As you all know, the pain and fatigue suck and since there is no cure we just struggle along hoping to get back into remission for a while. I drink two (sometimes more) glasses of red wine with dinner and look forward to it every day. It tastes good, makes me relax a bit, and helps me feel somewhat "normal." I only had one liver problem about 18 months ago while going through the beginnings of a separation, with divorce on the horizon. I was under sooooo much stress. I was a really bad girl and was having peach flavored Vodka nightly with a friend (and sometimes alone). When I found out my liver was "tweaked" I stopped the drinking immediately and started to take an Andrew Lessman vitamin (a liver anti-oxidant) which I get from HSN and have not had one problem since. I started to drink red wine and have never touched the "hard stuff"since. I hope to be able to live my life to the best of my ability and pray that the pain will one day ease up, if not go away completely. I find that my pain is at its worst is in the morning and by about 3 in the afternoon, I start to feel okay. Not great but at least I can shower and get dressed and am no longer crying in pain. I find the stress really exaccerbates this disease but, since it is almost impossible to avoid stress completely, I enjoy my red wine and I hope you all will as well. Hi Frankie and welcome, This is a good place with great people. I come here almost daily and enjoy a laugh or two. For me it is very thearaputic(sp). I am not familliar with BOOP but am willing to learn something new toady. Feel free to jump into any thread anytime. You can also PM (personal message) people if you want it to be more private. Again welcome and We are sorry you had to find us but glad you did. Jay I haven't heard of BOOP either. I've been on MTX for years and I drink several glasses of wine a week. I haven't had any problems so far and hope that continues because I too enjoy relaxing over a glass of wine in the evenings. Welcome to AI Frankie. Hi there and welcome. Is it me or is it just shocking how many RD's take people off meds only to have them come out of remission? This is not the first post that has said as much. I'm intrigued too.... what is BOOP? My colleague had JRA (Stills disease), then continued onto RA, has had 3 hip replacements, 2 shoulder blade replacements and is on lots of nasty meds and he drinks wine as long as his liver is fine. I suppose a little of what you fancy and all that
Welcome to the forum, frankie! I hope I can do this if I have to go on medicine. Even two glasses a week would thrill me. Wine is one of the simple pleasures in my life! Is this the BOOP you have? I was curious, so I googled it. http://www.mayoclinic.com/health/bronchiolitis-obliterans/AN 00307 I'm so sorry to hear about the divorce.
Hi and welcome to the board. Sorry yu had find us, but you will find a lot of caring and support here from very wonderful people. The opinions on drinking while on mtx vary greatly. Some docs say don't do it, some docs say in moderation it is ok. Like anything else, moderation is the key I would guess. As long as your liver enzymes aren't all out of whack I gues go for those couple of glasses of wine with supper. Just make sure your doc knows what and how much you are drinking. Glad you are doing well and not in a whole lot of pain! That is great! Hi Frankie...welcome! I don't drink every week...but I like to have a glass of wine a couple of times per month. I've so far been ok with that for the last 15 years. Kelly
Glad you found us. You will find encouragement, understanding, and compassion from most all members....so feel free to jump on in to the water...
By the way...what is BOOP?
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