Hello all I just need to talk to someone who might understand how I am feeling. A few months ago I had a crappy job that I actually liked and then I came down with a really bad case of pnemonia, lung collapsed they had to remove a piece of is. My Rhuemy told me I was done working since I am constantle putting my health on the back burner hey who going to pay my bills is what I always thought and I have 2 kids and a butt load of bills. So Know i havent been working since July and I am going to go out of my mind I enjoy staying home and spending time with my kids but I just dont like this there is only so much i can do here I just dont know I just want to have my life back the way it was it just sucks.Hi...I empathize, I understand, and I would be pleased to talk with you either here in this space or via PM. Often just having a "sounding board" can lighten the load, and help us find some small space of comfort and peace of mind.
Getting life back the way it was is a mantra most of us are familiar with. Personally I have found comfort in a new mantra: I _must_ create a life that I can life with pleasure right now.
Please understand that I am not being flippant nor am I comparing your situation with two small children to my own, rather I am simply talking with you from my experience and from my current frame of mind.
All autoimmune diseases are diseases of compromises and negotiations and often the compromises are all on our part and the negotiation seems to favour everyone but us. There is no fair and equal with any of these diseases and often the treatment is nearly as bad as the disease itself.
It is difficult at best to always be strong and upbeat and sometimes the best therapy is a good, old-fashioned, wailing-&cursing, all-out bitch and moan party. So! I am your fellow party goer!
Best wishes and courage. Happ
I understand your frustration. I was taken out of work 3 weeks ago. I have a toddler. I have filed for disability and I am trying to accept this change in life. I really got depressed the first week, crying and such, but I am adjusting better now. I don't know if you attend church, but GOD really helps me. I pray and my friends pray for me. Of course it is only human to worry, but when I start to worry, I just try my best to turn it over to HIM. This is definately not the life I planned, but I am going to try and make the best of it. Staying at home is giving me time to spend with my toddler and my husband and I actually get along much better now that I don't have that added stress on me. Stress has a major affect on arthiritis! Oh how we forget that. I was a very work driven individual, so now I am just waiting to see how my life is really suppose to turn out! Keep posting because you and I are in the same boat!!!!
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