rheumy visit | Arthritis Information

 

I have a rheumy appt today
im a bit nervous cause im going alone and i think i rely on having my mum there too much. she always minimizes my pain and im just not good at expressing it. I dont want this visit to be a waste, i need to make sure i say everyting i need to....

my mom also wants me to ask about lyrica. this doc didnt dx me with fibro though just JRA and for some reason she thinks its one or the other.....and i dont want her to go down the fibro only path. ive had docs say it was just fibro and nothing helped me. SOO yea im going today in a few hours

I can understand why you'd be nervous.  Maybe you could write down what you want to say to the doc to make sure you don't get nervous and forget?  That's what I always do..have a big list of things to tell him and things to ask him.  And when he sees I have a big list, he always says "what else?" because he knows I have more.

As for the fibro vs JRA, I don't know your symptoms, but it is possible to have both.  Even if you only have JRA, the Lyrica could help if you're having nerve pain symptoms.  If you decide to talk to the dr about the Lyrica, I would stick with the symptoms it treats, rather than what disease you have, because that's really what's important with this kind of medication.

Good luck and let us know how it goes!

Oh, and one more thing...sometimes it's helpful to tell the dr about what you can't do (or decide not to do) because of the pain, rather than try to describe how much you have.  And if you have swelling (that has since gone down), photos are better at telling the story than words.  My dr was shocked at how much swelling I had when I showed him the photos.thanks
i really like my rheumy im just not used to going to her alone. my mom talks to much for me and isnt always accurate
i will mention lyrica cause who knows it could help! my rheumy wants me to try the new biologic they are working on now but it wont be approved for about another year. Otherwise im all out of options. i guess ill mention what i havnt been doing, its not like me to not do somthing cause i hurt so that says somthing when i decide NOT to do somthing with my friends....
thanks for the advice
Have you already been now? It's been a while, just thought I'd ask.  I'd really like to know how it went. Hope you're having a comfortable day!Hey yea i just came back...had a lot of running around to do since i just got home from school.

the visit itself wasnt anything special, she didnt even say anything about my joints when she feeled them except that i yelped when she pushed on my elbows...bt she didnt say anything bout inflamation so i dunno should have asked

im starting on lyrica, stopping the mobic cause it doesnt seem to do anything except make my stomach worse. so ill be on pred 5 mg(supposed to try going to 2.5 but im feeling bad as is...) Enbrel, 15mg methotrexate, and now 25mg lyrica increasing every 3 days if i tolerate it. Im afraid its gonna make me sooo sleepy. i cant stay awake all day as is guess ill see.

a friend of mine was diagnosed with interstitial cystitis, now i now 3 people with it including me! lol

I lost weight....my stomach gets screwed up whenever i eat at school...i came home and found these pants from middle school in my closest that used to not fit i tried them on and now they do....its just like 4 pounds in 2 months nothing major...but i wasnt trying to its just my stomach HATES me. lol but now that im home im eating like a pig!
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