Remicade’s Working!! | Arthritis Information

Hey all, I think after all of this time the Rem is finally working. Started in April!!I'm not even 'chomping at the bit' for Friday to come, I'll go of course, but I don't feel really anxious. Took a 1/2 mg of prednisone today which isn't bad. So, everyone who is considering this super drug please know it has helped me a lot! Lynda

So very happy for you Lynda. If I could I would do a happy dance, but I think I would come disassembled! Love ya, shel

It's working for me too, but I waited too long to start. My progression was so slow it was easy to ignore the damage. The last time I saw the dr., she said I'm switching you to every 8 weeks because I know you don't like driving up here every 6 weeks. I said ok?? But by the next infusion I was miserable a week out, it happened again last time, so I asked to be on every 7 weeks. Guess that's as good a way as any to know if something is working.
< =text/>_popupControl(); That is fantastic!!! I am so very happy for you!!!!! Sometimes...it just takes time for this stuff to kick in.

Lindy...I find the same things fascinating about remicade that you do too. I like the fact that the dosage can be played with like that.
Lynda,

So glad the Remicade is helping you! I, too, have found it to be a wonderful med. Like you, too, I recently had intractable flare pain (just 8 days after my infusion) that had to be treated with methylprednisolone. That stuff works so fast...amazing. The good part is that one week later I am still doing fantastic. Of course, I am staying up too late watching the playoffs on TV. Go Tribe!!!

Molly Bee who thinks Franklin Gutierrez is just adorable!
Congrats!

Pip
Lynda ~

So glad to hear it is working for you!! Flareups are a reminder that there is a devil!!! Annoying bugger!
Great news Lynda! YAY!!!Glad it's worked for you, Lynda!So happy to hear it! That's fantastic news Lynda!
Please everyone, stay brave. We can fight this 'stuff'!!

Love ya, Lynda
Glad for you hope it keeps working. I had three Remicade treatments without seeing a difference. The doc said instead of every month lets go every two months but I had to call and get in after four weeks. I had my fourth treatment about three weeks ago and also started on Celebrex again no difference until a few days ago I do seem to be getting better. Not sure if it's the Remicade or Celebrex or both. I think time will tell because I have had false improvements before that lasted only several days then as soon as I became a bit more active such as taking a simple walk down our lane the pain in the ankles got much worse or cleaning my garage the hands got much worse. So for me Im still not sure if the meds Remicade, Celebrex, Pred, MTX, PlQ, are working or the pain meds Tremadol 50mg four times per day which just cover up the pain are working better than before. Only bad thing is now I have heartburn really bad that comes and goes I am asking the doc for Protonix or something like that. Anyone having stomach problems from the RA meds? I would like to know I have had on and off diarrhea ever since the RA started and before taking the RA meds went to doc had lots of test done can not find the cause. It comes on strong last a week or so then may not return for a month then back for a day or so then back to a few weeks without then back for a day or a week IT'S Crazy not knowing what to eat when it might happen and it's so sudden it almost drops you to your knees. It feels like cramp to have RA and sometimes IT IS CRAP Im looking for answers here people. Any info would be helpful Thanks a bunch. Bearbeall
< =text/>_popupControl(); Hi Billy...nice to see you around again. Well..I am glad that you are feeling better and hope it is a long term feeling better.

Your question can be a little hard to answer. It could be that the remicade has finally just kicked and really started to do its job like it is supposed to. It can take 3-6 infusions for the med to build up in your system and become effective. I do have to question tho that if you are STILL taking 50 mg of tramadol 3-4 times a day if the remicade really is working. Do you know if they raised your dose of remicade when you had your last infusion? Usually they raise the dose at the 4th infusion.

It could also be that adding celebrex also contributed to you starting to feeling better since it is an anti inflammatory. The only way to really tell...is to stop using the celebrex. Not sure if that is a good idea. You might want to call your doc and tell them what you have told us and then they can tell you whether or not they think it is the celebrex or just that the remicade is finally working.

Yeah...the meds can cause stomach issues. Many of us here have them especially if you are on mtx or an NSAID. Pred can also be heck on the stomach. I have protonix to take when I am on pred and it is tearing up my stomach. I like protonix because it stops the problem before it even starts. Mtx can cause the diarhhea. Do you take the mtx in pills or inject? How high is the dose of your mtx?

Hope that helped you out!
TODAY THE RA PAIN RETURNS AS BAD EVER ALONG WITH VERY SWOLLEN LEGS AND FEET. BACK TO POPPING PAIN PILLS TO GET THROUGH THE WORK WEEK FOUR MORE FOURTEEN HOUR EVENING TO GO. Congratulations Lynda, a huge accomplishment. Take care~~Cathy
Congrats Lynda!!!!
Love ya

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