OT - Tuesday Chat 10-23-07 | Arthritis Information

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Well work is boring at 2am.....I don't know how Justin does it. LOL

Not much on my agenda really, going to head home after work and sleep sleep sleep, eat a little, and sleep some more. Hehehehe

Hey Katie,

How is Justin doing?  God, I remember working the overnight shift.  It can be so boring.  Which of course makes it seem twice as long as it really is.  Off at 7? 

He's doing really well. :) Now of course, we're dealing with me and my "what the hell is wrong with my neck" garbage again. Boo-hiss! I need to find out when I can reschedule my RD appt. I know I can do it in November, but I'm not sure when exactly.

 

Yeah, I'm outa here at 7. You know, sometimes I really like filling in on this shift. It can be really peaceful, because it's JUST me. And I have the ability to watch movies and play games. Super nice, I know. BUT....I'm such a yakker and a people person it drives me crazy too. No one checks in or out between 11pm and 7am!!! LoL I've seen ONE PERSON so far, and it's almost 4am.

See ya get me started and look what you got.  LOL

WOW! That sucks ass.....no other way around it!!!

And I'm torn.....I can see how it sounds dumb that toothpaste would affect a medication. HOWEVER...being the kind of med that it is, I can see it happening. KWIM? I'm torn there.

How long does she have to be on the meds before she'll be "in the clear" so to speak? I sure hope she can get off the meds soon, poor kid.

Morning!  Well it is still dark out.  Not sure what its soposed to be like today.  It rained last night....YUCK..I think im gonna attempt on getting some classwork done today.  I am not looking forward to it cause im at the end stage were the transcriptions are actual drs and you cannot understand a word they are saying.  VERY frustrating!!!! I do have a few things to do around the house.  Gonna vacuume....but that also means I have to her the dog bark NONSTOP while I am doing it.  But owell...goofy dog! 
Katie~Hows Justin doing? Is he going to take it easy for a while now? 
Steph~I can see how frustrated you are w/ all of this stuff.  That poor little girl!!!!  Have you brought her to a Childrens Hospital?  I dont have any advice for you about this but I truely hope she gets better!!! I'll keep her (and momma) in my prayers!!

Well I am off to play the most addicting game in the universe!!!!  Hope everyone has a great day!

Goodmorning...gosh everyone has things going on, and I am so sorry...I wish there was more I could do and say to make it better. 

Katie...try and see if you can get in closer to the first of the month.  I am worried about that neck.  Have you tried a heating pad or any of those sports creams? 

Stephanie...so sorry about baby Isabel.  Gosh she is a sick little girl, and I think if she wakes up the same way...I would take her in to the Childrens Hosp. to have her looked at.  There is something not right about what that doctor has done.  If she has new lead exposure than it would make sense to give her something different.  Are you in state housing or your own?

Shannon thank you so much for the picture. It is so very nice to put a face with a name!  Have fun cleaning...don't overdo. 

Well, today is the day that I get another test on my bladder/kidneys.  I am still feeling the same as I was last week.  I am hoping to get more news on the back xrays, but I am sure it will be like the lower back, and "oh so sorry, but there is nothing we can do...so enjoy your pain."  Ok, they didn't say it like that but it sounded like that to me.  I am off today...so I have other stuff to do, and I am going to rest.  One week and a day to the next infusion!  Oh and I subbed in a first/second grade class, and one of the kids threw up(after mom had been told that she threw up at breakfast...mom's response..."she was just hungry") yep, thanks for the exposure!

Hi all,

Katie, it's not actually the toothpaste but the calcium in the toothpaste that's making her medication not work.  This medication is so super sensitive to calcium that even a little bit of it will cancel out the medicine.  It's been too crazy a time with this med because of it's reaction to calcium.  The first month her lead went up, her regular doctor told me that if she drinks milk or has any calcium less than 2 hrs after taking her medicine, the medicine won't work.  She was supposed to stay on this medication until her lead level had gone down to 15 in order to prevent her from having any issues from the lead poisoning.  She's at 26 as of Wednesday.  Much better than what she was but still not close enough to 15.  I'm so concerned about the damage taking her off this medication may do since she's still considered seriously poisoned.

Shannon, Good luck with the transcriptions.  Doctor's handwriting can be awful.  I am very frustrated with the decision to take her off the medication.  I think we found the issue re: calcium in her toothpaste.  The information we have will indicate that I did find the problem because her lead level didn't go up this month. To the best of my knowledge if she had new lead exposure, her lead level would still be going up.  But miraculously, it stopped. 

Shelly, it's a house I inherited when my mother passed away a year ago but the lead inspectors don't believe that Isabel contracted it here even with the high lead levels present.  They think that she got it from her paternal grandmother's house which is state housing.  Hazardous levels of peeling lead paint were found in her home.  Apparently peeled off the wall by Isabel's 4 yr old cousin with Isabel sitting next to her.  It's the dust and inhaling it that causes the most damage.

I think I'll be glad when her regular doctor gets back so we can see what to do.  I was extremely scared yesterday when she was dry heaving in the morning.  I investigated what foods I could feed her that would help reduce her lead levels naturally.  I knew green veggies but also found out that oranges, peanut butter and ironically anything with calcium in it will naturally help lower the lead level in a poisoned child's body according to the EPA web site.  Thankfully today she's doing fine.  No sick belly.  She's been eating little meals all day long. 

Hope everyone has a good day.  Katie, enjoy your sleep, girl!

Hi all,

I wanted to apologize to everybody.... I had been leaving and staying signed on and I found out that you guys might think I'm ignoring you...I would never do that, ever. So, I am so sorry for being so computer illiterate (can't spell). Please know that you guys have saved my life....you guys are all great and I am so glad I found you.

Katie, I am glad Justins doing better.

Steph, I am praying for you and Isabel.

Shelly, I hope your tests are easy on you and you are also in my prayers.

Shannon, I hate house cleaning.....go enjoy your games.

going to go get some house cleaning done myself.... take care all and have a good day.

Love you guys

Hey everyone...Steph, I'm confused.  Will Isabel always be taking meds for this? Or do the meds actually remove lead from her system?  This must just leave a big knot in your belly, huh?  Do the docs say how successfully lead poisening can be treated?  How long it takes?  It's gotta be so hard avoiding calcium, you have to vigilent all the time. Just keep doing what ya gotta. It'll be ok.  And what about the little cousin?  Was he/she also sickened by the lead dust?

Shelly, boy, tests and more tests.  You must be getting to be an ol' pro at diagnostic testing.  Hope you get the results you want this time.  If you start throwing up thanks to your little student, don't go breathing on us.

Katie...glad J's out of the hospital.  That must be a four letter word for you guys by now.  Here's to his good health!!  Cheers!

I'm sorry about your spider....

Hi...yeah, too bad.  How has your day of housework been going?  As much fun as it sounds??

Hugs

I'm back, but I can't stay, kids you know......

Hope you have a good day, Linncn! Bye! < =text/>_popupControl(); Hi everyone!  Hope everyone is having a good day. Just a quick check in today as I am feeling icky from the laryngitis. 

Steph (((hugs))) to you and Isabel.  When does her regular doctor come back?  I hope everything with her meds get straightened out quickly. 

Shannon...my dog attacks the vacuum cleaner.  Growls and bites at it. 

Shelly...wow more testing!!  I sure hope they find what is going on so you don't have to go thru much more dang testing!! 

Linncn...sorry about your spider.  Hopefully it was just a natural death.  I could use a spider in my house  right about now. Stupid flies.  I did smush a fly that was on the tile floor in the hallway today with the bottom of cane lol.  Then I had to yell for Danny to come clean it up lol. 

It is a pretty day here.  Plenty of wonderful bright sunshine and crisp temps.  I actually slept last night!!!  I was so happy!!  I did get up once for a bathroom run, but at my age, that isn't all that unusual lol.  I just think the lack of sleep and everything else we having going on just finally caught up with me.  I have had a nap today too.  But, I don't feel real good so I kind of expected that. 

I think I have turned the RA corner!!!  The only pain meds I have had to take today is my regular maintenance of oxycontin!!  My swelling has also gone down.  It is not all the way gone but there is an improvement.  I am still moving very slowly and needing to use my cane around the house.  I was very stiff this morning and that has only abated a slight bit.  I still tire easily.  BUT, we are extremely happy with the improvements that I have had made in what seems to be virtually overnight.  I am continuing to do a lot of resting to remain on this forward momentum of recovering.  It has been a great relief to see improvement no matter how small it is.  I am on 30 mg of pred now.  I still have the shakes and the sweats, but the munchies have gone away and I ate like a normal person today.  My brain fog is also clearing up.  I am not as confused and the words are getting from the brain to the mouth or the fingers much faster and much more clearly.  I had some brain fog before this huge flare so I don't really expect it to totally clear up.  I have a long ways to go to remission (if it ever happens) but for right now, I am settling in for the long haul and to fight the good fight without putting up a fight. 

We should be the proud new owners of our Subaru Outback Sport by Friday!!!  We have resolved the snag that we hit to work out for everyone's benefit. 

Danielle's flare and injection site reaction have disappeared.  I am still keeping her on a maintenance dose of pred for a bit just to be sure the flare stays gone. She is also doing much better emotionally.  Ya know these teens..up and down..up and down...and then add in the JRA...whew. 

If I don't make it back here today I hope that everyone has a great evening and is feeling well.   

Liz, overall it sounds like a good day for you.  I'm glad you're getting back to yourself, and especially glad about your girl.  You're right about the ups and downs in the life of a teenage girl, JRA too......well I guess it'll just make her stronger.  Or who knows how God will use it in her life?  Someday you might all look back on it as a blessing because of what wonderful thing it prepared her for.  I guess maybe you feel that about your own RA?  I mean, you know how to "be there" for Danielle in a way you might not without having it yourself.

I can't wait to hear how you like your Outback.  I seriously considered getting one myself.  I wanna know what I missed out on!

welp, i am home. much pain... waiting on hubby to come to open med bottles for me.

steph sorry about isabel. much hugs hope she gets better soon.

everyone else... i did not read pass stephs post... it wore me out

hope everyone is having a good rainy day.

about 2am this morning we had tornado warning for our town. first time since i lived here we have had tornado warning saying our town. usually it is the cities and towns around us.

 

ok, so I survived the whole Urology appt.  I just deluted everything in my body...yep, I passed without the whole sterile urine sample!

Went to my message...yep....the back think that I had yesterday, when I could not breath.  I still have a huge Knot in my muscle tissue and inflamation on that side of the ribs(intercostals). She asked if I had been sick...nope, except my nose is running and I don't feel up to myself.  She said...talk to me when you get the results of the upper back, b/c there is something going way wrong!  GREAT! 

So, I went to get my son some jeans.  Then I came home and crashed for over an hour.  I woke up feeling worse than when I laid down.  I have one week before infusion, and I am NOT getting sick!

Well come March I am gonna have a new niece!!!!!  Congratulations!!  Bet Kelsays excited!In all honesty, we dont see my brother and SIL very often it hasnt really fased (sp?) her at allDo they live a long way from you?no actually they only live like 45 mins from us thats the sad part.  Well, everyone gets so busy doing their stuff, it's easy to let that happen.  45 minutes is a long way when you have a busy life.  maybe things will change after the little one is born.  Is this their first?No it will be their 2nd.  The pic I posted yesterday is their little boy. He just has different priorities.  Baseball is his life.  When hes not teaching, he's coaching.  That kind of stuff.  I dunno i have ALOT of mixed feelings about it.Oh, he's a highschool teacher/coach?  I hope that boy of his likes baseball too

A house full of girls must be hell for the man of the house.Yea hes a highschool PE teacher, he coachs Varsity football and baseball and coaches a team in the summer.  He was drafed to the Houston Astros when he graduated highschool and got up to double ASweet.  That's really cool that he has a job that incorperates the thing he loves.  Not alot of people get to do that.Greetings all!  Just got back from a school board meeting (public school.. not the board I am on).  The district wanted to bus kids across town to cut costs... after TWO MONTHS OF CLASS HAVE ALREADY PASSED... and with one week's notice.  And these kids WALKED to their current school.  Seems the district miscalculated enrollment numbers and just figured this out now (after 2 months of school)...  anyway, we got the parents and teachers of the affected students to show up at the board meeting and voice their concerns... the district is backing down.  No one is going to be transferred.  I'm exhausted...going to bed now.  Later all!
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