I need a pitty party | Arthritis Information

Having a seriously bad day right now and wanting to cry about it.

My doctors ignore my extra symptoms, they say "maybe you don't have ra, but let's treat it as such anyway cuz it seems to be your immune system no matter what" instead of trying to find out if it is an infection, bone cancer etc.

A specialist won't help cuz my mom in law is the only one to relay messages about my health and she got it wrong so the lady said to keep visiting my rhummy (mom in law made it look like only ra instead of all the other stuff, so much for family using their brains and listening when i tell them what is wrong).

Bacterial Vaginosis keeps coming back every month. My RA started the day my polyps came, said it was the big jolt that caused the RA to wake up and my uterus has been on the fritz since day 1 of the RA and odd body swelling, but my doc for the woman's clinic is at a free hospital (im low income) so i have to take someone who just graduated from college and knows nothing and i have to wait 6months for each appointment and according to a doctor on the web, my BV could become cancer by then.

My body rejects all meds but prednisone for some reason (haven't done biologics yet, still waiting on funding department). But i take mtx etc. and get 100% worse, i do the oposite, flair instead. so i can't take anything but pred and they won't give me more than 5mg so i take 2 pills a day cuz i can't walk to the bathroom with any less.

I take mobic generic for my celebrex sub cuz celebrex swells my legs up (calves) and the other over the counter ones make my breathing go crazy.

I have asthma brochitis weird stuff that comes and goes through the year and i don't know what triggers it except that pinesol and bug killer causes me to stop breathing.

I want to cry.

My doctors don't listen to my other symptoms, alergist doesn't care about ra stuff, family doc doesn't know about anything but broken bones, ra doc only knows regular arthritis stuff. I just can't win and don't know why they can't figure out what is wrong.

I get worse with every year, never better. My body shuts down more and more. Last year the breathing problems started, this year it's the vaginosis that won't stop.

I just wish i had a billion dollars so i could go to john hopkins so they can do a thing like tv show house does to figure it all out.

Thanks for letting me pitty party. I have no body to go to, my husband is confused and upset that he can't help.

I don't want to die, but if i don't have the prednisone, i can't sit, can't roll over in bed, can't walk without support to take 3 steps, can't hold a spoon and can't breathe.

It's scarry. And nobody will help. My allergist was supposed to call last august and never did. Rhummy ignores me, yet when i see her she says how horrible this is and we should do emergancy tests, then i don't hear from her for a few months etc.

Just going nuts and waiting for the day i end up in the ER. I wish i knew someone like me, maybe they would know what it was.

Hugs, Bubba -

Hugs, hugs and more hugs.

Please, just hang in. Is there another clinic that might get you a doc that listens? In another city?

Pip

Wow bubbagump. Sounds like you need a team of doctors that will sit down
and sort it all out and get to the bottom of it. Try with a new RD and see if
you can develoop a better rapport with him/her. I feel bad for you. Please
hang in there and keep us posted.

So sorry Bubba, that's screwed up!

I would call, call, and recall, my rhummy and allergist until I got some reply or help. If they don't help maybe you should go to ER. Maybe they could hook you up with another dr that can help.

Hang in there, I wish I had something better to say, but someone will come along that will help.

take care

Oh my goodness yes you do need a pity party! I'm so sorry hun! You must just feel like you're running into a brick wall over and over, eh? Well it can't stay standing forever. Keep beating the hell out of it, and it WILL tumble down!

*hugs, hugs, and HUGS!*

And ya know.....I can't believe I'm gonna say this.........why can't you try AP? You say you keep getting bacterial stuff, it just seems like a good move. Ya know?
Oh Bubbagump I'm so sorry you're having such a bad go of it...Please know we are here for you. I agree with Lorster (ok...scary) is there another RD you can see, even if he/she is a little further away? Keep your chin up and keep after the docs. I agree Katie...I would give it a try if everything else failed me too. Bless your heart Bubbagump, you sound so down, hope you get some relief from a much needed vent. Then I pray you can get some good medical treatment that will help ease your pain. Hi Bubbagump, I agree, you need to see another rheumatologist, or otherwise bombard this one with phone calls, do not let up, you cannot afford to wait, they won't do anything for you unless you create hell, get moving girl and create it, you are angry and thats what you need to get you through this, when I am angry, I can move mountains, keep at 'em, love Janie. Keep coming here too, as the support is definiitely required and prescribed by us to you, take care xx Wow, that is so discouraging! Is there a case manager at the hospital that will work with you or a medical social worker? If you are on Medicaid you can check with your states department of health, they may have an ombudsmen. It might even help to have a friend who is medically knowledgeable to be your advocate. It is hard enough to go to all the doctors that you have to go to, be out of breath, in pain and now getting the run around. I hope things get better. I'm so sorry to hear about all that bubba, you really really need to find a DR you trust and who cares enough to take care of all of you. There are specialists out there who will deal with more then just their area of specialty, I know because I am lucky enough to have one. I understnaed you are low income but that shouldn't have to mean you have low treatment options. I say get aggressive... Keep calling until someone pays attention to you, You deserve to feel better!!! Keep your chin up and try to stay positive, you are in my hear and in my prayers

I know exac what you are going through. I have been there. I am there but also am treated by a PCP that is a wonderful conscientious DR. who gives a darn.

When you do not have medical insurance it is nearly impossible to get some Physicians to listen to you. Money comes from the next exam room after you at times. Liek you, I did not ask for this disease nor did I ask not to be able to pull my own weight in this society. My sister na dmy mom support me. I do not like it and it hurts the pride but I have no choice at this time.

Typically when I get my mothers' finances situated for her ( one knee replacement down, one to go in January) I will be able to budget in a RD appt. hopefully in the summer; if they will still take me. That is a long drive for me unless I can see my sisters' RD here in Michigan.

It does seem hopeless, it is unfair. I htink what you have to do is just make your appt., agree to make some sort of payments even if it is just .00 per month. YOu have to take care of yourself.

It hurts, you are in pain, you are lethargic, scared and disappointed.........right? I have been there..I get there sometimes adn it is difficult to impossible to manage and make it through the day, but you have to.

Pred is my enemy right now. But I do not regret taking it those years that I so desperately needed it just to get through the moment, to raise my children, to go to school , to go to work. YEs I pay for it now but I had to take the pred at the time, so I deal with the effects now. SOmetimes you have to do whatever it takes at that moment to make it through.

Keep searching for a clinic, do not give up, make yourself HEARD to all the DR.'s, make them listen and if those won't, go to one that will! WE only get one chance at life, keep trying!

Hugs,

Jodie

Bubba- I am so sorry for what you are going through. You need to see another RD, I had such a bad time with my old one but now i am seeing light at the end of the tunnel with the new one.

Lots of hugs to you

I hope things start to improve for you soon.

Much huggs & prayers

hi bubba, gosh i'm so sorry your dealing with this. i agree with everyone on needing a new dr, and i also think that you need to call call call and call some more untill someone starts paying attention. it might not be a bad idea to go to the er to get some relief, and some support from the hospital staff on other resources you can use.

i hope that you start to feel better soon, any time you need to vent please feel free to do so, and sometimes a good cry is needed as well. know that you have support here from people who understand. hugs!

argh...I get so stressed out reading your post I can't imagine how it must be to be the one dealing with it.

BV can be treated with about 10 days of flagyl (also sometimes used in AP---I don't know if there's a connection there). I had BV once pre-RA and I researched some home remedies. I only found one of douching with hydrogen peroxide. That seemd kind of weird to me so I went the flagyl route. You need to treat the BV because I don't think it goes away on it's own.

I'm having weird things going on down there since RA as well, including the appearing and disappearing roving fibroid cyst (currently MIA), plus a polyp which is being hysteroscoped next week. I can't say these things are all connected to RA except I have a gut feeling they are.

Bubbagump, I wish I could adopt you and get you some better healthcare! I don't know enough about how your healthcare works to give any advice, but you do have my empathy. I hope things improve soon.
PS....I would also reccommend you take a serious look at AP because many people report their asthma also clears up on it. Everyone in your position deserves one big pity party. I hope things get better. Maybe with the next president. I would be freaking out just like you if I did not have good medical care. I am so sorry. I would more than willing be taxed so everyone could have equal medical care. It is just not fair. Try not to let your head go to the worst possible outcome - try to be positive. Wishing you a pain free and worry free day today.

Hugs.

Oh sweetie, I am sorry you are having such a rough time. It sounds like it's time to make some changes. Call, call, call, until someone listens. Go to the ER They have to see you and maybe the patient advocate there can help, just ask the nurse to have him/her come see you. They are there for you.

Feel better soon....

Deb