My temp. is always around 97.Right now I feel like I have a fever but the thermometer said 97.7.Any ideas?
Mike I am taking anti-inflamatories now even though they are killing my stomach.I am up late tonight cause I hurt so bad in my ribs.My jaws hurt too.Pain sure does travel.Both my shoulders hurt so sleeping on my side is painful.I am also so worried about what my body is doing.No answers make it so hard.I haven't been to the gym since Sat.And I am eating more than I should.That just feeds my depression.Not to mention worrying about my girls.You know,I have thought about writing a book about our family.Things have happened to us that is hard to believe.And the bad stuff just keeps coming.The only thing about writing a book about hardship is there is usually a happy ending or some type of lesson learned.Right now I see no happy endings and I still ask God why does my family have to endure so much pain?
Well I am rambling on and on.I will probably be up all night.Tom. we hear from the neurologist about Carrie's mri and if we need to do another eeg to check for seizure activity. I hope you all don't mind me coming here and talking about other things than ra.I really don't want to sound all pitiful and make anyone think I am just looking for attention.I honestly have no one to talk to about these things.My family has never been supportive.Carrie has had 11 brain surgeries.My parents never came to see her once and my husbands family only came a few times.I think people back away from things they don't understand.I frustrates me so much that to this day our famalies still don't understand what our girls go through.I don't dare mention my problems to my family.Back when I lived at home my mom and everyone else just thought of me as a complainer cause I always felt sick or hurt not to mention I quit eating and had a nervous breakdown.Not once did my parents do anything to help me.So I guess I shouldn't be surprisd they are not there for my children.I don't need there attention anymore but when you have a 14 yr. old that is so depressed and afraid to be around people except her cousins,it angers me so much that my family doesn't come around to support her.They know she is lonley and afraid to go out around people especially children but yet she is ignored.I just don't understand how family can turn there backs on a special needs child that way.Me,my husband and my daugther are all she has in this world.And I am with her almost all the time.I need to be healthy.I need things to be ok. I am glad I have found this site.Now you may not be so glad,I carry alot of baggage with me.Our family tends to overwhelm people due to all that is going on. Thanks for taking the time to read this long sob story.But it is my life and I am trying to except it.
Keep your head up and keep posting.. try writing a book.. its memiors, doesnt need to have a lesson or a happy ending!!! it may help keep things in perspective! Sheila- im so sorry to hear everything you have to go through.Things happen for reasons and it all makes us stronger. Im glad you feel that you can trust all of us to share your problems with us. Just know that we are all always here for you when you need a sholder to cry on or just to vent. Take care and you are in my prayers
shannon Sheila~you come here and you unload all you want Sweetie. We're here to support you....RA related or not. That's what friends are for...and we are your friends. I will continue to keep you and your family in my prayers. Much Love; Lovie Sheila, can you contact Habitat for Humanity? In our area they sometimes will help with necessary renovations for families who own their homes but don't have $$. Maybe if you could at least get a few things fixed up you would feel better. Another thought, could you contact a boy scout troop. often boys working on the eagle badge pick out a big project like helping a family with maintence of a house. I understand where you are. We came soooooo close to forclosure several times. We bought our house on a land contract, the guy held the mortgage, and because of that we couldn't get a loan to make repairs. Now our front porch is rotting with big holes in the roof. We unfortunately make too much %% for habitat, but are still looking to see if we can find some kind of assistance, even just someone to look at it with a fresh eye and help us plan. Good Luck.
Sometimes we wonder why God puts us through the trial that he does, and
boy do we all have some doosies at times. But you know what they
say it is for a reason and does make us stronger in the end. And
with faith in him we can get through anything .
I know that achey feeling your temp. might be normal right now but you
might be working up towards a temp. So try and keep yourself
cool. I'm so sorry to here about your daughter I will keep you
guys in my prayers.
As for your house, sounds like you guys need to get on Extreme Makeover
Home Edition, that would be just perrrrrrfect for you
Take care,
Mina
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