I am going to the clinic | Arthritis Information

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You guys are right.  I am getting dressed and going to the immediate care clinic and beg.  Wish me luck. 

Love, Cheryl

Take care Roxy,

THEY BETTER GIVE YOU SOMETHING GOOD FOR PAIN!!!!!!!!!!!!!!!!!!!!!!!!

Hope you get aomething for your pain! I guess no more butt massages!!good girl!!!!  Hope you feel better s o o n!!!!

 

 

KarenNTx38572.7833680556I hope you meet someone with a little understanding of the pain you're in who'll treat you properly.Sweet Roxy.  I hurt for you.  I can hear the fear in your posts.  Whatever they give you, if they give you anything, please, please, please...I know you hate prednisone, but you've got to stop the inflammation!  The pain meds don't do that--they only mask it for a short time.  But you already know that.   I can't keep track of what you're taking right now.  10 or 15 mg?  Well, for now, it's just not enough.  Take more at least for now.  I've read here of people having to take 40 to 60mg.  For the love of God--20 or 25 won't kill you.  Nor will the sugar you eat for a little while.  Please.  We're all so worried about you.yes!OMG, poor ROXY!!
I wish we could all go up there and take her to ER and make them give her some relief ((
I hope something happens soon!!

Mina

OK YOU GUYS  I AM VERY VERY LOADED !  NO PAIN.  I COULD NOT DRIVE.  THEY HAD TO CALL MY FRIEND.  MY BP WAS 196/90 SO THEY KNEW I WAS IN A LOT OF PAIN.  I WAS A BIG  BABY - CRY BABY

At least you are not in pain! I know what it feels like to be loaded...lol. I was "loaded" when I gave birth to my daughter. I could hear people talking, but my eyes would not open for anything and I could not talk it felt like it would take to much of an effort...lol.

If I were you I would really consider going back to thr RD and see what can be done for your pain other than pain killers. Pred is probably a better option then pain killers, less addictive.

I would not worry about all the sugar you eat and crave while on pred. Heck I do not worry...because if I do then I feel like I am starving myself and I over eat on other foods, when all I have to do is give in to my sugar craving. I have lost some weight, and have been able to maintain it too. I do NOT exercise, the only exercise I get is walking from the car to the front doors of Wally-World, or from the bed to the living room & bathroom. So, if I can maintain my 148lbs without exercise and eating no good foods and all straches & sugars. I am sure you can too!

Ok Roxy... Glad to hear you feel good.. now share with us what they gave you.. this way io know what to ask for when i have to go in!!!!!!!!!!!!!!!!!

 

Hee hee

I know what you mean about cravings on pred. I hate it too. A few months ago when I was on pred I gained about 30 lbs. I am NEVER hungry and I felt like I was going to starve to death. But since I weaned off the pred I've lost about 40 pounds, without really trying. I still can't exercise, but I don't hurt so bad that even attempting to walk  a  half block is  out of the question.

 

Sometimes you just gotta take the pred while the other meds get organized.

So glad you got help roxy, glad whatever it is is working for you, you're braver than me anyway, i couldn't cope with being out of control,   brain fried is bad enough

 

It is tough to type as my L wrist is very inflamed.  I can't believe how stubborn I am.  As soon as I walked in the door, they rushed me to a room.  I was a mess.  The doc said right away.  You know you are not leaving here unless you have a ride.  I didn't think of that.  Brett would not be home for another two hours.  I called my wonderful girlfriend and she had to wait well over an hour for me with her three kids

Within 10 minutes I could cope again.  It was funny.  They made me stay until my bp came down to 160/90 (about an hour) and told me I still could not go home unless I had someone there.   By then Brett was home.  My gf was driving me home and the doc said to stop at the grocery store for rx.  She had the three kids and so I said I would go in.  She was reluctant but let me go.  I picked up a twelve pack of pepsi on the way to the pharmacy because my mouth was so dry.  It started leaking all over me.  I went back to the drinks aisle to get some more.  I then dropped two twelve packs of pepsi on the floor.  People all around me were picking them up and all I could do is look at them funny I was so messed up.  HOW EMBARRASSING

It was funny.  The doc kept feeling for heat where I told him it hurt.  He said he did not feel any heat.  I said I never feel heat in a flare.  He said people with bad ra radiate heat.  How funny is that.  But that is because he was a gp and he had read that in books. 

So I see my rheumy today.  I pray I will start Humira soon.  I will take however much pred. I have to.  I am really sore all over but nothing like the extreme I have been in.  I am going to keep those vicoden for down the road.  I hope to get cortisone shots today.   I don't know how many they can give.  I have extreme pain in L wrist and shoulder,  both hips, my butt (gp was confused also when I said butt) and my right knee.  Right now I still feel the effects of whatever they gave me last night.  My darling Brett read to me in bed.  I was feeling anxiety because I was feeling so loaded and it kinda scared me.  It was hard to swallow.  He read me a short story that I don't remember any of but I fell to sleep to his calming voice.  I woke up once in the middle and I thought I broke my L arm. Then I realized it was my flare and was able to go back to sleep.

I cannot put into words how much all of your support has meant to me.  I have NEVER had to deal with so much pain.  It is very scary for me and I felt like I was not alone because I had you.  I love you all so much.  I will let you know what happens at the rheumy.  My favorite hug is no longer there to paste but pretend this hug is large enough so each one of you can feel it.  I AM SO GRATEFUL TO YOU.  Too many names to mention. 

Maybe they gave you torodol (sp). I went to the ER with severe pain in the hands once and they gave me a shot of torodol...it took the pain away for awhile. 

When I flare my joints are hot...

A week ago I had a shot of either placebo or Humira. I'm thinking it was Humira as all week I've not had pain or flares...if it's Humira it's been a miracle drug for me. I'm currently in a study for Humira and the first shot was going to be humira or placebo, so I don't know which I got...but feels like Humira. Good luck...hopefully if you get on it it will help you out so much.

Hi Roxy,

SO glad you were able to get some relief from pain last night.  They might have given you demoral.  When I lived in Las Vegas a few years ago I used to get major migraines.  Worst pain ever..not to mention getting sick to my stomach every 30 min. Anyway,  when they got so bad I was almost screaming, my then husband would take me to the ER and they would give me a shot (my BP would also be high). 

Demoral shots are really painful, and they give them in the hip, but when you are in that much pain it doesn't matter!!  I've had a couple of surgeries in the past where they gave me demoral shots, and after the first couple of days,  I really had to contemplate 'do I want the pain from the shot or the pain from the surgery' 

Whatever it was they gave you, I'm glad it helped.  Get some rest today and if the pain starts to build up again, take a pain pill BEFORE it gets too bad..

Blessings,

Tara

I'm glad you got some relief, tell your RD that your not leaving his office until you get some help from him, end of story......

Mina 

 

  Good luck Roxy! I know I sure don't know what to tell you to do to get the docs and nurses on the ball. I am so struggling with my own. I just wish I could wave a wand and make them go through what we do for one day. And then I would never hear that " I know how you feel" sentence. I hate that and I flat told her she does not know what I go through everyday.  I hate to be ugly to them because they hold how I feel in their hands. And I am afraid that if I make them to mad I won't get any help. Guess it would be time to find a new doc. Oh man, I even hate to think about that. I have been disabled for 14 years now.

Hang in there Roxy and good luck.

Prayers for you

RLS238573.3934375

Thanks RL.  I am hurting bad right now but reluctant to take pain meds.  I want them to see me like this at appt. at 2

Good luck to you too.

Rox~I haven't read all of this...and you know I haven't been around much the past few days so I really don't know what's going on with you... but I wanted you to know I'll say a special prayer for you my friend.

I hope you're feeling better soon.

Much Love;

Lovie

Thanks Lovie.  How are you feeling?  I am going back to bed until my rd appt.  I hope you are better too Lovie and get back on your meds soon.  BIG HUG

Hey Roxy Girl,

Just read your post, and Im so glad that you were able to get relief from your pain. I felt deeply for you cuz I know what its like to be in pain so intense you just wanna be knocked unconscience. Get some rest and I hope everything goes well at your app. today and you can start your Humira shots too.

Take care of yourself

Shawnie


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