Hello, My name is Barbara, I'm 38 and have been living with psoriasis and PA for about 24 years now. I've only had the PA for about the last 5. Its is hard to talk to my family and friends about what I'm going through because, well they just don't get it. I'm tired of complaining to them and I was hoping that maybe I'll find a few people on here just to say, " Yup I know exactely what you mean" and " I feel that way too sometimes, you are not pathetic and weak, it is okay to want to crawl into bed because of the pain sometimes, you are still a good person."
As Pink Floyd put it so well, " Is there anybody out there?" I wont go into my whole story, as it were. Suffice to say, I, like you, have tried EVERYTHING. Every cream, gel, oil, lotion, shampoo, puva treatment, homeopathic and herbal remidies, injections and infusions and a whole easter basket full of tragically colorful pain meds. Best I can say, I have my good days, and I have my bad days, and I'm so scared because the bad days are more and more frequent and the good days are only good due to better living through chemistry - God Bless MS Contin. So I hope there is someone who wants to bitch back and forth with me and wants to tell me what they go through, and wants to give advise and wants to just shut up sometimes and well, someone who is going through it too.
I hope this post finds you having one of the "GOOD" days and I look forward to any response.
Tag, You're it.
Have you tried Enbrel? May help stop the b'itching I'm on ebrel now, does nothing, I was on Remicade and it worked wonders but I had a really bad reaction after my 3rd infusion, I am going to talk to Dr about trying again though. I felt almost like perfect on the Remicade, I can't take the methotrexate due to liver complications but the Remicade alone was a miracle drug for me. Are you on Enbrel?
Barbara, I am in the PA, and P boat with you. So sorry...and yes have gotten the whole yea...my finger hurts sometimes. One lady kept going on, and finally I asked her what she was taking MTX or Plaquinil or was she on a biologic and has her hair started falling out?
I usually do not respond like this, but she was following me around a store. She left after I asked. I actually learned that response here.
So, I woke up in a WHOLE lot of pain, and almost fell all because I taught a whole day yesterday. Oh well...gotta keep livin' and lovin'. I did answer your post, and thought maybe trying Humira might help. I did get a little relief from Humira, but not enough. I am finally starting to see some light at the end of the tunnel with Remicade.
I do not know even for sure what my skin issue is as far dx. It is pretty bad. Well on my hands i think it is the worst. Just omocar and vitamin E and lotion till i see the specialist. Is worse today yet. Maybe some of the redness is a little better. Still has redness under very wrinkled very dry very thick skin. Goes to below wrist. I honestly quit talking about it or worring about for now. I fiqure i will have to face it later. I guess i could go see the dematologist i do not Ruemy till Jan 15th. Have had more pressing issues. And i am not down playing the skin. It upsets me more than anything else. Just more serious health issues. I get more upset about it being debilatating. I know my skin isssue does things to my muscles under my skin as well. That is the part i am most upset about.Thanks acer and shelly and millie, you have no idea how happy I was to see somone read what I wrote and cared enough to write back. I'm so sorry it has to be under these circumstances but at least now I'm not alone Hi Barbara I've got pa and the p too besides ra and oa with hypothyroidism. What can I say when I go for immune disorders I go for thewhole enchilada!!! I am glad to hear that the remicade is doing well fo you that may be where i go to next. I was in remission for a litte while, even though p was still giving problems, but I am flaring up again but not as bad yet I am back on humira and arava and the Rd is talkng about Remicade if the other combo desn't help. At least my hands aren' all swollen up like the last time.kel
Kel I am on arava and humira, but it is not working very well on P , in fact meds have not worked very well on the P I go to a tanninig booth to help that. Right now the flares are calming down and the big thing is my hands are not swollen this time which is wonderful!!!! meme
Copyright ArthritisInsight.com