OT cystic fibrosis | Arthritis Information

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jode

jodejjr39459.6778587963 Jode I hope everything turns out well for your daughter and the baby. Can the test be made on the baby invitro? Tell boy friend to suck it up!If she can go through pregnancy, childbirth and all the needles and invasive procedures that entails, the least the BF can do is get a blood draw done.

jode

jodejjr39459.6780208333

jode

jodejjr39459.6781944444

Sweetie -

Don't worry so much.  Both need the gene.  And even if both have the gene they only have a 25% change of the baby having it.  I wouldn't even consider an amnio without knowing if he had the gene.  It's too much risk for the baby (IMHO).

Having the gene also would not be responsible for the URI's. 

Hugs,

Pip

Hope everything's fine, Jode.One copy of the gene is thought to boost survival rates from typhoid, dysentery, etc.  Kinda like sickle cell anemia.  One copy protects against malaria; two copies gives you sickle cell.

Jode, My thoughts and prayers are with you and your family.

Of course the b-friend must get tested. There just isn't any question about that. Even if he is a giant weinie

Try to keep optimistic. I know it's hard, but if the chances are 25%, if he is a carrier, then they are 75% that the baby will be fine, right?  How is your daughter? I hope she is doing well and trying not to let this get her down. If the b-friend is not a carrier, does that mean that the baby will not have CF?

Please keep us posted.

Hugs to you and daughter, Nini

Yep, nini, if BF doesn't have the gene, the kid will be fine.

Oh hunny...Im sorry to hear about the new troubles now.  Where does her bf live?  If we have to have a posse from AI to hold him down to get the sticken blood work done....Yea its the least he can do if she has to endure all the physical pain of child birth

I agree w/ Pip though.  W/o knowing for sure if he is carring the CF gene I wouldnt consider getting an amnio done either.  Heres something she will have to think of as well.  Is her mind going to change on wether or not she will want to keep the baby if it comes back that the baby does have CF? With the risks that are there to get amnio's done that is something she'll have to weigh in her mind.

Hope everything comes back fine and kick that bf hard for me...BABY lol jk

THank you all so much!!!!!!!!!!!!!!!!!! MAny hugs to you!

jode 

jodejjr39459.6785069444

My dear Jode, It sounds like you and your family have a very strong bond, and the ability to deal with life as it comes. 

I have no doubt this baby will always know it is loved and cherished. It sounds like you have a wonderful family!

Hugs & love, Nini

 

I could not have made it through this day without everyones support...thankyou so very much!

jode

jodejjr39459.6787384259Jode, you and your family are an inspiration.  You all just get in there and do what has to be done.  You're right, the odds are very much in your favor, although it's obvious your family can handle whatever life has in store.  I'm thinking everything's going to be fine.  Please let us know all is well as soon as you can.  We're thinking of you.

One good thing is that she is a carrier and isn't sick.  My nephew has Cystic Fibrosis, my brother is a carrier from his father, i have a different father.

This disease can cause other things.  By him being a carrier and his wife, their 1st child didn't have it, but her growth became stunted and she is only 4ft 9in.  Then he was born with this disease.

I would get him tested so they know what they could expect.  Not every child they have will get it, in fact there is a big chance that none of their kids will get it.

But, this is something that would be good to know beforehand so that you are prepared for what the doctors might say.

Personally, living with this in my family, I have thought a lot about it and i would "not" like to know if my husband had it (if i had the gene).  Having our own child is a blessing, and even if she got sick, having her live her life is a wonderful thing.

He is almost 30yrs old now, still doing well, they get better and better meds all the time.

I do hope and pray that everything goes well.  Search for cystic fibrosis on the itnernet, there are tons of sites with good information.

Every parent is different and the decision will be hard for your daughter and the father.  But together, families can make it through anything.

I asked my nephew once about his disease and he said he is very happy to have lived his life.  Just wishes he was a nicer kid growing up.  He was spoiled due to being sick and he became very very very rotten.  He of course isn't anymore, but wishes he was treated normal while growing up.  But he's very happy about his life and for that, it can make you think that having a child with a chance of sickness can still be far worth it.

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