chains will roast you a turkey and everything imaginable in the way of fixings to simply heat and serve. Is it the "same" as the years you did it all yourself? No. But do kids notice? Again, no. The tree is up, they get their loot, and they get fed. Good luck. Lynne (RA)
Now is the time to call in the troops of reinforcements. Call your sisters and ask if they could bake a few extra cookies for you. Look for church's that have cookie walks and go and purchase the cookies. Call on your extended family if there are some close of some other mothers and ask if they can help you. Perhaps you can wangle a trade, like I'll watch your kids if you bake something extra. Ask for help. People watch us struggle and we don't THINK to ask for help. Make a list of what is important and what is not. If help is not available then remember the most important thing is time with your kids, not the cookies. Read them stories of the Christmas season or watch the specials on TV. Make your memories with them instead of the hustle and bustle of the season. Your kids will adjust and not know anything else is different, and when they do you explain that Mommy hurts and can't do all of those things. But, your memories will be of time spent with your kids, reading, playing games, singing carols. Focus on family not what the commercialism of the season tells us that we must. Toni
Hi, I have
been dealing with osteoarthitis in neck, knees and lower
back for about 6 years. I have tried just about everything and just had
prescribed for me a drug called neurontin. Can you tell me how this
drug is supposed to help arthitis pain? I am willing to try it in order
to avoid surgery. I would like to know what to expect and how long one
must use the drug in order to feel the results. I started on 100 mg and
just increased it to 300mg. Please tell me what to expect. So far I
have only noticed minimal results.
Neurontin, the trade name for Gabapentin, was approved by the FDA in the
US in 1994 as an anti-epileptic (seizure) medication. It got it's name
from it's role in the activation of GABAg1,g2 receptors in the brain.
Does anyone know for certain EXACTLY how the drug lessens the sensation
of pain? No. But we took aspirin for a hundred years before
prostaglandins were discovered.
What I DO know is that 300 mg. is too small a dose to have an effect.
Several of my chronic back pain patients take 900mgs. three times a day.
I have RA and without my 1,600 mg. bedtime dose - I don't sleep well.
Neurontin doesn't make me drowsy - if I took the same dose well rested
at noon I wouldn't notice it at all in terms of alertness. It simply
takes enough of the edge off my pain that I can relax and sleep because
I'm tired, not because I'm drugged. No grogginess or hung over feeling
in the morning. It's safe, non-addictive, and is one of the reasons I'm
still able to work. And I slept better the first night I took it so I
don't believe it's a medicine were a certain blood level needs to be
achieved over time.
The clinical trials on seizures that went on from 1983 to 1993 involved
something like 1,800 to 2,400 mgs. a day so please talk to your
practicioner about increasing your dosage before giving up on it. It's
also being used to help treat depression - which is very common with
people in pain - so you may be killing two birds with one stone. Good
Luck, Sharon L. Moore. RN
I am 36 year old Mom. And have been living with RA for the last couple of years. I hurt something awful. Especially in my legs and hips. Doc says that everything is fine. Meds aren't helping. Sometimes I sweat really bad. And Sleeping isn't easy. Is it time to get a new Doc? Please Help Me!
I think we need some encouragement here!
Pain especially chronic
pain is becoming a separate specialty. Pain clinics are pooping up all
over the country. Most big hospital now have a pain clinic. I have been
going to one for two years now and they have helped me greatly. no
miracle but some real relief. it took a while and some med changes but
we got there,
Most doc know squat about chronic pain, they live in the dark ages when
the physician did not want to get the patient "hooked" well
here's a 411 people in chronic pain do not get hooked. It just does not
happen.
I am on methadone which is a synthetic morphine, and I take a lot but
hey the doc's at the pain center are anesthesiologists and I am not
hooked what I am is relieved.
I still have bad days, you know the stay in bed days but it is better.
get yea to a pain clinic -harry
YES YES YES it is time for a new doctor. I had seen my GP for over 10 years when I began to have hand pain that just got worse with each passing day. I became a 36 year old woman who needed her mother?s help just to get dressed, when I bothered. My last straw came when my GP (who kept saying I had fibromyalgia, despite the rhuematologist saying I didn?t) patted me on the hand, which she KNEW was painful, and told me to ?cheer up, most people with fibromyalgia don?t have this kind of pain, but you do.? After I confessed that I was interested in having my hands amputated & replaced with prosthetics that would doubtless work better. I felt so humiliated, like I was making the whole thing up. I tried to do things & think about being pain free but it just didn?t work. I thought that maybe I should just kill myself and save everyone I know a great deal of trouble. But I also KNEW that the pain was real. I decided that I would try another doctor. After what I had been through with the one I thought was so terrific what did I have to lose? My mother had seen an internist who literally turned her asthma around so I called the local internists office. They had a new internist coming to join their staff who would be taking general practice patients. My new doctor listened very well, he ran more tests than anyone before and in less than a week I had a diagnosis of inflammatory arthritis and lupus. A month later the new meds I was on gave my first pain free day in 18 months. By June I was ready to return to work. Try another doctor, tell them everything, even the stuff that you think is unrelated. You owe it to yourself & everyone who loves you to fight for a diagnosis. -Dena
Just read your post about continuing
pain. You definitely need a new doctor if you can't make your present
doc understand what you are going through. The doctor can't make the
decision that "everything is fine" if he isn't living in your
body. There should be a response to your need for pain relief, whether
it be a DMARD or NSAID or a pain pill. He isn't responding to your needs
at this point. The sweating at night seems to be a part of the RA. A lot
of us went thru the "is this early menopause" stage but the
men have it too! I think you are on target. You know your body best. Be
proactive and make your doctor know what you need and respond to that or
fire him! Many of us have been there and changed docs to get relief.
Don't hesitate to trust yourself. I think you are on target! Don't give
up advocating for yourself. You can do it!
Melanie