UPSET & OUT OF IDEAS!!! | Arthritis Information

Share
 

Hi everyone...I need some ideas>

I went to pick up my humira syringes last week and was quite astonished when they asked me for 6.00. My card my rheumy gave from Abbott manufacturers that paid for my co-pay for 6 months is through. Right when the med was starting to work. My morning stiffness was gone and the swelling is down and my lab looked good. I still have pain especially in my hip (have bursitis) and feet but my energy level was getting back to normal.

I hate to ask this but.....

Does anyone know of any other options for some financial aid. I already pay almost 0.00 for co-pay on pills I have to take and we can't afford that. We are so behind on our bills and I am so stressed My hubby was wanting to take a loan out against our house but we only have 4 more years and it will be paid for.

I am so frustrated and feel so down. It's so frustrating. This is one expensive disease to fight and it's not right that they can charge so much for two shots. I have called the PPA (partnership for America) but that is for uninsured people. We have insurance that we pay over 0.00 for out of hubby's ck  and boss pays other half. My hubbie makes about ,000.00 a year but with two kids and a mortgage and trying to have the basics like electricity, phone, food it doesn't go far. I am so fed up and thinking of just going off all my meds and see what happens. Can't afford to be healthy. Something's wrong there. HELP!

CinDee,

I wish I had some wisdom or another avenue for you, but I can only offer support. The cost of RA is astronomical and there are many people that are n your same boat. Keep trying and calling, e-mailing, or knocking on doors if thats what it takes. There has to be another avenue open for you to reciev the medication you need. I hope you carefully weigh any choices about stopping. Can your Rheumy help out in any way like a phone call or a letter?

I am sure someone will have some advice for you soon. I just wanted to let you know your not alone tonight.

Jay

Thanks Jay,

I haven't called rheumy yet. I just haven't "felt" like it. I just went to see him a couple weeks ago. Everything was great....then BOOM, it hits the fan. I was supposed to take my shot on Sunday and I feel like crap and on top of that the last few days I have had a sore throat, ear ache and headache, so I wouldn't take the shot anyway.

Thanks for being so kind.

http://www.needymeds.com/

http://www.rxassist.org/

http://www.rheumatology.org/public/acrast.asp


CinDee, I hope one of those links can help you!! Check them out when you get the chance please!

WOW !!!

Thanks Katie, I'm on my way to ck them out now.

No problem!!! I know theres more out there, but those seemed the best choices for now! Geez, Cindee, that must be so stressful, just what you need for your RA this kind of stress. There has to be something out that that can assist you to get through this. It is so exciting when a med starts to work and then not to be able to continue would be just devastating.  I so hope someone can help you, darl and I count my blessing being in AU as my prescriptions are on , which by the way is still adds up for me with all the meds I am on and being a single parent who can't work but still I feel blessed compared to your situation. Keep hopeful something else will come up, sweetie.

also contact the humira help line and see what they have to recommend for people inyou situation.  You would hope they have some ideas since you can't be the only one in this situation

 

Cindee hunny it'll be alright ok.  Call Humira they are wonderfull in helping finding ways to assist patients that are taking Humira.  There are many different options that they can give you.

I have been there, I am so sorry you are going through this , it is heartwrenching! Call Humira!

jode

 

 Bless your heart Cindee, I know that is so frustrating. Hopefully you can get some help soon.

I was very lucky that my insurance covered my bioloigics with just a small co-pay every month. (Small compared to the price of the meds anyway!) If it hadn't done that there is no way I could have taken them.

Where is your coverage coming from? Is your insurance covering a portion of the meds? Although what they asked you to pay is a lot more than I could dish out every month....it's still alot less than the actual price of the meds. Hopefully Humira will cover the difference there and you can continue taking a medication that's actually working for you. It's so difficult to find something that actually works and then you have to worry about stuff like this. It's horrible.

Hang in there. There's a solution out there.....you've just got to track it down. Don't give up.

You might ask your rheumy when mine prescribed humira last month the first thing he said to me if i couldn't afford with my insurance to let him know and he could set something up for me to help with the cost. What everyone else told you was right HUMIRA can get you grants that help pay for their product. best wishes to you and your family.I use the Healthwell Foundation. They pick up my copays for the
Remicade. I have used them for other RA drugs in the past. If you go to
their website you can read what they cover. They have been great for me!
Mr. Dr's office recommended them and filled out the paperwork.

Thanks everyone for you kind words of hope and encouragement. I have been so downhearted that I have made myself sick.

Love: I am insured w/Health Alliance through hubby's work. They pay 80%. We pay 20%. Which is 6.00 and some odd cents.

I have just finished with a card I got from my dr. from Abbott Man. which makes Humira. I will call them tomorrow. I just assumed that since I have used that card for 6months and they paid my copay that I wouldn't be eligible again. It's worth a shot. I will call Humira and Rheumy tomorrow to see what can be done if anything. This morning I woke up with a sore throat, ear ache and headache so I didn't do anything but watch tv and sleep.

Thanks again you guys ROCK!

Hi CindyDee, I have come across the same problem that you have. I took it for 3 months and then insurance stopped payment, and also imformed me they had made a mistake and DO NOT pay for any RA medications! I have been raising holly crap for 1 1/2 years ( sorry ) I thought I was the only one with a Stupid insurance Co. I'm going to try the sites suggested here, but like you, with others I have tried, they couldn't do anything because we had insurance(even though no coverage for RA med) and they said my husband's income was too high! Yea, right! With this kind of co-pay, are you filing on Major Medical or do you have a drug charge co-pay? Please let us know if you find any help. Sorry,I didn't mean to make your day any worse, just thought I would let you know you weren't alone!  I hope you feel better.God Bless, Lil SisterYou know, as a last resort you might want to consider switching to an infusion medication. Like Remicade or Rituxan. I'd hate to see anyone stop a med that's working for them, HOWEVER......a lot of insurance companies view things like that as a "procedure preformed in the doctors office" and so they only charge you whatever your co-pay is. It's just an idea! And as I said, a last resort. You certainly don't want to willingly stop a medication that's working for you, unless you ABSOLUTELY have to.

Hi Katie....well I think it was starting to help but not quite sure. Dr. said lab work was good but I still have pain but that's probably because of damage already done. My dr. did say at my last visit that I could try enbrel or remicade infusions. I was the one who said I wanted to stick with the humira for 3 more months to see if it was working for sure. I will have to ck my coverage on the infusions. If it is done in the office, I may have to only pay .00 copay. That would be great! Also, insurance co sent a postcard to me about paying a script instead of if it's generic and I go to Walmart. I tried to get on the website a couple of times and have an error come up. Maybe the site was too busy. Will keep trying.

BTW....thanks for sneezing your cooties all over....I picked them up too. LOL

LOL well you know, I'm a giver. I had to share. 

Hi CinDee, I just wanted to offer my emotional support. You got s lot of great leads from all the wonderful people here.

I don't have anything to add to the suggestions you already got, as I am not at that place yet.(after almost 2 years, I am still not on anything for RA.) My rheumy is currently finding out from the co. that makes Orencia, if it is okay for me to take. So I continue to wait.

But I'm keeping track of all the great  suggestions, as I know my time will come eventually.(or maybe they will never treat the RA; just keep giving me pain meds

Good Luck, I hope one of the agencies suggested will be able to help you!

Hugs, Nini

 

Nini: thanks for the reply. It was very sweet of you to offer your emotional support. I wish you good luck too. I will keep you all posted once I get it all figured out. I really do appreciate all your kind works and advice. This web site is  wonderful support and everyone is so helpful and nice.

THanks again everyone!
Copyright ArthritisInsight.com