I think at my next RD appointment I am going to ask my RD, if she thinks it would be a good idea for me to try to work. Everyone around me I keep mentioning about try to work, keeps telling me they do not think I would last long or that I should not even attempt it.
It is really getting discouraging to me, because I want to help out more with the bills. I just paid off my last RD's bill today. YAY!! Now I am not going to feel so guilty about leaving him.
I just want to be productive, and me sitting at home and keeping my son "alive" is productive, but ... I am also having a hard time dealing with him not listening to me, because he knows mommy cannot get after him like everyone else does when he is defiant.
I am just tired of sitting home. I want to do something. I want to be a 20-something year old. I want to make our family have less money worries. I mean it would probably make me feel better if I did not have to worry about overdraft fees, car troubles, and have enough money to endulge myself with something like a pretty new shirt or even a hair cut I might not like.
Oh well... damn pred... makes me think too much and too indepth. I have gotten to the point of thinking of how I want my funeral. I want my FUNeral to be FUN!!
Trust me; working everyday is not always great either! I will have to admit though that I think I'd loose my mind at home everyday now. I did it when my kids were small and had lots to do caring for them; but now? I'd quickly become really bored. When I was on vacation earlier this month we came home from the beach a few days easly so I could rest before going back to work. It was really nice; but I'm afraid if I did that every day I'd quickly drive myself crazy! I am kind of use the money I make now though. With my husband and I both brining our own children into this marriage I have a lot of finacial responsibilities that go with that. If I quit work it wouldn't be fair to ask my husband to pay for that. I know I've got lots of days ahead of me in the future where it might not be possible for me to work at all. I guess I better work as much as I can now before that time comes.
I still think some kind of home type work is the ticket for you. If you were to go to work you'd either have to work at night or put your son in day care. Daycare cost a lot! PLUS you'd have to be home before your daughter got home from school or you'd also have her child care expense. PLUS; how would you get there? There are a lot of reason for you to work......and just as many for you not to.
Joonie, do you think you can work? Do the people who tell you you wouldnt last two minutes have ulteria motives (ie keeping you at home to do the house/mum thing).
That said being at home doing the mum thing is the most important thing you can do. Although I'm 42 years young, I'm pretty old fashioned. I think mums should be at home with their kids... yes we all struggle with the bills etc but they'll be leaving home before you know it and only you can teach/show them how to be the adults you'd like them to become.
Is there anything you could do at home (on the computer) that would earn some pennies?
No, they just have been around me for the last few years and have really seen how I have declined.
It is my good days that make me think I can work. Like right now... 20mg of only pred, nothing else and I am mostly pain free. I can bend my knees straight, I can bend my elbows out as straight as they can go. I can do neck rolls again. I can even walk fairly well.
But that is all because of the pred. I do have some dull pain, from the rain and all, but it is managable.
Like when the Humira was working so well for me, I would talk about going back to work. But then a couple of days later, I would rethink it and be reminded by J/RA that I cannot even brush my own hair half the time, what makes me think I can do something continuously for 8 hours?
I would love to have a night job, I am up until 5-6am anyways, why not get paid for it?
Why is the word "fun" in funeral? Always wondered that... funerals are no fun, been to 2 of them in my time. I was made to go.
RA is so up and down it's surprising any of us are able to keep jobs at all. Use this time like right now Joonie to get ahead of a few things around your house. You mentioned several times about how you wanted to get some things done around there but weren't physically able to. Do those things now while you are feeling good. Honestly Joonie; I've seen the pictures of your ankles, Knees and hands: There are a lot of jobs that you would absoluetly not be able to do. You certainly could not do anything that required you to be on your feet for hours on end.....and anything that required you to sit for 8 hours a day would be difficult as well. "A Desk Job" isn't as easy as it sounds. Sitting all days sounds good I know.....but there is some days where I think if I sit in this chair for one more hour I'm going to scream! It's actually very hard on the lower back and legs. This past week has been hard on me.
I'm not trying to talk you out of it.....not for a minute. I'm proud of you for wanting to help your family. I just don't want you to beat yourself up about what you can and can not do.
Keep brain storming. There's got to be something you can come up with that you can do from home. Maybe there's some kind of office around there that might need some type of thing that they would be willing to contract out to a home laborer? I know it sounds weird; but someone might prefer to pay someone to do some data entry type things from home verses take on another fulltime employee. I'm not sure what......just trying to think. I had a friend once who did medical billing from home. It took some training but it paid a lot once she learned how to do it.
Joonie,
You are the person that truly knows your situation. Only you can make an educated decision on if you can work or not. Maybe talk to your RD about it. Question for you? Have you tried getting on SSI or Social Security disability. If you've worked in the past, Social Security disability may be able to kick in from your past wages. If not a lot then SSI. With arthritis, you shouldn't have an issue. I'm currently on Social Security disability because I can't work with the shoulder problems. But as a young child, I was on SSI. Both of these programs don't require you to work and will bring in some extra money for bills into the house.
hi Joonie I'm sortof in the same boat as you. Me and hubby decided when our first son was born that I'd stay home with the kids even though we'd only have one paycheck so that someone else wouldn't be raising our kids. That said after my youngest was born when he was 3 months old and my oldest was almost 3years old, I had an all over flare that nailed me so bad that I went down to 105 lbs and had to relearn how to walk. Now ten years later and able to walk again I have family members constantly asking me when I'm gonna go back to work now that I'm better.(yeah right) . I fight with this all the time because for me just to get thru my day is incrediblly exhausting. My RD has even told me that I'm not to do more than I can handle,as I can't afford another flare like that one. I try to keep busy by volunteering in the kids school so the school benefits and i can decide what I can and cannot handle.How about babysitting? Maybe not babies but toddlers or older kids after school. Just an idea. Plus it would give your son someone to play with.
Just an idea.