what do you want back? | Arthritis Information

so I've been very frustrated lately....its getting so gosh darn cold and all i want to do is wake up in the morning and take a long hot shower. my body doesn't react well to hot water and i get very sore/stiff. I also get so tired after that i take a shower at night so i can sleep threw it.

so this got me thinking....if you could have only one thing back that ra doesn't allow you to do right now what would it be?

I didn't make this post to make anyone upset or feel bad by what they aren't able to do right now or anything like that...but i thought we all lead very different lives and have ra affect us in so many different ways i figured why not....

-Jess

I want the ability to NOT take these toxic drugs.

Binge drinking.

Hmm... you know, I think I would like to be able to hold my baby more when I'm not sitting. Ooh, and running. I want to be able to run around the park with my older son. And then there's being able to jump up out of bed and not take a hot shower right away. And being able to open my own Gatorade bottles or packages or anything that's wrapped for that matter. How about driving without hurting? Well, crap. I can't narrow it down to one! LOL

I don't think it's bad to think about these things. There's your life before RA and your life after RA. It's just more of a challenge now and makes you more grateful. You learn to appreciate the smallest of things - like doing the snaps on a onesie without cringing.

Great post!

I want not to take these drugs either. I also would like to be able to exercise again like I used to, have tons of energy, wear my 4" heels again, and have (how should I say this Sorry,that's more than one thing. I do feel much better having said it though! SleepI wish that my body would behave normally without depending on medication.TO BE MEDICATION FREE!No meds and be able to go, go, go then go some more.Ya, I go with 'not having to take these weird, scary' drugs. Also, I'd like to wake up refreshed and spring out of bed, feel real enthusiasm for my day (life!), I just feel sort of numbish. Play a whole 18 holes of golf with my husband and son, without complaining, worrying about not finishing and apologizing all the time. Good question. Lynda

SAILING!!!! I learned how when I was 45 and had 6 years of real enjoyment with my (at that time new) husband who has been a sailor all his life. We bought a used sailboat and restored it ourselves. I was diagnosed in February of 2003, at 51 and have not been able to handle lines since.

You know the Enbrel commercial where it shows people sailing? I always want to throw something at the TV when that comes on. Yeah, it helps, but not nearly that much. I try to be grateful that I had the time I had, but it gets to me sometimes. Energy to allow me to do all the day-to-day things I want/need to do.

MY LIFE

I also miss being able to plan things in the future without wondering, "How will I be feeling that day?"

To get a good nights sleep and no meds .

To be able to make plans with my friends and not have to cancel when the day arrives because I'm in too much pain to go.

I want sex back. No, I have it now, and well... I actually want back my favorite position.

Oh and if I cannot have that back I want to be able to keep my word of being able to do something with my kids and not say oh sorry mommy hurts see if daddy will. Or just be knocked the freak out from all my sleepy meds it is a given mommy is not going to do something with them.