Well it is another dark day here in IL....WHy you ask? Cause its still 6 freaking 'o clock in the morning!!!!!! Kelsay has had this fasination w/ waking up when its still dark out....Ive been up anyhow but yea i dunno what im gonna do w/ that kid.
Karen~ You know that song you were "singing" on here about how "they're going to take me away..."? My grandma (my moms mom) sings that song all the time!!! She sings lots of random weird songs then when she cant remember the words she makes them up which makes it even funnier. Ive caught myself doing that...then I go OMG im turning into grandma!!!
Hope everyone has a great day today!!
Dark here too at just after 5:30 AM. It was one of those nights and is shaping up to be one of those days...the keyboard is not my friend this morning.
Well, after having a horrible bad night, I cancelled my substitute job today. The pain in my back is worse, and covers the whole area around my shoulder down to my waiste. Lovely...my hand and arm keeps going numb. I sure hope there is a rhyme to this reason.
I felt so bad cancelling this am. I keep telling myself I could have done it. Why did I cancel, but I know that the pain is a lot worse today, and I had a hard time yesterday. Hubby was disappointed though. I hate that.
I would love to take a pain pill, but then if the doctors call, and need to see me I would not be able to go in. Hubby is in the field today...with the Missle guys.
Shannon, that song was really popular when I was young - it was on the radio all the time!
I sing random crazy songs all the time around the house. There were times when my kids were so embarrassed by it, when they brought their friends over and were asked "WHAT is your mother singing???"
My daughter's favorite though was when I was taking a shower and did a whole array of ways to sing "Who's the leader of the club that's made for you and me, M I C KEY MOUSE". I sang it country, I sang it with a Spanish accent, I sang it opera style, rock and roll, and any other way I could think of. Of course my kids were sitting in the livingroom cracking up the whole time!
I think your weekend sounds like great fun. Try to go to the farm if you can. I'm sure there will be bales of hay or something you can sit on if you need to, and seeing those things through your daughter's eyes is so wonderful. Should also be lots of great photo opportunities!
Happ, I'm sorry it was a rough night and morning. I hope as you get "warmed up" and moving things feel better.
Take care everyone!
Shannon and Happ...I am sorry...was selfish of me not to acknowledge your pain. Gosh, I hope the day gets better for both of you, and your pain lessens some.
Karen...I love the way you approach life...so fun and inviting! Of course, parents like you are always a source of embarrassment to your children...been told that a time or two myself! But what great memories your children have!
< =text/>_popupControl();Hi Everyone! Even tho there is no school today I was up at ‘em early to make sure our best friend got off to work. He isn’t one of the easiest people to get out of bed in the morning lol. When
I don’t know why kids go thru weird phases about sleeping. It drives ya nuts sometimes!! Maybe Kels is going to be a morning person Shannon!! Lucky you!! I am glad she is feeling better tho. Ohh we have been to a working farm like that before! It is really neat. Have you guys ever taken the kids up to Lamb’s Farm? I haven’t been in years but it is a neat place to go.
(((shelly)) You needed to cancel today so you do not get worse. It really is hard to not feel guilty about this stuff. Believe me…I just got done struggling with the whole “I can’t do anything around here and I feel so guilty” stuff and it is really hard to get into the brain that we have to rest and we are not super people.
(((happ)) So sorry it is not a good day for you. Hopefully you can take it easy and be chilled today.
I love random songs! I do the same thing around the house. Or I make up goofy words to go with melodies. Embarrassing your children is a right that mothers have the instant their first child is born.
Sitting around and waiting on FedEx!! YAY!!! Every time I hear a truck like that go by the road we live off of I stop what I am doing and just listen lol. We should have the Subaru by Monday at the very latest.
Wow, Liz, that's pretty strict, you have to show you have a drivers license before you can drive a wheelchair!
Oh, Shannon my kids loved doing things like that too. They even had pajama day in middle school! They got the biggest kick out of seeing their teachers in PJ's! We always had to find really funny slippers for them to wear. Thanks for bringing back that memory!
Getting my oil tank filled up for the winter right now. Man this is going to hurt - home heating oil is .59 a gallon right now and we have a 275 gallon tank. UGH!
< =text/>_popupControl(); YOWZA Karen!! Yup yup gotta have my DL to drive a wheelchair. Well you know how I drive...we have talked about our driving skillz before lol.
Oh I forgot about Blackberry Farm!! We have been there too....eons ago!! I would love to see how it changed so take lots of pics!! You are going to have a blast!!! We go past Lambs Farm on our way down to Flatland so that is the one that came to my mind lol.
OMG kids NEVER stop loving pajama day. They do those things in middle and high school too. My girls love jammie day to this day. Every year they get new jammies for jammie day.
RD just called back. No changes to my meds right now to help the swelling since I am on a high enough dose of pred as it is. I am to just rest and manage the pain with my usual pain meds. So basically...don't do anything different than I am now lol. I held off on my mtx shot in case he wanted to increase that and he doesn't. I guess I will have Danielle do my shot once I am done here.
Yea I'll takes pics Liz and I'll post them up for you.
OK...that's it: I surrender. *LOL* I am going home, soak my hands/wrists in paraffin, find a completely mindless audio book and hibernate.I am up. Ankle is still bothering me... and hurts to walk on.
I guess I am flaring. At least that is what kinda pain I have.
I am guessing the humira is outta my system, because I am hurting worse and my fingers have been stiff & swelled for a week now, worse when I wake up. So, the 10mg of pred not enough to help with the swelling & stiffness. Or is it fibro doing all of this? Or a combo? I have no idea. I just know... I shouldda had my Remicade last month!
Like I told him not to sit the open can of coke on the new couch. I go to the bathroom come back out and he is scrambling to find something to clean up the coke he put on the couch and it fell over. It got 2 cushions and all in the bottom of the couch, including the floor!
Feed me...Symore!! Feed ME!!!!
Ok I do not eat humanoids... I eat cownoids, pignoids, and sometimes chickennoids.
(((happy))) so sorry for the rotten day. And you are right..the sun will come out tomorrow. So here's hoping tomorrow is a better day for you. I think we all drop stuff. I am not allowed to touch anything glass because in will inevitably end up on the floor shattered into a million pieces lol. There are times I am not allowed anything sharper than bowling ball either lol.
Awww Joonie I am so sorry that you are flaring and feeling icky. I hope you get some relief from your first infusion.
Had stew for lunch today. It really hit the spot on this crisp day. I am hungry right now tho and about to go stare at my pantry lol.
Still waiting for FedEx!! I think they want to torture me!!
Heard not too long ago from our friend whose g/f passed away. It is a closed wake and he had to get special permission to attend it. I am not sure why it is that way? Would anyone know? Is that family request or because of the circumstances of her death? Now I am wondering if they are going to be charging the people that gave her all those drugs in the first place. I mean she had everything you could think of in her system. Sigh. So young. Such a tradgedy. One day away from entering rehab. Sigh. Our friend did call today and said he would most likely stop by after the wake because he does not feel like being alone tonight and wants to be around friends that will just let him be him. He is really torn up over this. Danny does call him and check on him everyday if they do not see each other at work. Our friend is grieving and moving along in the 7 steps of grieving. I would be worried if he wasn't grieving. He has expressed some anger towards the people that gave her all those drugs. We just hope he can control it and doesn't do anything stupid. Sigh. He is at the "if only's" right now. ONly thing we can do right now is just be there for him when he needs someone. Liz...I am so sorry the swelling is back. I am glad you are not going to go backwards on the pred, however that would help. Maybe you could just give some to me...maybe that would help...I don't know. Ok, so I took my vicodin...after hubby laughed at my reasoning for not taking it. And told me that it is not going to help to be in pain all day. Well, one has just taken the edge off, and the last time I wondered around the house and then laid down...had trouble breathing and started coughing. YEP! that felt good! I think I am trying not to breath very deep because of the pain. Happ...gosh I hate when I spill one of those cups of coffee. Ya gotta love hubby for getting you some though...what a guy. Go home and veg. Shannon...I understand your apprehension of going to the farm, but man I guess I would try to go. Kids love experiences like that. Pajama parties...I loved them as a teacher. We would rearrange the desks and make "reading" tents all over the room. Yep, a favorite. I guess I am having a pj party today. I'll check back later, but I have to eat. I am like Joonie...gotta eat something. Ok GREAT JUST GREAT!!!! ARGH! *pulls hair outta head* I just got the call a few mins ago that they are going to cancle my remicade infusion... because BC/BS did not Prior Approve me to get it yet. Hello?! This was to be taken care of over 2 months ago!!! When I called to make my remicade infusion appt a month, which got me a check up appt, I sked if insurance had approved it and they said yes. Now they are calling me and telling me no BC/BS did not approve it yet. What the f**k ever! I am so much pain, and swelling so damn bad this sh*t just f**king sucks. But whatever. Stupid ass people. Mean people f**king suck!! She said she would call me back to tell why it has not been approved yet. Just freaking sucks. I cannot even call hubby crying because he left his cellphone at home this morning.
I hate the world right now. I just want to stop HURTING!
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WHAT!!!!???!!!!??? OMFG I can not believe this. This is just insane. Keep on the horn with them!!! I can't remember when your infusion is supposed to be....but sheeeeesh they need to get you approved ASAP!! Like RIGHT NOW. Be firm with them Joonie. Be very very upset with them. Ask for a supervisor if you have to.
I can't believe this. I am so sorry. I just am so sorry.
And she said to just keep the appt and to call back to see if it has been approved, before my appt. They know sh*t! I asked if medicaid approved it and the lady said she did not know. Oh well, hopefully I will get an RX for that pain med I just asked for. I am sooooooo annoyed right now. UGH!!!! I do not know anything about why the hell they did not do this sh*t 2 months back. IDIOTS!!! I am off to go lay in bed and cry and be depressed for the day. I am cold too. Stupid CRAP!!!!!
Joonie...you have to do this 'cause if hubby calls and you have not added him to your HIPPA papers they will not listen. Also, if hubby calls heads are gonna roll...I know what Jeff would be like. Let us know what happens, but don't just go to bed and pull the covers over your head stick up for your family, and their right to have a mommy!!!
I am so sorry for your loss.. I will say a prayer for your family.... good grief how much more are you suppose to take? Honey, sending you a great big hug! Joonie, so sorry you are having all this crap happen when all you want is to feel better. Had the same thing happen to me a few months back. They are f***ing idiots sometimes. I ended up missing two shots because of insurance crap. Of course I went into a horrible flare.
I loved pajama day when I was in school, my kids love it still. Well guys, I feel like my whole body is been hit with a meat malet and I have been taking pain meds all day. Thank goodness mykids don't mind eating a sandwich for dinner.
Well, they called me back about the pain med I requested and she never heard of it. So, she is gonna research it before she orders it for me. They told me to call back before my appt, to see if I have been approved. I thought I already was approved and they were just waiting on mediciad to approve it. But they way this lady is talking is like they have not even sent in the papers for the PA's. She said they will just keep me with that appointment and to call back sometime next week to see if they approved it yet. So, I guess I will call wednsday that should be ample time for a 2 PA's. Sorry to hear about your grandma Shannon. She is in a better place now. Much hugs for your family Joonie, Hopefully they'll get their crap together so you can get your remicade...... Think I'm gonna go lay down again.... feel like crappola!!!! TTYL.
Love ya Oh Shannon...I am so very sorry. YOu have had enough and you might want to add the pred. you should probably let your RD know, but if that will keep you going...I would go ahead. I am so very sorry!
Hugs all round
Oh I did put a load of wash in the machine still trying to figure out why my tendons are so sore in my feet and legs I think I'll make some jewellery today to brighten things up as its so overcast What meds you taking Link? Yep, normal dose. How Jasmine said is how I took it. It is not a whimpy drug in my book. I hated being on it. It made me sleep alot. I was in bed before 6pm every night and slept until 6am the next morning. Good Luck with the Arava, Milly!
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((((((hugs))))) Shannon....my family's thoughts and prayers are with you and yours during this time. You know how to get in touch with me and you get in touch with me at anytime you need someone to just listen to you or you just need to cry. I will be with you in heart and spirit as you go thru this difficult time. Give Kels a hug and kiss from all of us at my home and please tell your family our condolences.
That's the standard dose. Normally you take 100mg/day for the first 3 days, then 20mg/day thereafter. If side effects are troublesome, your doctor may lower the dose to 10mg/day.
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