What We Are Goddamn Here For!!!! | Arthritis Information

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Well, the time has come for me to say something. I have been watching and waiting and now...it's time.

I am an experienced, respected member of this board and I am completely disgusted.

I have thought of leaving but I refuse to be driven from a place where I can help others and where I receive support.

* We are help to learn about RA.
* We are here to offer support to each other as we all experience RA.
* We are here to inform, care for and support other RA sufferers.
* We are here to offer hope to each other through this awful disease.

* We are not here to be the No 1 arthritis forum on the internet (who gives a damn)
* We are not here to judge, criticize or bully.
* We are not here to be negative and destructive.
* We are not here destroy each others spirit.

So I will hang around and post around all your goddamn bullying until you run out of steam.

Meanwhile you are all bickering and attempting to destroy each other...I and a few others will try and answer some newbie's questions...remember them...newbie's, people who have just been dxed with this disease and are in shock and a tad stressed.

And then there are the other member's who are experiencing a really rough time, who maybe we should post something supportive...oh, no that's right, we are too busy destroying each other and being children.

I agree!

It has gotten really bad this time.  I don't even understand half of what the problem is.  Especially what Larry is so mad about.  Please don't berate me, Larry.  I just don't get it.

I hope you will be taken seriously Cordy.

I'm here for the cookies too.

Cookies.HA maybe if there were cookies all would mend.

I just skip over the nasties. I do nto need the stress or the bashing.My time is actually worth more than that, at least to me.

HEy good news, Gabreon got a picture interview and Nya was auditioned for a movie...my daughter is doing better and I ma not as stressed.

Good news people, lets share good news!

jode

Here, here!!!! Jode, exactly. Thank you for your good news. Lovely to hear you and the kids are doing well. 

 

I totally agree you guys! [QUOTE=moana]

 

I totally agree you guys!

I'm happy to see the good and kind souls who helped me so much when I was first Dxed are still around.

This is a SUPPORT group, and I'm glad I found it.

Keep up the good work.

Ellie

Hell yeah!! I totally agree!! You go, girl!! *whistle* Much love to ya, Cordy!

Personally I just ignore anything that doesn't directly relate to me, or for which I can offer advice or suggestions. 

IMO the political stuff has no place here, but if people want to discuss it, fine, I can ignore those posts.  Yet nasty remarks and arguments of a few folks, political or otherwise, have the ability to ruin this kind of message board for many others. 

That is selfish, another facet of human nature, unfortunately.  But again, I treat this place like walking through a cow pasture, just being careful where I step, so that I can avoid the "bull."  Why does it ruin it? ONLY READ THE RA THREADS. It's very simple. This is
not rocket science. If you open up a thread that you are not sure about, and
you start to read something you don't like or something that may be
controversial, then close it and don't look back. it should not interfer with
what your goals are on this forum. Stick to what you are here for. I don't
know why this is so hard. This thread is just more of the problem.Cordelia,

At the risk of being the next person to be blasted off this forum, I thank you for your EXACT evaluation of the nonsense on this board.  You are a breath of fresh air.  I'd like to make an observation, if I may.....

After 20 years of being a nurse and working a great deal of that time in the psychiatric unit caring for alcohol and drug detoxing patients, it appears to me that there are a few people who act like "text book abusers".  You know the ones that drink heavily, abuse the people they care the most about and then when they sober up, they're different people.  I'm not saying any of the nastiness is due to alcohol or drug abuse, it's just an observation I've made of some familiar behavior.  Still, I find great advice and some really nice people to chat with and that's why I come back.

Regards,
KIMM
kimm, thatnks for the insight. I have been lately thinking alcohol abuse might be at the bottom of some of the Jekyl and Hyde stuff myself.

Just skipping thru today, it does appear the board is still stuck in a movie trilogy of:

One who flew over the cuckoo's nest;

The shining; &

Bugs

LOL LuAnn

 

Kimm - I am a 17-year recovering alkie, and you are dead on.  Alcoholism fuels and lubes alot, mostly politicians LOL.  Thanks for saying it, because I was afraid to.  People can be two different personas when drinking then waking up the next day, and the back and forth of some of the personalities in here had me thinking alcoholism for a long time.  But that's for them to decide, not me.  I just watch the postings and see the patterns.  Take care and thanks for being a nurse.  CathyThank you Cordy.  Well, now according to Larry's new thread on me, I am the drunk one...oh, do please check it out. I think it could be a tad of transference happening there.

But hey, since I know the truth and most of you know me well. I just want to laugh at him.

And Lorster, that's not the point...only reading the RA threads, the point is that it creates a whole let of negative energy that people with RA don't need. Is that really what the majority of the board members want???? Is that what you are here for? Fighting and negativity or RA?

Cordelia, you summed it up perfectly

I stay out of it. Read daily, post little. I am shocked at the nastiness. Debates are one thing, but this is just crazy. So much unneccesary hate. Its actually pretty sad.

Sarah, I do similar usually but I am just finding it so sad.

I intend to go back to posting for support and posting to help others, nothing more.

Cordelia,

I'm glad to hear you will keep posting.  I was only diagnosed recently and you have been very informative in the past.  I know I'm only just beginning to experience the hell of RA and I want to know there are people like you out there who can listen, help, and brainstorm with me on the best possible care.

Oh, and btw, don't let the "usual suspects" get you down.  I think it's pretty funny the way some people are so easily shaken.  My mother always said, "the louder they yell, the more you know you're right"!  (hope that makes sense) I leave to rest & eat and now everyone is drunkards!I'd say your mother was a very wise woman, Kimm. Joonie, I love every post of yours woman. You brighten my day often, make me laugh and have some truly worthwhile and wise things to say. Thank you for being here because it just wouldn't be the same without you. Joonie...you always make me have peepee panties!! 

Well said, Cordy!! Once again, the Voice of Reason will prevail.

Thanks so much for stating these necessary facts so well! I really miss our wonderful support group, when the few manage to cause such turmoil for the many wonderful people here.

We surely need each other, or most of us wouldn't be here. At least, I know that I need the wonderful friends I have made here. I'm so glad to see that so many of you feel the same!

Hugs, Nini

It amazes me that some of you are so turned off to the controversial, nasty,
filthy, political, peanut eating threads but it is ok to not only use vulgar
language in the thread, but to title the thread with vulgar language. Cordy, I
agree with much of what you say but seems to me there is a double
standard here. Not to mention the amount of feedback your thread has
gotten. Isn't this the same as what you are critisizing others for? I'm
confused.

Cordelia,

Good for you. I just don't read any threads that look nasty. Frankly, how do people have time for it? I feel bad that I don't read more of the legitimate threads and respond. It takes most all of my energy to get through a day in the real world and to keep up relationships. I greatly value the support and help this forum provides but I sure don't want to waste precious energy on getting involved in jr. high drama. Besides, I am constantly fighting flares brought on by my "real world" stresses. I sure don't need any more.

Laker

Lorster...I do agree that the title of the thread was quite offensive...but I agree with the context of the thread itself. You have to agree that the political threads were where our feud began. I myself can't go on with my part of the negativity. I can't be sure, but maybe it has something to do with this current flare hanging around so dang long. I have doubled my prednisone and increased my mtx. It has not made a difference as of late. I just want a place to feel safe and share my concerns and fears.

I know you will find this hard to believe, that although I care nothing for your politics or religious beliefs, I think you have an awful lot to offer myself and others here with our illnesses. I am VERY glad we have waved the white flag and wish others could do the same. I pray that nothing I have said in this post offends you...it certainly was not intended to.

  Great post Blessed!  Hi! My name is Beth and this is my first time on this web site. I am confused about this forum.....I'm wanting for help for dealing with osteoarthritis. Am I in the right place?

Hey Beth -

Yep, you're in the right place.  We tend to get our knickers in a bunch and it can be quite disconcerting to new members.  You might consider posting a new thread and introducing yourself and asking some questions.

On the plus side we do jump in with hugs and support and we have a wealth of info amongst us.  We just have this little ***emotional*** aspect of this board. 

We do grow on people, tho. 

Hugs,

Pip

I have just realised something. I had no intention of upsetting anyone with the use of 'goddamn' in my post title.

In Australia it is just not considered to be a swear word at all so if I unintentionally offended any of you I am truly sorry.

In AU, that would be considered to be very, very mild. I won't mention what we out here, would consider to be swearing or cussing, it would make your toes curl.

So Lorster I was unaware that I was doing something that would seem like I was doing what I was complaining about.

I am giggling to myself too because by AU terms I am not someone who swears...so you taking offense to what in my culture would be seen as a mild alternative to 'REAL' swear words...seems kinda funny.


[QUOTE=Cordelia]I have just realised something. I had no intention of upsetting anyone with the use of 'goddamn' in my post title.

[/QUOTE]

In this country, using God's name in vain is not a good thing for most people. But, people here break that commandment quite often too. I just can't believe you used it in your title.

Regardless, I understand what your trying to say and I do agree with it. I tried to be a part of the board but was blasted off. I think a lot were. This isn't a place for newbies. They won't last long.

I remember when this was a nice place to visit.

Not anymore.

God Bless,
Vicki [QUOTE=Cordelia]I have just realised something. I had no intention of upsetting anyone with the use of 'goddamn' in my post title.
In Australia it is just not considered to be a swear word at all so if I unintentionally offended any of you I am truly sorry.
[/QUOTE]

And I will back that one up Cord.
Over here that one goes straight thru to the keeper.
In base ball terms, not even worth a swing.
Exactly right, Bodak, I had absolutely no intention of offending anyone. That's just how I talk normally. And here, I am told often by people that I am not a swearer, so I am truly sorry for upsetting anyone but that was not at all my intention.

I remember you, Vicki. I am sorry you were blasted off but that is exactly what I am talking about.

When newbies come on they are bewildered and confused by this behaviour that is going on.

I don't care if you have a right to do it, it's not very appropriate behavior.

I have no objection to separate political and other OT topics but when people ask an RA question and then there thread gets hijacked by other people fighting, that is just plain rude and far worse than me saying 'goddamn'.

I am sorry Vicki that you have not felt comfortable and welcome here. That is just not right.

Hi Cordy, Different people speak and say different things according to the country they live in and I cant see any words that would offend anyone. British people often say words that are misconstrued elsewhere and it causes offence but we do have to take into consideration the difference of the english language .

Evidently I did, Pinny using the word 'goddamn' but completely unintentionally. In AU that is just not a real swear word. I won't mention what is. 

Well one thing I can say is that it is nice to see you on here sounding a bit more upbeat. Maybe this is all a bit therapeutic

I cant believe he attacked you so visciously as you are one of the people on here who gives so much encouragement to others and provides us all with some good information.

I am definitely in less pain the last couple of days, Pin. This patch thing seems to be doing the job, which is great and although not pain free because the agony has stopped, I am feeling much more chipper and with it than I was...I am also absolutely a lot more functional also. Just getting some relief from that constant and gnawing agony, makes me want to do a happy dance but I am not going to push my luck. Yes, I am a little more myself, hey.

I'm not saying this to any one person in particular OR to be mean.  Please don't take it that way....but here goes.

I don't understand why so many people who are so against all "these types" of threads continually post new threads or post to existing threads.  If everyone wants these threads to go away, why start a new one?  It seems like everyone "wants to say that this stuff has to stop.....", but everyone is posting the same things.  These types of threads just keep things going IMO.  I see no difference between these and the others except there isn't any specific attacks on this thread. 

As far as the title, cursing doesn't offend me.  However, I know it offends many on this board.  So....why is it o.k. for one person to do it, but if someone else does it, it hits the fan?  I just don't understand this double standard the members of this board seem to have for each other. 

Phats , you and I have never had any issues.

I am not going for anyone in particular. I am just saying I thought we were here to support each other through RA not make the whole board of fighting threads.

If people want to fight go send vicious emails to each other, if that's your thing.

My concern is this and it's happened every time the board starts fighting big time...the newbies are confused and bewildered for starters, they are too scared to ask questions or post anything. They are new and shy like people are when they go somewhere the first time and they walk into this fight zone. Oh, and I have had several of them mention this to me and several of the newbies today have actually posted that this was a problem.

But even more concerning is someone asking a genuine RA based question and by post four the whole thread been hijacked by people arguing. That particular person said to me that she didn't even bother checking her thread after post three because the only posts on it were people fighting about something else.

That isn't being direct or saying exactly what you think or standing up for yourself...it's just rude.

So Phat's if you decide to have a issue with me from now on, because I pointed out the purpose of this arthritis board not being about people's own personal agenda's but is actually about supporting each other through a tough chronic disease, then I don't mind. That's fine.

I am not going to apologise for being concerned about people with genuine arthritis issues that they are wanting to discuss feeling like their is no point.

Yeah, all the 'fighters' have their rights and they are quick to point them out to anyone who questions their behaviour but the rest of us who are here for arthritis support, well, we have rights too.


Um, get off your hind legs please.  I *said* I wasn't trying to be mean, I was simply making a statement.  I don't have a problem with you, I *think* I said that in my first post.  I merely stated that threads like this don't help the overall morale of the board.  Threads like this keep these issues in the forefront, just the same as the bashing threads.  There are 6 pages of people saying "we don't want this".  It is the same old stuff, over and over again.  If people don't stick around long enough to find out what this board is all about, that is their loss.  You don't know if people would stay even if this board was peaches and cream all the time.  This board is not for everyone.  There are many who won't find what they need on this board.  There are many who WILL.  Those are who we hope to help.  I think most, if not all people get their questions answered.  I have posted on a board and NEVER received an answer.  I agree that many people are using this board as their only social contact and perhaps that is why people are getting so up in arms over the "controversial" threads.  This disease is pure H*LL, as we all know.  There are many emotions we all go thru on a daily, sometimes hourly basis.  There is nothing easy about this disease whether you work full time, or stay home full time.  No one person on this board is any more important than another.  We all have different ways of dealing with things.

I feel like many people aren't in control of their disease, so they try to control the board.  Why is it up to us to save every newbie that comes this way?  I'm NOT trying to be mean.  I'm NOT saying don't help the newbies.  I'm just saying that it isn't my job, your job or anyone else's job to "save the newbies from the dreaded nastiness on this board". 

Cordy, you seem extremely defensive about this.  As I stated, I'm not trying to start a fight.  I simply stated *my* opinion, which is what everyone is fighting for, right?  Why on earth would I have an *issue* with you from "now on"?  Sometimes I think you guys are just looking to stir things up.

Just my .02

Geez Phats...damn well said!!!!

I'M WRITING TO THE AMA TO TELL THEM EVERY WOMAN ON HERE HAS PMS ON THE SAME DAY! LET THEM FIGURE THAT ONE OUT

Donn, you like to live dangerously, don't you?

 

Cordy, clean out your inbox.  Been trying to pm you.  Lindyas a newbie who WAS saved, i thank you. I wasnt' 'saved' in the way you think. i was saved by those who private messaged me and told me they left becaues of the few uglies who post here repeatedly and put others (like myself) down. they come here to find newbies like me and bring them to antoher site. i would not have found the other site if it weren't for htem. so thank you to the ones who messaged me and i will be goen now (the hateful ones can applaud now. mission done.)

This board is no different from real life and double standards.  It is a fact of life.  Case in point:

Julie Roberts tracks down photog and even drives on the wrong side of the road to confront the offender. Everyone praises her???

But did anyone notice she was filmed parking in a handicapped space because well I guess she was in a hurry.  Duh.... Now what is wrong with this picture?

Was she the saint or the offender, You decide.

My point is this is life and goes on all the time not just on this board.  I do feel if people's post anger you then just get off the internet for a while and take a break. Enjoy the scenery and the balance in nature.

I wish you all healthy days ahead. Enjoy life

LuAnn

Off to see our little town's Christmas parade.

stemcell4me39417.5127662037Thanks Phat's for your other post, appreciate you clarifying that stuff. You are cool with me too.

So let's get on with the RA.



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