Well...I just don't get it...
Lisa, all of my bloodwork comes back fine also but I do have RA. One reason the Dr. was sure is that Prednisone helps and the MTX toned down the swelling a lot. Take care Hi Lisa, I'm in a similar position in that I've had all normal blood work and am waiting on the my 1st rheum appt. I'm just going to throw this out as a possibility: Has your doctor tested you for Lyme's Disease? I'm currently being treated for Lyme's, despite the fact that I don't remember getting a tick bite (and not everyone gets the bulls-eye rash) and despite the fact that the Lyme's titer came back negative; however, many of the symptoms of RA are mimicked by Lyme's. This is a really good board that I joined for info--you might want to visit just to see if anything clicks: http://www.healthboards.com/boards/forumdisplay.php?f=82 I hope that you feel better, no matter what the cause! Best, Christina
How can ALL my blood work come back normal when I have such aches and pain? How do they really know what's wrong with me just by my symptoms and history? I am so sick and tired of being tired and sick!!!!
Well what tests and blood work are you taking about.
Bonnie...do your tests for inflammation come back negative as well?
Blessed i had bloodwork done last week..CRP...ESR....RF and all came back within normal limits as well. In times past, the numbers were high. I forgot to have them order the ccp tests which is the only test so far that determines whether you have RA or not. I was taking natural anti-infla for 12 days, so it's either the natural sups that thru it into remission or I have PALINDROMIC RA. It mimics RA but doesn't cause joint damage. I see a rheumy tommorow. Hey be happy your numbers came back normal. Have you ever thought maybe it's fibromyalgia?Blessed--
My bloodwork has always come back normal...ESR was slightly elevated before I started on meds, but my RF factor has been normal. (ESR is supposed to show whether you have inflammation or not.) This was even though I had quite severe visible swelling in numerous joints. After about 12 weeks, my doc diagnosed me with sero-negative RA. (About 20% of RA patients are ser-negative--meaning it doesn't show up in your bloodwork.) He started me on meds, first MTX then added Enbrel a year later. I've heard that being sero-negative means it's likely that you have a less aggressive form of RA, but I'm not sure if this is true or not.
dordale
Lisa, my blood work is all normal since I started taking Enbrel. My doc says that the meds are doing what they're supposed to do. I do still have some aches and pains, but nothing like before. Are you still in alot of pain??
[QUOTE=Linncn]Lisa, my blood work is all normal since I started taking Enbrel. My doc says that the meds are doing what they're supposed to do. I do still have some aches and pains, but nothing like before. Are you still in alot of pain??[/QUOTE]
Yes, I still have a lot of pain...the only thing that has ever helped was the Prednisone in higher doses such as 40-60mg. My RD just added MTXwith the Plaquenil Friday before last because the Plaquenil was not cutting it alone. So my RA is not under control. If that's what it is...
They believe, (RD and staff), that I am sero-negative and don't have Fibro. I don't have any pain in the expected spots associated with Fibro...I just wish I had a FIRM dx's.
I know how you feel on that. I'm seronegative, but that just keeps the door open in my mind to...maybe I don't really have anyhting. I wish the RA could just show in my blood and then I wouldn't have to have that doubt in the back of my head all the time. It isn't rational.I do hope the MTX works for you. Maybe the plaquenil just needs a boost. What are the spots that hurt with fibro?
It doesn't make sense, does it? We have normal blood test and a lot of pain...could it be something else they don't even have a test for yet? That's what I sometimes wonder...But ya know, I'm the world's best second guesser.
This is what I found on it:
Tender points of fibromyalgia exist at these nine bilateral muscle locations:
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