Bah! We went out to AC Moore Crafts and Best Buy and a few other stores "wish shopping" yesterday. Basically just trying to get Justin out and moving around a bit more. With his new pain meds he's finally able to walk longer, and it's on his "to do" list from his doc. So anyway, we went ALLL over. And he did GREAT! Can you believe that *I* was the one that called the day short?? My feet were KILLING me. So we went home and relaxed for a while. Then we realized we were out of tea, and bread, and some other food stuffs. Sooo we went out to the "nice" walmart to get groceries. While there we decided to walk around and view Christmas stuff and toys and do some more "wish shopping" it was great, until about halfway through, and I just couldn't move anymore.
I'd already been hobbling since the start and I just could NOT move. Justin went all the way to the front of the store for me, and got a zippy cart. While he was gone I cried. But I haven't told him that. Heh. I just felt so bad, cause I should have known to stop, or start the trip with a cart....BUUUTT we've been through so much health-wise lately I just didn't want it to be "okay it's my turn to be sick"
So today my back is killing me, and my knee is nice and puffy. I'm EXHAUSTED and I haven't even done anything. My RD appt is still set for January 28th. I guess come monday I'll start calling AGAIN to look for cancelations. I've called almost every day, I swear they're going to stop taking my calls.
On the up side - Justin came out to work with me today. We ate dinner here first, and now he's sitting up here with me playing on the computer. :) He's doing SO much better. He's actually itching to come back to work! I feel a lot more guilty and silly for saying I hurt, now that he's been through what he has. Even though he hasn't said anything to me about it. I just can't help myself.
Oh oh, and my hands don't hurt YET....but I know they're going to, as I've suddenly got a case of the dropsies and that always comes first. So THAT'LL be fun.
So....I dunno. I just know that I over did it, but I'm frustrated because of how far off my appt is, and how suddenly I feel different about expressing myself when I'm in pain. (around Justin) I should probably talk to him, but he has a VERY different view on this stuff. So he probably wouldn't be a lot of help in this case.
I feel better getting it out though, that's for sure. :)
Awww Katie I'm sorry you hurt so bad...but worse I hate you feel like you have to "suck it up". Katie you have a terrible disease, you both have to acknoweldge that too. No wonder you're flaring...you have been run ragged with work, staying at the hospital, waiting on Justin, and being worried sick! Then you window shop til you drop because Justin needs the exercise and you feel bad for him! I'm sorry dear but you two better hope you can stay reasonably healthy...what would Justin do if you weren't there to care for him?
Please talk to Justin honey...tell him how you feel and what your needs are. Don't feel guilty....most men honestly have to be hit over the head and then it's like Duh! "I should have known that".Hey girl!!! Take it easy. Small steps, small steps.
hope things get better for you soon ! one day at a time I guess
Ive been so wrapped up in what is happening to my daughter for the past 8 months(tunnel vision) that I forget that the people on this board are in a lot of pain too. then I start to read the posts and feel guilty that I have not thanked all who have responded to my posts in spite of their own troubles.. it really is a selfless and kind thing to reach out to someone when you are in pain yourself . Thank you
I hope you feel better and it seems like there are quite a few people who care about you so I hope that helps.
hang in there!
Well it was great for you to try to inspire Justin. I wonder if he cryed when he went to get the cart and you couldn't see. Probably not, I am just saying you both need to take it slow right now. I hope you get in sooner to see your reume. I think i was half laying on the shopping cart last time i went to Walmart and i was getting some wierd stabbing painful pins and needles things. My hips it seems were the last thing to really fire up. I should think i would be done flaring at this piont but i am back on pain pills. Good luck i hope the reume gets you all fixed up, in the mean time i guess it is your turn to be the sick kid in the house.
Katie, I am so very sorry! I would still talk to Justin about my pain level, because you need his support. I would also continue to bug the doc about a cancellation. You do not need to wait until Jan.
Do you have some prednisone left, and can you take that through the Holidays? I would enquire about that, and also you need some real pain meds, so you can sleep. Sleep is a valuable thing when you are flaring.
Honey...two questions....why did you go shopping when you were already hurting, and if you were already hurting why did you not get a buggy?
Katie, Im sorry your hurting but no offense it was due. With everything that you have been through lately its not a surprise. But why didn't you use one of the scooters when you were already hurting. Im sure Justin will understand that you are hurting and that you needed one of the scooters from the begining. He loves you and from everything you have shared it is evident that he does. You need to talk to him about everything. Dont feel bad about telling him that you are hurting just because of what he has been through. Though I dont know Justin as well as I do you, Im sure he hates seeing you in the pain that you are in. You have done such a good job taking care of him the last few months (I know even more then that), but you have to remember to take care of yourself as well. I know tht it is hard to do that when our spouses/boyfriends are sick and hurting but we can't help very much if we dont watch out for ourselves as well. Take it easy sweety and do some "wish shopping" online.
I hope you get to feeling better soon and hopefully you can get into the RD sooner than Jan. Is this a brand new RD? Is there any way that you could get a pred pack or more pred to get you through the holiday?
Oo I love you guys. :)
Milly - you wonder if he cried a little when he went to get my zippy cart............know what? He might have. Thanks for making me think of it from that point of view. He IS that kind of guy.
Shel - why didn't I get a cart? Eh...cause I'm stubborn? LOL
Shannon, I know it was due. I just didn't want it to be due!
I got some EXCELLENT sleep last night. Justin finally had me take half a pain pill, and I zonked out, and this AM I feel teriffic. I think I needed some good sleep, and a break. We haven't left the house today and don't plan on it. I don't work until 3 today, and I plan on sitting for my ENTIRE shift. (anyone who argues can bite my boot-ay!
I had a hard time talking to him about it the other day, because he and I were just so thrilled that he was able to do SO MUCH. Honestly you guys, it's probably been 6 or 7 months since he could walk around and last that long! One of the things he and I love to do together is people watch and window shop. So we've been missing out. I was so overwhelmed with how well he was doing, I just couldn't grasp that all of a sudden I would be holding us up.
Now that I look back, I realize that's silly. Y'all know it takes a lot to stop me! I don't give a hoot if I have to ride a zippy cart, as long as I still get to go. For some reason I was hung up on NOT getting one that day. But whatever! I know better now, and next time I'll just snag one at the door. It doesn't bother Justin in the least, either.
I really did feel WORLDS better after I posted this. :) It's nice to be able to let things out around people who have walked in your shoes.
Love ya!
isnt it amazing how much better we feel just from posting stuff? :) im glad you feel better today hope it continues and that work today goes as planned sitting :) i went shopping and got TWO pairs of shoes..i CANT NOT find shoes ever so its a big deal :) have a good rest of the weekendLOL Even if you *can* find shoes, it's still a big deal when you get new ones.
I am at work, and my buttocks is FIRMLY planted. No worries on that one! And yeah, it really is amazing sometimes how much pressure is released just by getting crap out! I swear that's the best therapy for me sometimes. And I've even been able to go back over my own posts at times, and see where I went wrong and what I need to change for next time. Even BEFORE y'all get to me! There's just something about it that draws me in. Gotta love it!
Well, having firmly planted buttocks certainly sounds like a good thing...I think.Glad you're feeling better, Katie!
LMAO "ass roots"
Very nice.....very nice indeed!
Just wanted to see if you were feeling better today. If not--you bug that