Must be dumb luck to have stumbled across what appears
to be an old friend (AI). Have missed reading posts from the old group
and was horrified to see my old site vaporized. Many thanks to
administrators for resurrecting this wonderful comfort zone for many who
suffer silently. Hope everyone is doing better over the long
haul. Missed you a lot. I have seen better days, but am hanging in there.
Trying very hard not to micromanage the disease... but put it in the back
seat whenever possible. After 3 years, I am finding it harder to get
remissions that will stick around for awhile.
Best thoughts and wishes
Jeanne hey beanie. i've been offline a long time and was sad to see no
ai the other day when i logged on. imagine my surprise when i
decided to check again. yay. not that i get online much,
nut this week i am working on my mom's computer and she has dsl so i am
spending lots of time surfing. i understand about the remissions,
i miss being in remission. well better go. take care
wayney
Wow! Good to see life around these parts! Was afraid I
might be talking to myself for awhile. Like you... I just kept checking the
site to see if there was a revival. Just curious to know how others arrived
at this splendid place?? Same philosophy... never give up ... keep hope
alive?? I feel guilty about not posting for a long time. When I found the
site gone... it was like losing a friend and never getting to say goodbye.
Sorry you are not enjoying remission right now , Wayne. Elusive little
buggers they are. Hope you are feeling better soon.
Jeannei've actually been out of remission (well RA anyway) since giving birth
three years ago. my FM has stayed active since dx. my ra
remission had lasted from my teen years until my son was about a month
old. but i always try to hope for the best. and i'm working
on a way to help explain things to my son a little bit better.
he's so sweet when i can't do certain things with him and he knows that
there are things that i can always do even if they are quiet things
like reading to him. a lot of my problems can be explained by
stupidity basically. i keep pushing my limits and then end up
hurting. you'd think after dealing with this for 20 years (hmm
just read my profile and its wrong, dx'ed in 84 not 87) i'd know
better but i never seem to learn. dealing with the guilt of not
working right now. but hubby is supportive of it because he knows
how i push even harder when i try to work.
Hello! Great to see we're back! Sure missed this place. I never really posted much, just kind of lurked. When the site disappeared, it was like not being able to have that morning cup of coffee and then going through caffine withdrawl.
Wayney, I hope you feel better soon. Remission is great. I just wish it would stay around a lot longer. I, like you, have never been that fortunate.
Take Care
Marianne
I am sending my warmest hugs to everyone!
Pam
So glad this place has returned. I too was one who posted very little. but lurked alot. It is a place to feel safe and not alone when my disease is rearing it's ugly head... I can come here and be understood even when I don't post.
I am so glad you are back. Hope you stay this time.
Hugs
Cher
Yes , I have been quility of lurking alot in the past and not appreciatiating Ai until it vanished overnight. I felt like part of my family disappeared.
So glad it's back , I'll try to post more often.
Thank you , thank you,
Hi all, I'm glad AI is back too. It's good to hear from everyone. Take care. EllenI too am a voyer and missed you guys. It helps to know that there are others like myself out there.When the site went down, a lot of us just freaked. We made it to other sites temporarily, but we really wanted to come back here. Now, some of us are lurkers there as well.
But it nice to know who is lurking out there. Wish more of you would speak up once and awhile so that we could get to know you a bit.
But certainly am glad you are all here.
Welcome back all. AI is like an old friend, that we forgive no matter what.I hear from Hula some via email. She's hanging in there. Some days are better than others as you know. Keep her in your prayers....I sometimes think she talks stronger than she is. She's never been big on complaining as you might remember.
I have been on this site for about a month now, I am excited to see so many new people "to me anyway" what was AI? Just wondering