Hi guys, well I knew cutting my pred to see if I could get away with it was always a risk,, but, I can hardly type, I have about 5 degrees of movement in my right elbow, any direction, absolute excruciating pain !!!!! I dosed myself up with Endone but it didn't help, rested all day and increased the pred to 20mg from 5mg - no difference yet - have considered going to the hosp for a boost of pred into the joint but was trying to avoid that, they treat you like you are a druggie looking for pain relief, not all of them, but some do. Went into the city (Brisbane) yesterday, left home at 5.10am and got home at 7pm, huddled up in a overladed coach most of the day, and as much as Liam (11) tried to help me, it was unfair as he's only small to be carrying a heavy bag all day, Xrays etc. Results next week for his brain scan, went well, no claustrophobia or anything, heaps of walking as the hospital is gigantic. So even though both elbows were sore all week, it was nothing like this, so maybe yesterday was all it took!!!!!! I even mopped the floors last week, I had been feeling much better, my GP said no more, it is too much for me and causes repercussions, maybe this is from that, as usual with RA its a real guessing game. ESR went back up to 46, seeing rheumy next Thurs - next move, Orencia/abatacept. Thanks for listening guys. hugs Janie. edited by janie due to brain fog!!!!
((((hugs))) Oh Janie I am so sorry you are hurting so much! Please try to rest and relax this weekend!
I am glad that the scan went well for your son. It is amazing how well kids handle these things.
Well hunny, it sounds like you overdid it. I know it is hard not to when we are feeling better, but we have got to learn that we are not superwoman. It is a hard lesson to learn…take it from one who knows. I would say if all your labs are going up and you are so all over inflamed, that it is time to move on to the Orencia. It is just so important that we stop or slow down the damage as much as possible. It really is hard to wrap the brain around the fact that your RA is getting worse and not improving like you want it to. That is where I am at right now. It does get easier everyday, but it is no cake walk that’s for sure. You are an incredible woman though and you will make it through this.
Take it easy this weekend and you know where to find me if you need to talk!