Hands and feet | Arthritis Information

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Hi All,   Has anyone else had tingling in the hands and feet?

LibethYes, but both my rheumy & i put it to my disc problems not my PMR. How
many of us have disc problems?
pgrpgr555,

I have disc problems (protruding, bulging discs) and mild spinal stenosis, but no tingling hands and feet thank goodness.

Reni

Hi Libeth,

Sorry, I haven't had any tingling either.  I have had my hands/fingers fall asleep (that wierd numb, tingling feeling) for no reason when I'm resting.  If I shake them a bit and make a fist a few times it goes away. 

I also have disc problems, MRI showed mild to moderate spinal stenosis in some areas.  We thought that is where the sciatica came from but the pain went away with Pred.

You should mention it to your doc.

Take care....Kathy

 

 

No, I haven't had that problem.  

Several years ago my feet hurt and the people on the hypo-thyroid board said to take Selenium for a month.  My feet had hurt like they had tendinitis about four years.  They did quit hurting after a month on Selenium.  I still take it because if I don't I get a pulling feeling across the back of my shoulders.

This is a different type feeling I get in my arms from the PMR.

My rheumy thought my feet problem was also PMR.  I don't I think it was my thyroid.  And, I'm not convinced that PMR is not the by product of my hypothyroidism.  There are many numbers involved with the thyroid and most doctors won't check them all.

My sister takes selenium, she swears by it.  She doesn't have any major illnesses but says it makes her feel better in general. 

I asked my doc about taking it and she said people in the Northwest don't need extra because we have plenty in the soil up here.  That is if you buy only locally grown produce.

I find that the docs don't want to run any more tests than they have to.  Probably due to the insurance companies.  It's crazy how sometimes we have to figure out what is wrong with us ourselves!

I hope you find out what's causing the tingling and feel better soon!

 

Yes, tingling hands sometimes, sharp prickling in my feet, and i get this weird thing in one foot where it feels like it has suddenly been dipped into very warm (nice) water. Like wearing a warm sock. I believe all this sort of thing is called peripheral neuritis (i think), and my doc - who didn't call it that - always says it's coming from my back or neck. I did have surgery for prolapaed disc L4/5 years and years ago. Whether that is relevant now or not I don't know.

Hi Libeth and all. I have painful tingling in last three fingers on my hands. Especially the left one and it happens while using my hands.. not at rest. The Dr touched a point above my elbow and instantly the tingling pain was worse. He said it was a fat deposit pressing on a nerve caused by fat distribtion, a side effect of pred. Luckily I do not have it in my feet. I had thought I may have carpal tunnel syndrome but apparently that effectes the thumb and first finger.

 I too have had lower back disc prolapse and had the nerves cut after many years of pain and trialing other remedies including cortisone injections that did not give any relief. There seems to be a lot of us with prior or ongoing back problems.... Is there any connection here with PMR????

That was what I was wondering Lynn
pgr

This is all very interesting. Ongoing back problems...could be???

I suffered from back pain for 20 years, immediately after my first child was born by C-section.  I was still in the hospital.  When it first started I couldn't lay down for more than 15 minutes at a time. As the years went by I could get up to two hours a sleep at a time then would have to sit up for a while and wait for my spine to relax. I went to many doctors thru the years and they all told me I had mild arthritic spurring in my back and was told to take Motrin/Ibuprofen. I probaby took a truckload of Ibuprofen over the last 20 years and finally developed an ulcer in my esophogus. Then my gastro doc said NO ibuprofen, aspirin or Naproxin, go figure!

I've wondered if the PMR is drug induced in my case from taking so many NSAIDS (<--is that what they call them?) over such a long time period.

Just thinking out loud!

 

Kathy,

That's an interesting theory about all the meds you took maybe causing PMR. I, too, took a ton of different NSAIDS and prescription NSAIDS for my back problem. I had two mildly herniated discs back in '97. I couldn't get any relief except by standing up, but who can sleep standing up? I went for 2 months on about 3-4 hours of interrupted sleep each night. Not at all fun.The worst pain was when I lay down; felt like my hip bones were being squished together. When the PMR started, I thought it was just an extension of the ongoing back problems. My PCP says I have ongoing inflammation in the area where the most painful disc herniation was, tho' the docs say that localized inflammation of that sort does not affect the sed rate. Aren't we all a mess? Just kidding. I just love that quote you have at the bottom of your posts, so I am thankful to be alive. The alternative to all this is far worse!!

We have pretty much settled on my husband's problems with PMR being caused by the Statin drugs he took from Apr. 1997 thru Mar. of 1999.  He had a bout with transglobal amnesia which is one of the side effects of statin drugs.  (He had gone to the post office to mail a letter and could not remember how to get home.  It was a 5 block trip) The statin drugs also cause extreme muscle aches and pains and can cause deterioration of said muscles.  Most doctors contribute the aches and pains to old age but alot of them are caused by the medicines.

 He had never been on any medication of any kind until the statin drugs.  It has been down hill from that point.  Mayo has listed statin drugs on his list of allergies along with cipro and he had developed a toxcitity to the prednisone which they are weaning him from at a very slow rate.  He is at 15 mg and will remain there until he goes back to the clinic the 18th of this month. 

It has been said that if the doctors don't kill you the drugs will!  We have fired the original doctor who was not thrilled about giving us a referral to Mayo and have a new general doctor who is working well with the Mayo clinic.  Hubby's bleeding ulcer caused by the pred is healed and his hemoglobin is returning to almost normal.  He is getting his energy back, has been able to lose the cane most of the time, his tummy is slowly going down the more active he is and his character lines are  returning.  He still waddles some but not like he used to. He is taking tylenol a few times a day which must mean he still has some aches and pains.  He is 71 and has had this PMR and temporal arteritis since Nov. of 2005.  Hopefully our bumps in the road will smooth out. I can  not even hazzard a guess as to the pain everyone is going thru but I feel for each and everyone of you.  Also for your families.  I wish you all the best.

Cap

Cap,

Wow! It hurts my heart when I hear stories like your husband's. I am glad he is getting better. Just wish, as I'm sure you and he do, that it would go quicker so he can enjoy life again without so many hassles. Take care.

Reni
Your replies have been very informative. I suffered with every one of you at
your stories. I too, have wondered if other back problems could contribute
to PMR. I was diagnosed, via x-ray, with arthitis of the back some years
ago. My rheumy also had x-rays done in April of this year, the results show
degenerative disc disease of the lower lumbar spine. Double trouble it
seems. Before I went on predisone, I was dealing with the pain with OTC
pain killers. The predisone helps with the misery of the PMR but does
nothing for the back. The rheumy put me on tramadol with does help,
some, with the back. Today the dark tunnel seems very long, and the light
at the end is very dim. So the answer is that most of us have had disc problems. I was actually
wondering about the connection btw disc and PMR, not nsaid, although that
seems to be another question...
I also didn't get treatment or dx for a log time because I thought it was more
back trouble.

I just wonder how we get people to start the research...

I never took any NSAIDs for my disc problem. It was a back injury (caused by turbulence in a small plane flying from Adelaide to Alice Springs). Then again, I DID get a hideous virus while in Darwin and came back to New Zeland with a fever that hung around on and off for months and the big-shot infectious diseases experts never did work out what it was. However, all that was in 1990.

More latterly, I did have an anti-tetanus vaccination in August last year. I can't say I got PMR straight after that, but in September I had a nasty cold and cough, in October a monstrous period from hell, and by November I had health problems galore  - all new stuff, but all put down to menopause, ie very heavy bleeds, anaemia, low B12, vaginal strepB, shocking fatigue and so on. All that was addressed and treated and I spent January of this year taking it easy, thinking I was recovering from all that, but by February I was getting hip bursitis and the upper arm pains, and that was the beginning of my PMR. Oh Chico, What a road you have travelled! I really hope this woman & her fly
is satiated soon and you heal and are truly well. So when we come to ride
our bike across NZ in 4 years you will be wel too and we can get our animal
fix by visiting with yours??

I do still see that so far most of us have back/disc injuries, whatever the
original source of them. I know it is not scientific or even remotely
something to start research on, just wonder if somehow there is a
connection.
Take care
pgrPgr,

For several years, every time I went to the dr. to "complain" about some new or old ache and pain, they kept telling me, "Welcome to old age." My goodness, I was late 40's, early 50's, and I got so disgusted hearing that over and over again. I finally told one doc, "Don't give me that 'older age' speech; I'm not that old, and this just isn't right. 50 is NOT supposed to be like this." We should compile all our notes sometime and see if we can make sense of any of this. I wish someone had written a book on "old" age, and what is normal and not normal in the way of aches and pains. Sometimes I wonder if I'm being too much of a wimp and expecting too much of my body, and then again, I think I should be doing better. I do know our baby boomer bunch expects to be able to do more than our parents did at our age. Oh, well. Just my occasional rambling taking over here.

A new week ahead and new things to do. Hope you all have a good one.

Reni
I am with you Reni, I really don't believe 50 should be old & don't like the its
just aging answer... call it denial but!
My mom was 82 and quickly losing her memory. The drs kept saying it was
normal, blaming depression etc... was really the impact of her high blood
pressure. I am with you that we can't take the aging answer!
If we were not in good shaoe that would be one thing, but look at how many
of us have been very active & all of a sudden been hit with this!
We just need to stand up for ourselves and keep exploring the answers
(questions?)
pgr
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