OT - 10-22-07 Manic Monday! | Arthritis Information

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IT'S JUST ANOTHER MANIC MONDAY!!!!!! I WISH IT WERE A SUNDAY........CAUSE THATS MY FUN DAY!!!

 

I'm in a better mood this AM. Of course, it could be due to a lack of sleep, or the swelling at the base of my neck pushing on my brain. WHO KNOWS!

I'm too tired to drive the 45 min home, I'd wreck the car. So I'm going over to the hospital to nap a bit. I called Kevin to try to get him to fill in on audit tonight, so that I ACTUALLY have two days off. He hasn't called back yet though. My neck is just soooo bad right now. And the stupid chair that I had to sleep on at the hospital has already taken its toll on my hips and elbows and feet and such. NOT a comfy bed, trust me.

Anyone's neck ever hurt so bad that it litterally runs up into your ear?? The whole side of my head hurts, so I'm starting to not be able to tell if it's like.....ear infection related (I am really stuffy right now) or if its just my neck. I can't tell!!

Have a good morning..I am off to play some addicting Pogo games

 

I feel like I just rolled down Niagra Falls in a barrell. Nice image, eh?

Justin is doing much better already. No idea how long he's in for. He does have a hernia, which isn't helping. I think they do some more CT scans today. Lets hope they come out looking good!!!

Morning all.

I love pogo.

I need to google on how to make a pumpkin roll.  I hate pumpkin pie but love pumpkin rolls.  Weird I know.  Usually my SIL makes mine each yr but since I moved to KY I guess I gotta make my own dang it.

I hope Justin's CT scans come back good Katie.

Wow.  The Bangles.  Walk like an Egyptian.  They used to say that they were the next "Beatles" if you can believe that.  That one girl that always did that annoying open your eyes really wide and look to the side thing.  You know she was always thinking...I'm so foxy....

Katie, YES!!  My neck has hurt that bad. bad enough to include my teeth and give me such a killer headache that to just move my eyes was extremely painful.  Still get them from time to time.   Hope yours goes away soon, the only thng that will evr help mine is sleep.  Unless you wake up in the night with one.  Then it's Tylenol PM to make you crash again.

Shannon...yes.  Do post pics.  You're one of the few that I haven't seen yet.

Yes I know Link...there are reasons for that...Well mostly that i dont have many of me lol I'll see what ive got [QUOTE=arriscolwell] ...Justin and I have been hardcore CRAVING pumpkin pie! [/QUOTE] I am not too handy with pie crust these days, but as I type this there are two pumpkin cheesecakes in the oven and the house smells wonderfully wonderful.

The weather has taken a turn round the corner into autumn and there is a wind advisory necessitating an early morning in the garden to harvest herbs, tomatoes, eggplant, peppers and the largest of the pumpkins and the last watermelon.

There is a container of chicken broth in the freezer and enough pumpkin puree left for pumpkin soup for dinner... ... ... Celena, you can get it free for 2 weeks, ya dont even have to put credit card info for it....yea its gonna suck after the 2 weeks are done, the game im addicted to (thanks to Katie) is ONLY for club members...thats how they get you sucked in < =text/>_popupControl(); Hi everyone...hope everyone is having a good day and if started out icky hope it got better. 

Nope, can't say that I have had that neck pain Katie.  Sorry it is making you miserable again. 

It is a cold damp day up here...blech.  I have been pretty much in the bed today resting.  I have also lost my voice.  Danny called our PCP for something today and when I answered the phone the doc was like you just sound great!  I'm all thanks bunches!!  I told him that I was coming to see him later in the week (he is off on Tuesdays) about it...and he asked me a bunch of questions and said don't bother coming in and wasting your money on a co-pay you have laryngitis and it is viral you have to let it run it's course.  OH JUST PEACHY KEEN!!!  Soooo for the next 10-12 days...I have no voice!  And I get to rest even more!!!  ARGH

Yeah Shannon....some pics of you would be nice!!! 

Oh well....I am getting tired AGAIN!!  I have been cat napping on and off all day...15 minutes here...20 minutes there...so I am off to my bed again!

Katie sorry to hear about Justin. Hope everything comes out ok. Much hugs!

I am much better today. I actually could get outta bed on the first try. Can make a semi-closed fist on right hand, fingers no longer swelled. Knees are soft swell again, and all it took was to take 20mg of pred yesterday. But my right hip is not hurting, but I still have the twitching going on. It is even in my knee the twitching. My toe feels better.

So... today is MUCH better. I guess it was this rain we are suppose to get that messed me up so bad. I hate rain, but some of the counties around us are still in drought.... so they need the rain. I am not sure if we are in drought still or not. Have not heard anything about it. What a good resident I am... not even knowing if my county is in drought

Liz, I LOVE getting laryngitis.  Weird?  maybe.  Fun?  Definetly.

I dunno Katie, maybe he has a BIG GREEN SNOT!!!YOU SUCK! 

hahaha i had to say it 

Glad Justin is home!!!!  Glad that he's feeling better..no that boy better get on some meds to prevent this!!!

YAY!!!  It's nice to see your happy face Shannon!!!  I remember being so young!!  Well, sort of.

< =text/>_popupControl(); Shannon!!  So pretty!! Sooooooooo young!!!! 

I am glad that Justin is doing better and is at home to finish his recovery from this.  I am glad that you are home so you can get some comfortable sleep and rest time also.  I bet the kitties were glad to see you guys too!!!

Quiet day on the board today.  I did get a nap and have been really resting.  Hit a long complicated snag with getting the Outback today.  We are working on it and working it through.  Even if this doesn't work out with the Outback...we still have the money set aside for a newer car.  We will just have to look elsewhere for a car.  We always seem to end up finding exactly what we need so I am not too stressed about this. 

How's everyone doing tonight?  The more I see of the fires in California, the more concerned I am for my California buddies.  I hope you are all safe, and your homes are not in harm's way.

It was a day of recovery for me today.  I'm a bit sore, I must admit, from working on the haunted house this past weekend.  I used a paint roller on a long pole way up over my head yesterday, and now my neck and arms are really upset with me!

< =text/>_popupControl(); Karen!!!  Goodness!!  You know better!!!  Get heat on those muscles!!!  Wow...that felt good that for once it is me lecturing you about this stuff lol.  How is the house coming along?  You and your family are just the greatest people...giving something like this to the community every year.  It is sad to see it stop!!

I have the football game on in the background.  It is a great way to shoo away a teenager that is not into football!!  Arielle has retired to her room to be on the phone lol. 

I slept a whole HOUR!!!!  YAY!!! 

 

Just checking in...thanks Karen for thinking of me. I'm in no danger at this time, but my daughter is in the process of being evacuated. I don't know how much you're seeing on the news, but it's unbelievable! Very scary! < =text/>_popupControl(); Oh Gale goodness!!! Please keep us updated on how your daughter is doing!! 

 

Here's a photo of our pirate ship as of yesterday.  Still quite a bit of painting and detail work to be done to it, and of course we need a figurehead on the front, but you can see we have done a lot!  We have a freakin' ship in our driveway!

Freakin' awesome Karen!!!Gale

I have been so tired today, so glad the partie's are over for awhile! Emma and everyone had a great time

Karen take care of your arm, bless your heart

Glad you like our ship guys!  You go into the side there where the "hole" is and have to make your way through a black maze to get into the house where there's 3 rooms of the "interior of the ship"!

 

 Hey Link, we posted at the same time

Karen that ship is so awesome! I am so amazed!

Brisen give us details on the fire

Thanks Link!

Mona- Since I last emailed you, I heard from Kim and she definitely has to evacuate. She'll probably be heading over here tonight. So far, we're out of the line of fire. Keeping my fingers crossed with all the Santa Ana winds.

Hi Mo. Nite Mo...and everyone else.  I'll be sayin a prayer for all you guys in Cali.  Karen, I sure wish I could take a walk through your ship.  see y'all soon

I am here!

Poor Kim, did she get all her important papers together? Is the roadways clear so she won't have any problems getting there?

 

Hey Joonie!

Glad to see you're back with us!

 

 

 Hey Joonie!

I also just got a call from Michael, and he's going to spend the night here also. His roommate's father has been evacuated, and the father is staying at the apartment, so Michael decided to come over here. Looks like I'll have a full house tonight!

I can't see any of the fires from where I am, but the skyline is filled with smoke. It's really eerie looking...

Well, I got some bad news. It pissed me off SOOOOO BAD it even made me cry.

So today I was sitting here on the computer waiting to go to wal-mart. The phone rang I answer it and it was RD's office calling to remind me of my appt for tomorrow.

So... I ask the lady if I was getting to see the RD... she said yeah that is what the appt was for. Then it struck me as weird. So, I asked was I to get my Remicade infusion too. She said to hold and let her see. She said "No you are not on our list to get Remicade tomorrow." I was like "well that is what I made the appt for was to get my Remicade infusion, which I was to of already had a month back, but something about insurance and needing a TB test." She said "We cannot add you to the list. So, when you see Dr. BLANK to ask her what your status is for the Remicade infusion."

Needless to say... I was heart broken and I cried. I cried because I will not be on my way to getting the swelling down and it will probably be another month or so before I get my first infusion.

It sucks, but at least if I do have to wait a month or more before getting Remicade, I still have my 3 Humira syringes left in the fridge. I was going to take them all before my appt, but now I am glad I did not. And I do not have anymore refills for Humira.

Oh Joonie, I'm so sorry.  I would be so angry if I were you!

Ahhh... I am about the same as I was, except I do not have the pain in my right leg. *looks confused* But my right leg has been twitching a lot today. Even my not so swelled right knee is twitching up a storm.

 

Oh joonie, that's terrible! I know you've been counting the days until your Remicade, and this just isn't right! I'd be sure and let your RD know that you're pissed...maybe she can add you in anyway.

 

Oh no Joonie! Thats awful, I know how you've been looking forward to this

So, I am going to just see her for nothing... well... not nothing I am going to lay all my problems down on her tomorrow. Might as well make the most of my appt and for her staff screwing me over again.

Oh well... I just hope when I do take the humira it does not cause me to get a bladder infection again. That is why I have been putting it off taking it, plus I was not sure if I was still suppose to be taking it. But I guess I will find out tomorrow.

Oh a happier note...

My hip is not hurting YAY!!!!

 

Do you need to take a TB test before they can do the Remicade?  No one told you that before - that's just awful, Joonie.  Total incompetence.

Ok so we go to wal-mart the one in another city... you know the one with the People Greeter that asked if I needed an electric cart?

Well... I walk thru the door and there the same woman is for people greeter, and she sees me she walks away from her stool and stands in front of me and says "I think you need an electric cart, let me get it for you." I looked at her and said "Ok... I guess I will use it this one time." She smiled and said "Good!"

So... I rode around wal-mart in an electric cart tonight. I ran hubby over a couple of times. That little lever thing to make it accelerate hurts my thumbs to push it. Felt like it was digging into my thumb bone.

I finished my 4th Orencia infusion a couple of weeks ago, and for the first time, I actually felt pretty good the following day. Unfortunately, it only lasted 2 weeks, and I don't get my next infusion for 2 more weeks. :(

Yeah.. she "told" me if you want to say that... she just actually printed off a sheet of things I needed done before my Remicade infusion. I lost the sheet and could not remember what was on it. But when I called to make my remicade infusion, they asked if I had the TB test done I said no, so they said to call back when I had it done. SO I called back the next Monday when my TB test was clear to make the appt and then they gave me that well we do not have anything until end of october crap. So... I told the lady I was calling to make a remicade infusion appt. It was all screwed up. I hate talking to people on the phone.

It just made me feel bad, because I gave into the "customers with disiblities" crap.

Hubby smiled when he saw me get on it, and daughter wanted to drive it... I told she could when she breaks a leg or ankle. She said ok I will go break my ankle. Nutty KID!

Gotta take off guys...Michael's here, and Kim will probably be here soon.

Joonie, good luck tomorrow at your RD appt.

Karen, rest the ol' body tonight!

Talk to everyone tomorrow...love ya!

The way the lady said it was in the computer was that I made an appt to see the RD, not a remicade infusion appt. I specifically said Appt for remicade and even had the lady I talked to when making said appt look to make sure I was approved by medicaid & insurance to get it and she said yes and then gave me the appt I have now.

It is really screwed up crap. I do not think anyone at that office knows much of anything. I wonder if it is just me they screw or if it is everyone.

 

Nite Gale!~

Joonie, you have a right to stand up for yourself - and you can do it!

Hi Gale bye Gale.

Jay, where have you been???

Did you see my ship?

 

 Well Joonie I am proud of you anyway for riding the cart

I'm trying to type with one had and hold the dog wrapped in a blanket, shes stll damp from her bath and she's cold.

Woohoo it's pouring rain! It's rained on and off all day! Did you hear abot Atlanta is running out of water in like 6 weeks? Sheesh!

Hi Karen,

No I did not is it on todays page somewere? I just got on and probably won't be on very long.

I had my infusion today and got it bummped up to every 6 weeks.

Joonie Sorry to read about your cruddy day.

I am sure after she sees me tomorrow, she will not like what she sees. I am not doing all to well. I will have a list of things I want addressed and I will make her sit down to go thru it with me. Or I might not depends on my mood. I guess if I go in grouchy I might get more results

I am not really looking forward to a needle in my arm tomorrow. SO... I cannot garantee I will push too hard for it.

This guy is hanging in the tree in our front yard to let folks know what's coming!

E'llo Nekkid Jaybird! You better stop nekkid Jay-walking LMAO! You can go to jail for that.

Awwww... I have not even felt like giving Abi Kitty a bath. She is stronger now. Hard for me to hold her still, so I give up. Do not need cat scratch fever, just to have a clean kitty.

How are you doing?  Get any sleep?

Yeah, would you believe he tried to come to work tonight? HAHAHAHAHAHAHAHA no. I laughed at him when he said that. He sort of had me talked into letting him come with me, but that blew out the window too. He really just needs to sit on the couch and rest right now.

 

Work is slooooowww!!! Boring!!! And I'm hungry. LOL

I slept for a little while after taking the pain pill. Just got up not too long ago here. I imagine I'll be pretty tired when I get off work this AM, but I have the next 2 days off, so I'm okay. Plenty of time for ME. And that's about all I plan on doing really....me me me me me!!!

LMAO Joonie. No one wants to see this bird nekkid!

Hey Katie. Did your man get his parts taken out like he was supposed to. I have not been on for like a week so I am WAYYYYY out of the loop.

Heheh yeah Jay, they took his gallbladder out....2 weeks ago? I think? And then we had to put him BACK IN because he had a massive infection in his colon. Which came from god only knows where. He's responding PERFECTLY to the antibiotics though, and only had to stay one night. He's at home finishing them now.

 

Apparently, after taking my med, I fell asleep on the living room floor playing with the kitten. LOL Then Justin told me I got up, went to the bathroom and never came back. I just wandered into the bedroom and passed back out. Man I was TIRED! lol He packed me a lunch though for work while I was sleeping. Hehehehe What a sweetie.

By Karen and Joonie, both of you take care of those injured limbs

AWESOME SHIP!! Looks like its from a movie set. WELL DONE!

Welp, Guys I am off to bed too. Neck is stiff and making my head hurt.

Talk to ya'll when I get back from RD appt. *makes a scrunched up face*

Thanks Jay and CinDee.  We'll see how she sails the next couple of days.  The boys put up the mast and a sail last night, and we have some high winds coming tomorrow and the next day.  Could get interesting!Nite Joonie - I hope you can have your infusion tomorrow!Yeah me too if not I guess I will roll the dice and take the humira and hope I do not get a bladder infection

I think Jaybird was ordered to do community service since he got caught jay-walking nekkid. So... looks like Jaybird gets to come clean up your driveway.

Okay, I think I want to find my bed.  You guys all be well!

Goodnight! Sleep tight!Karen I think you have a good idea. I am bed bound as well.Well you party poopers! I guess I'll get started on real work then.

 

Oh let's see....animal cookies - the frosted kind! LOL Some tropical fruit snacks, "harvest cakes" (little debbie snacks) and a chicken pot pie. I've already devoured the animal cookies. I have SUCH a massive sweet tooth this week!MMMMMMM.....I chopped up a apple and have that Marzetti carmel apple dip. SO GOOOD!Oh man that's the BEST apple dip!!! Don't they make a sort of cream cheese one too? It's like....sin in a bucket!
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