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I agree with you Lynda. I do not think it is ok to talk down to people no matter what their beliefs are. I came to this board because at the time I was Losing my health, losing my husband, and losing my children...and home. I was completely devastated! I posted a few times, and because I was not in the "in" crowd I deleted them, because they got NO response at all, but all of the OT topics had plenty. I just think that we need to think about how we are treating people, and would we be treating them that way if they were standing in the room doubled over in pain, and losing eveything they have ever worked for. I have been there, and there were a couple of people that have walked through this with me....for them I am very thankful, and have become friends, but I see that deminishing...in the daily chats, OT, and especially the political stuff.
I think we need to start thinking about how the people can be supported and not our own agenda.
A good friend of mine said..."the disease does not change character it reveals it..." Quite frankly I am very sad!
I agree too, Linda. I came here looking to connect with people with RA. There are PLENTY of places on the net where political, religious, or moral views can be discussed/argued/debated, but I don't feel this is one of them. Whether I am a conservative or liberal has nothing to do with my illness. I accept the fact that I am a newbie and have zero say in what goes on here, but personally, I'd like to see OT topics not allowed and keep all conversations related to our illnesses. PM's are there for a reason, and should be utilized. Blogs can be started for free at places like blogger.com where one has all the room in the world to voice his or her opinion. I once heard it said that opinions are like @&&holes. Everybody has one and they all stink. There's no excuse for being mean and rude to others who don't agree with our beliefs. Ok, that's my 2 cents.Folks the best thing I can say is stay away from the political posts and others that bother you because it is not going to change. We do not have a moderator here so anything goes, unfortunately. There are good people here but sometimes we do not listen to the old proverb of think before speaking. There are many of us here that understand what you are going through, but you have to understand for some those OT postings help them think of something else besides Arthur(arthritis). Hang in there folks we are here to listen if you need to use the pm most of us will answer any questions or concerns for you. So please do not feel you don't belong here.If you're new here, please don't be discouraged by a few people who have become too passionate and then hurtful in their responses. There are many of us here who want to hear from you and offer whatever help we can.
I have another thought on this. I was just reviewing all the posts and some of the OT ones are either quite informative (Milk) or the poster really needs the relief of a vent (about her son). There are good OT posts that can truly be of help and if we could just keep the OT topics limited to the types above, there'd be no problem. Again, no way to police it, so this forum is fair game and we'll just have to ignore the OT ones that don't serve a useful purpose here. Hi guys, I completely agree, this forum should be for RA related stuff, I guess if the worst comes to the worst, we could go elsewhere and start our own moderated RA board, then they would not be able to post all this OT stuff in length, such as politics. Worth thinking about. Maybe thats why RASushi was started, after all the Roxy stuff that happened and she was run off the board for writing her O?T all the time. Funny how its one rule for some and one for others!!! It was pure evil what happened to Roxy, if it had happened to me I would be so hurt and disgusted after coming to an RA board for help and having people turn against you because of your O/T stuff relating to family worries regarding her RA, and not politics.Janie.[QUOTE=meldozRA] I'd like to see OT topics not allowed and keep all conversations related to our illnesses. [/QUOTE]
Boy, if all we could talk about here is being sick, I don't know that I'd hang around.
I agree with you Link. Many of us have a need to make a personal connection and make friendships. In order to do that, we need to share a bit of ourselves and who we are. I loved hearing about everyone's interests and the happenings in their lives, as well as hearing about their thoughts on different topics.
I came here, as most newbies do, looking for information. After that initial period where I was looking for answers to my questions, I grew to know the wonderful people here and look forward to connecting with them everyday.
I think it would be rather boring if all we discussed was RA. I think it has been said hundreds of times, if you do not want to read OT's, ignore them and move on. Read messages like you read your daily paper, i.e. skip over what you are not interested in.I'm somewhat new to this board and haven't posted much but I have read much. I am a little disappointed in the way some of the threads have gone, but that is life. Not much any of us can do about it. I am not real thrilled about all of the comments, but I have just been ignoring them or skipping over them.
But, I do like most of the OT threads. It helps to bring a little humor, a story or personal tidbit about your life here. So I say, keep them. And just watch out for the OT threads and you may not like. No one can get rid of them and more than likely it won't stop immediately so you can only do what you're in control of - and that is control what you read.
I hope to continue seeing good info about RA.
[QUOTE=janiefx]Hi guys, I completely agree, this forum should be for RA related stuff, I guess if the worst comes to the worst, we could go elsewhere and start our own moderated RA board, then they would not be able to post all this OT stuff in length, such as politics. Worth thinking about. Maybe thats why RASushi was started, after all the Roxy stuff that happened and she was run off the board for writing her O?T all the time. Funny how its one rule for some and one for others!!! It was pure evil what happened to Roxy, if it had happened to me I would be so hurt and disgusted after coming to an RA board for help and having people turn against you because of your O/T stuff relating to family worries regarding her RA, and not politics.Janie.
[/QUOTE]
I was so upset over how Roxy was treated and I didn't even know her all that well. I think some people are so unhappy that they have to bring everyone down with them. How sad that she could not find comfort in place were she felt safe. Those people were very WRONG!!
i believe in freedom of speach as much as i believe and exercise my freedom to read...i read what i want, post about what i want and thats all i can do. i do like some of the posts about our personal lives and junk bc thats what ra can affect. i will read and post freely and hope for the best!
Hi I was a member of the old AI, some of you might know me, I was Marimil
OT topics are fine, the political ones I tend not to read because politics bores the hell out of me, I have enough of my own problems. That is not to say I do not know what is going on or what candidate I will vote for, I do keep informed. My mother always said there are three things you do not discuss, politics, religion and evolution because people will never agree and it just turns into a free for all
We are all here to support each other and help each other with our RA. I agree I wouldnt want it all to be about how sick we are, I enjoy reading about other things, the new chit chat is great, they do this on another board and I have always liked it. But the politics and bashing of members because they do not agree with something has to stop, it was really nice here for a month or so. Why do people have to stir things up this I cannot understand.
I wish all of you a wonderful day from sunny Croatia
Linda. Why did you start this OT post? You start many OT threads so what
Ok.... this conversation is on the verge of getting nasty. To each his own with their opinions. We don't need to get our panties in a bunch and start pointing fingers and crap like that. Personally, I enjoy the OT posts and post some of my own from time to time. If the subject is something that doesn't pertain to me, I'll move on to a different thread. No one said everyone has to read everything. Let's put an end to this BS and agree to disagree. We're really not making any progress this way.
Anyways.... Hope everyone is having a comfortable day! It's clear and sunny here in ColoRADo. Hope the sun is shining where you are as well.
[QUOTE=Linncn]
[QUOTE=meldozRA] I'd like to see OT topics not allowed and keep all conversations related to our illnesses. [/QUOTE]
Boy, if all we could talk about here is being sick, I don't know that I'd hang around.
[/QUOTE]
I'd bet money that any topic or subject one could think of, some where out there in web-land there is a forum/board for it. But I'm not living in a dream world where all forums are kept clean and on topic. It just doesn't happen. So I just do my best to stick by my own rule of staying away from the controversial threads.
I don't see anything wrong with the OT post. Especially the political ones. I find them informative but am sorry that some people can't voice their opinions without getting nasty. I really don't think it's the topic that bothers people, I think it's the behavior and that kind of ruins it for those who do enjoy the subject.And yes, this was my first post here. Won't be back because it sounds like there is a huge dysfunctional "clique" here that I have no interest in breaking into. Just like every other board. There's a drama queen and those who flock around her providing constant reassurance and hugs. Then there are those who refuse to buy into that crap and speak what they really feel.....and they are outside of the clique. The queen and her flock reply to one anothers posts, the rest are left hung out to dry. Trust me, this behavior has been a part of every board I've visited. I just hoped this one would be different. I will deal with this disease on my own, as I have been for the past 8 months.
Mark, I'm really sorry you've been put off by what's been going on. This is SO NOT what we want. Please reconsider, there's a lot to be gained by staying around. It's just a matter of avoiding the sticky spots. I guess wherever there are a lot of people together there is going to be friction. It's just the way of the world, unfortunately. I found it interesting that you said all the boards you have frequented have the same problem. I've only been on one other board often and it too has similar issues, but your observation makes me think at least we're not too bad, we're just not better than anyone else either. At any rate, we'd really like to "talk" to you if you'll give this board a chance. You shouldn't have to deal with your health issues alone if you don't want to.
[QUOTE=lorster] Linda. Why did you start this OT post? You start many OT threads so whatHELLO! This thread is not accomplishing anything!
As I told someone earlier, this stuff has gotten out of hand. We're supposed to be here to help each other cope with this illness that bonds us all together. I just can't see how that can be accomplished by bad-mouthing each other. It's hard enough to deal with what we have in our personal lives and then come to the boards, to people who know exactly what your going through, for support and find bickering or finger-pointing instead. I understand that everyone communicates differently and some people are more harsh than others. Even through the harshness though, there's some truth to their words. I think that's when people get upset - maybe it hits too close to home and it's a huge reality check. It's real easy to go into defense mode when that happens. Everyone understands why.
Let's stop beating this dead horse (it's down to horse dust t this point) and move on to more constructive discussions. All the crap that has been said is a huge deterrent to anyone out there coming across this site and needing our help.
[QUOTE=Honey]Yes, it's obvious that the fighting and bickering comes from you, JSNM and Gimpy and through the magic of PMing we are all starting to believe you're one in the same. So stop it.[/QUOTE]
Ginger is Maryann and Maryann is Ginger.
Ok, so that episode of Gilligans Island doesn't really fit here, but I just felt like saying it.
Aww...I want to be Ginger. Except if I have to have a big trunk of glamourous dresses for a 3 hour tour I hope I also get a personal Valet.
Your welcome, Gimpy....
Link? I do not think I have seen that Gillians Island. Been a while since I watched that. I remember for a while there they played the movie around a certain holiday, just cannot remember which one.
[QUOTE=lorster]Ok, I have a suggestion for all of you that oppose the OT postings that occurGinger is Maryann and Maryann is Ginger.
[/QUOTE]I feel she could really add some valuable input here
She is great with legal advice too
foxy, I'm certain that soxy is soxy not roxy, are you foxy?
ok. yes. i'm also equally sure that soxy is soxy not roxy.
fox in socks
i could not would not with a fox, i will not eat grean eggs and hame, I will not eat them sam i am soxy is not loxy but sure might not be foxy [QUOTE=kelsaysmommy]i could not would not with a fox, i will not eat grean eggs and hame, I will not eat them sam i am [/QUOTE]
I almost didn't post but I wanted to say a couple of things. I think we should post what we want but I do not think we have to resort to calling each other names like we are children. I don't think politics belong on here but I think if they are we should act like adults.
On another note, like someone else posted (sorry don't know who) sometimes I do feel like I am invisible when I post comments. I feel like I am ignored, not by all because there are some very nice people here. That is why I don't post very much. I really hate that it has come to all this fighting among the very people that are suppose to help each other. Should we really be tearing each other down in this way????
This makes me very sad and I come here to help when I can and to get support.
Can I still do that?
[QUOTE=Loxy]Would you, could you in a gingerbread house?
Would you live in a gingerbread house with a mouse that has a louse?
Need an even post
Just give it time.
Just be a squeaky wheel girl - jump up and down if you need to. We may not be being rude and mean - just singularly focused, LOL!
You, and everyone here, are important members of this board and should feel equal and appreciated. Just get a big mouth like me!!! I would do anything to help ya if I can.I want to officially state that I give a flying flip about Lorster's opinion.
And I hugged a tree today.
Did the tree hug you back, Gimpy? Or did it just decide to provide you another day with O2 as a thanls for the hug?Joonie, it just stood there doing it's thing, providing oxygen and
shade, home for flaura and fauna, and holding the dirt together with
it's roots.
For which I am certainly grateful for!
Yes, I LOVE trees.
Trees are funny things aren't they?“I
contend that we are both atheists. I just believe in one fewer god than
you do. When you understand why you dismiss all the other possible
gods, you will understand why I dismiss yours.”
Link - I love both of them
But I would say that as far as my understanding, atheist means the belief that their aren't any gods. To believe that their are more than one is polytheism and to believe their is only One is monotheism. I am neither polytheistic nor atheistic.
[QUOTE=Gimpy-a-gogo] <h1 style="margin: 0pt; font-size: 12px;">“IWell, I think that we do believe in things we can't see. Sometimes we believe things, probably most things, because other people have seen them and we trust their word. Other things we believe in even though we can't see the thing itself, but we can see the effect of the thing, like the wind for instance, or gravity.
I believe the Bible for many reasons. The first thing that caught my attention was the accuracy of the prophecies. Just regarding the birth, life and death of Christ blew me away. You might argue that it's just a story, no one alive today was there, how do we know it's true. But their are hundreds of extra biblical , historical documents that support it. We don't question whether their was really a man named Julius Ceasar, and the things that he did, what his posistion was.
But their is of course the element of faith, though I wouldn't call it blind faith. I read the Gospel, I saw that I do need a Saviour. And I see the effect of putting my faith in Him.
I am happy to answer any question I can, but I don't think it's a thing you can talk someone into or make them believe. It's between each individual and God.
One thing I forgot to say. No, I don't base my belief on a feeling. As we all know, feelings change from hour to hour sometimes. My faith is not a rush of emotion. I've studied, weighed what I've read and I judge it to be true.
Do you see the air you breath? You know it's there even though you do not see it. Well, unless you live in L.A. The sun comes up and goes down each day...there is a GOD. Do you think that those who experienced Jesus in the Bible were on LCD??? Faith is a very hard thing to have, especially if someone has wiped away all your hopes and dreams (as in divorce)...Faith, hopes and dreams are the motivation to live, without them we would be nothing.JSNM....I haven't ever had a bone density test, I'm only 44. SHould I have had one just cuz of the RA?
4 broken toes? Only 6 more to go
Thanks for the response. I must have been brain dead, saw my RD this morning and forgot all about my toe while I was there, amongst other things I meant to ask.
I'm 36 and have had two bone density test done already. My doctors were surprised how bad they were at such an early age.
I went into early menopause at 32 so they did one that next year just to have a record. They were surprised that I already had osteopenia in my hips. The next year the osteopenia dx included my spine as well.
They think that over the years the various RA meds including predisone at times contriubte to my problem.
I would think it wouldn't hurt to go ahead and ask your doctor to do one. Linn. I get mine done at my OBGYN's office.
I just wanted to say that I really appreciate how you guys defuse a potentially controversial post with light hearted banter and by changing the subject. thanks
country girl
Thanks Lovie, I'll ask about it.
Country Girl, I don't think I've seen you around. Nice to meetcha
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