I have PMR and was diagnoised on June 1, 2005. I probably have had PMR for a much longer time before the Rhemutologist made the diagnoises. I have been on Predinsone since that time. I have gone up and down from 45 mg daily to 2 mg everyother day. Now I am bavback up to 15 mg daily and still having a lot of pain in hips, thighs, shoulders and neck. I have heard of a No Sugar Diet that seems to be helping some people. Do any of you know where I can get more information about this diet? I may want to try it to see if it will help with the aches and pains I'lm having now. Thanks for any information you may be able to give me. Have a great day. Joy
Hi Joy!
There is a similar Canadian forum. Visit http://www.arthritis.ca/open%20forum/boards/polymyalgia/defa ult.asp?s=1 and you can read about sugar free diet
Ragnar
Hi Joy, I started the no sugar diet and it has helped me so much, I don't want to go back to having sugar. I was tired all the time and wanted to sleep. I felt I was sleeping my life away. It start for me in Feb of this year. I slept the whole month, then I couldn't lift the covers to get out of bed my left shoulder hurt so bad. I have had problems with my right side since a work accident in 97. I am a chronic pain person with pain in my neck, right shoulder and knee from this accident. Long workers comp story. After suffering a couple of months and getting worse, I called my neuro Dr who sent me to a Rhumy. Right away he was doing the blood test for PMR and a week later I was on 10mg of pred. I am now down to 5mg and sugar free and doing good. I still have pain in my left shoulder from the PMR, my neck hurts all the time from my accident. I have Ultrum to take for pain. I also am on Cymbalta for depression. The Dr just changed that. I was on Prozac from 2000 till the PMR and I felt I was getting worse.
As far as the sugar free diet, I am eating vegetables, fruit, and meat, mostly chicken. I have some carbs, but really try and watch it. Before the PMR, I found the drink Propel and was hooked on it, I was drinking way too much each day. Now I drink tea with no sugar and water. I am not a pop drinker. I have now given up the Propel, but it sure gave me energy. I was also a sweet eater. I loved cakes and cookies, ice cream, you name it. Hope this helps, if not, I will try and answer any questions. Somewhere on one of these forms they listed a place on the web about the sugar free diet.
Geri
Hi Joy,Thank so much for your replies. I am trying to get off as much sugar as possible. I know I eat way too many sweets and that can't be good for anyone. Whatever will help get rid of the pain sounds good to me. I'm 71 yrs and caregiver for my husband so I need all the energy I can get. I get tired so quickly now and that just isln't working for either one of us. Thanks again.
Joy
Also beware of sugar in disguise: High Fructose Corn Syrup. Lots of processed foods have it and it is just way of disguising how much sugar is in our food. Google it and see. I found good reading at:
http://www.westonaprice.org/motherlinda/cornsyrup.html
http://www.westonaprice.org/modernfood/highfructose.html