Hi I am new to the internet so hope I am doing this right? i have had Psorasis since I was 7 yrs old now 38 yrs later and for the past %5 yrs have been suffering with Psoriatic Arthritis and have tried loads of medications on and off methotrexate 25mgs for years but taking it when I can, have just had my first Humira injection and can honestly say I feel terrible, my whole body hurts I know we all ache most of the time and have pretty bad flare up both Joints and skin but this is something else, I have it quite bad in my back and while I do have good days and bad since Wednesday my back , well my whole body hurts. Does anyone know if this is normal. Would appreciate any information that can be given and it would be greatly appreciated. Although it may take me forever to find out how to get it. Thanks for any help. Teresa
Teresa, I am glad you found us, and am glad that you are getting help. Your story sounds like mine so far. I did try Humira...it did help some, but I never had an increase in pain. I know the docs will want you to try at least two months worth, and it is worth it, 'cause the next step may be the step I am on. I have had three REmicade infusions...I do get some relief from it, but I have to give it time to build up.
Unfortunately, the medication shuffle is pretty normal. They have to find one that would agree with you, and help too. Sorry you are in so much pain. Any chance they would give you a Medrol dose pack...it is a week long steriod treatment. Especially with Thanksgiving coming it may get you reasonably through the Holiday.
Teresa....no info here, I have RA not PA. Just a firendly welcome, I'm glad you found us.I have never really let my condition worry me till recently as it appears to be progressing quickly and know I ned to get a grip, to be fair to doc she did try to get me to gon on an anti tnf a couple of years ago, but I thought I knew better I suppose! But I felt there were people out there much worse than me. Not sure what medrol is never heard the name before but it could go under a different name in England.
Thanks for replying it was nice to know not the only one that has problems tolerating drugs.
Thanks
Thanks, Linncn for the welcome.
Teresa,
Welcome to the site. Lots of great people here who are just full of info. Many of us are on the RA page but lots of them do not have RA it is ust were most of us end up. I would imagine you have lots to ooffer as well since you have a long history with your PA. Stop in and chat or ask questions anytime.
Jay
Teresa Welcome and I am sorry your are having such problems. Has the dr talked to you about Remicade? Several people here are on it and seems to help alot better then Humira or Enbrel, that is where the dr is taking me once the Humira no longer works. meme
I think our medical sytem must work differently to yours as we don't really get a lot of choice, it is what can be given on prescription, the health authority have had to get permission to be able to give me the Humira, really they plug the Methotrexate, I take that weekly at home injecting 25mgs and as you all probaly know it makes you feel terrible, and no obvious changes in my blood results, so why do they keep going on with a treatment that obvioulsy doesn't work! It just seems silly to me.
Must be feeling better as able to moan about things again.
hi teresa, medrol is prednisone. I often feel worse after taken my meds too. mtx. was the worst for me! I am on enbrel now,well offf cause i have a sinus infection. it has helped somewhat. keep your chin up.
kel