OT The Power of PIP! | Arthritis Information

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Went to the ped rheum today, and while we waited I read some of the books they have to my daughter.   The first one was about a picky princess who would not eat veggies, so a wizard gave her some "pips" to plant. Thought that was funny, reminded me of our Pip here.

On to the next book about the Bear in the Big Blue House. And Pop and Pip! OMG, I almost fell in the floor!

So I decided it was divine intervention, and I had the power of Pip behind me LOL. Visit went as well as could be expected, and he is getting a more thorough xray report for me.

Suzanne!  Glad it went so well for you today!!Thanks, Linncn! Let me clarify that it went well in a civil difference of opinion sense! Soon to be settled by xrays that should have been more thoroughly reported in the first place. As I was accused of 'spin' today, I'm trying to be straightforward here. We still have no real answers, even though I expected them months ago.

Progression, and we have to immune-suppress. No progression, and we won't yet. What is so hard to understand about that? I think it got through today.

Whether we saw the ped rheum today or not, my daughter is still pain-free and full of energy - that is what is the most important to us! I think Pip is trying to tell that ped rheumy something. He should listen to Pip. She knows A LOT.
Go Pip!
Go Pip!
Go Pip!

Good luck with the X-Rays.
So, when do you think you'll get the results of the x-rays?  And I'm glad your girl is feeling so well. I hope that her xrays show no progression.  It is good to hear that she is still pain free and being a typical 4 year old!! 

As long as there is no progression of damage on the xrays I don't see why you can't hold off on doing immune suppressing meds.  Our rheumy wanted an MRI of Danielle's wrist before we progressed on to immune supressing drugs.  If that MRI looks ok we are not putting on her mtx and keeping her on plaquenil.  However, if it shows otherwise, I am a strong believer in getting Danielle on something to stop or slow down the damage and progression. 

Go with what you feel is the right treatment for your daughter and don't let anyone tell you any differently or try to force you into something. 

That is hilarious about Pip.  LOL. 

I'm supposed to call him in ten days. The xrays are not new - he did them in June, and I assumed they were being compared to some done in Aug. 2006. But it looks like they are just two sets of xrays. For everything he shows me 'bad' on the recent ones, I could point out it is the same on the old ones. You say pot-ay-to, I say pot-ah-to. Nothing appears changed, and we agreed nothing really says compared, either. Except that soft tissue on feet and ankles is within normal limits now. That's BIG to me; um, didn't seem to register elsewhere (Spin Alert, sorry LOL!).

He does say that by the time damage shows up on xrays, it is too late. That is valid, I know. But we did immune-suppress, and it was not a good experience - pneumonia and staph. Those risks outweigh the benefit right now. We need to see progression to take the risk again.

I'm so glad people on this board get that! I'm also glad you get my Pip story - when it came up in the second book, I was literally having trouble reading at all! It's a sign, it's a sign!!!!!     

Hey -

And we used to live in a big blue house!  LOL  I still do that Big Blue Bear sniffing thing when somebody gets all stinky!

Hugs,

Pip

aww... that is good to hear. I hope her x-rays come back in good standing.

Hey... pip & pop are otters and they are the only non-bear that found the winter-berry. Just some FYI's for ya'll.
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