i feel like im always complaining | Arthritis Information

 

Its sat night i have nothing to do, my joints hurt my friends want to go to a party and i dont want. I dont like parties in the first place, i dont drink because of gluten, medicine and because most of the time i dont want to. I dont like being in a crowdy smelly hot room and most of all its ALL standing and you have to walk a bit to get there.....

I live on the 5th floor, a bunch of my friends live across campus, too much walking and stairs, they also live on a high floor...... im not on humira right now and havnt switched to anything yet so hopefully thigns will get better, but im not so hopefull for the meds cause nothing has helped for the past like 6 years. my doc is begining to question the JRA again just like they all do after ive been with them for awhile and nothing has worked....its always well maybe its fibro.... except i have a lot of joint specific pain and at one point did have the bloodwork to proove it.

Im going home from school and to the doc this weekend so hopefully somthng with be straigtened out.

what do you guys think though not that i WANT lupus, but ive got a bunch of wierd things like mouth sores, bladder issues, scalp wierd pain, and then my rash came back as it could MAYBE be lupus.... do you think if i was misdiagnosed my joints could be hurting cause the meds just arent right? like i dunno i dont want lupus at all of course im just trying to think cause so many things mathc but its hard to just think and not be ahypochondriac

my friends dont get it. and of course they dont, but its bugging me more they are always complaining about the stairs and im like HUMMMMM YEA! my friend has IBD and is always complaining but makes my JRA stuff sound like a not big deal, just cause im most likely not gonna end up in the hospital because im gonna hurt doesnt mean its not awfull......

ahhhhh yea im tired, bit homesick actually-i havnt liked this year as much as last so far. and my joints hurt and feel very swollen although they dont look it, but they feel puffy hard to move and painfull..... BLAH Dear LittleMermaid, I am sorry to hear that you are having such a hard time. I don't know about misdiagnosis, but it is definately worth looking into. I can only imagine how hard it must be to be in college and have to deal with this. You are smart to listen to your body and stay in when you are not feeling well. I hope you are able to find some type of treatment that helps you soon. Love, Juliah

Well, all I can say is that I hadn't thought of you as being a complainer.  You have real stuff you're going through.  Talking about it doesn't qualify as complaining.  Especially here.

It's gotta be difficult, the posistion you're in right now.  Maybe you should get another opinion about your diagnosis.  The peace of mind you'll get from that will be worth it. As far as the rest, hang in there.  It'll get better. 

I understand what you are going thru, LittleMermaid. I did not do much of anything that people I went to school with were doing. Heck I did not even drink until I was 21. Yeah... I am a sad case... huh?

Much huggs! Hope you feel better soon!

I hope you do not have it, but I think someone told me the treatment for lupus was the same as RA.

yea i guess all my not positive thoughts come out here since i dont want to tell them to my friends at school cause no one likes a complainer......its good to get them out. My joints still hurt awfull and worse, but im feeling a bit more happy which is good. my friend told me not to worry about the constant parting and that things will get back more to nromal soon, i hope she is right. my friends here are amazing they are always thinkng about me, maybe not with my joints but always making sure im ok, i had a hard year last year with a friend passing away whilei was at school and just bringing back memories about my dad sooooo they really are amazing, just wish icould make them understand the JRA stuff more, they dont really even realize that it hurts....one of my friends was liek you could have gotten a ground floor room before? HOW you are fine. im like i look fine, i try to act fine, but im not always.......

sooo yeaDear LittleMermaid, It sounds like you have a good group of friends who really, truly care about you. That isn't a coincidence. People who are surrounded by wonderful, caring people, tend to BE wonderful, caring people. It's great that you are able to come to this forum and post what is really going on with you. Like you, I don't like to complain to my friends and family about what I'm going through. No matter what anyone says, no one likes to hear someone who complains about their health all the time. It's different on here. Since we are all bonded by the common purpose of having RA, there is a sort of knowing that we are all free to tell about even our worst days, without the fear of feeling as though we are "complaining". Keep posting and let us know how you are doing. Love and hugs, Juliah 

dear LM, now it seems like it would be fun to be invited to a party!! tonight. I can see it is hard for you to 'walk it' though. You are right those dumb, tight smelly, little rooms with 'wine breath' and stale beer smell isn't the greatest. I remember those days. My husband and I didn't drink much alcohol in college, couldn't afford it!, so one

I don't blame you for being disappointed at your dx and then you have to add another 'thing' like lupus. Oh my gosh, I know you will feel better in the morning. good night and love , Lyndahaha yea, i dont drink like at all maybe a sip sooooo they arent much fun for me. i try somtimes to make ti fun but today wasnt one of those days.

its ok things will be better. i know it, i love my riends that are awesome, just yea somtimes you need to get this stuff out cause i hate complaing to them

i hate dx stuff being in limbo ive been dx ith JRA for 12 years and now they are like HMMMM maybe its somthing else now...
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