I got my anti ccp test done at 6pm on Wednesday at a private Docs -
cost a fortune - since found out that if its positive there's a 97%
chance that its RA - sure I don't need to tell anyone how anxious I am
waiting on the result. Anyway - the doc said at the time that the
test would be sent away that night and I'd have the result within 48
hours so I've been sitting here by the phone, jumping out of my skin
every time it rings. SO, the receptionist said the doc would
phone me at 2.30 with the results - feel like i've been sitting on
death row - then - they phone and say that the lab only recieved the
tests this morning and i wont get the results until Tuesday now.
I am so angry - I'm disgusted with the way people treat RA - like its
waiting for a hair dye sensitivity test or something - they have no
idea.
Thanks for listening - needed to vent spleen - again
I am sorry Julie! Hopefully they will have it done by Tuesday. I would just enjoy my weekend. And start worrying about it again on Monday!
Hope you are doing a lil' better. I know you probably are not doing much better without meds and all, but the weather does effect how RA is doing that day.
Yes; I've learned that's just the normal for all doctors offices here in the US as well. No one is nearly as concerned about us as we are. I've had numerous test done over the years for an assortment of problems and I always have the same problems. It makes me so angry.
You hang in there girl....no doubt it's frustrating. We'll be anxious to hear your results as well....be sure to let us know as soon as you hear.
Try to have a good weekend with that fantastic husband of yours. Try to do something to distract you if possible.
Take Care,
Lovie
Is this the same as C Reactive Protien? I had that test done last Thursday with all my other tests, and I didn't get the results until yesterday (the following Thursday)..VERY FRUSTRATING, I know. Hang in there and try to find something to take your mind off this stuff for awhile, not easy I know...I kept myself busy by reading a lot or going out with friends, I have gone for a few walks in the woods too, that REALLY helped. Good Luck! I know how you feel.Some dr.'s don't realize how much we hurt,how much we need to be taken seriously.Maybe you will get the results sooner, I hope so.Julie~You'll find that you'll learn more from the folks here than you'll ever learn from your doctors. These doctors have such a short time to spend with us. When they only see you once every couple of months it's very difficult for them to remember us; or remember anything about us or our illness for that matter. It's important for us to all be our own biggest advacate. Don't be afraid to mention something to your doctor that you've read about...or even print off something and take it to them for questions. Once they learn that you know what you're talking about and you won't be put off or brushed aside with another prescription for pain medication they'll begin to work harder to help you. It's a team effort...with you being the Captain.
We all understand about the problems with your husband too. Even if you have the kindest, most caring husband in the world....he's not going to understand 1/2 as good as your friends here will. Only the people that experience this everyday will truely understand. Only us understand that no matter what day it is...or how you may look that day RA is on our minds whether we like it or not. That's not something you'll want to share with your husband constantly...and quite frankly it won't be something he'll want to know. He'll get exhasted by the whole things too; but that doesn't make it go away. Come here and rely on us to share that burden with you. Be cautious not to scare him too much. I know you're afraid...but remember this is frightening for him too. The mother of his new baby more than likely has a chronic illness. Remember that's something he wasn't planning for either. Help him understand that although you don't feel well; you're still going to be a loving and devoted wife and mother. He's scared too. Not many husbands here even read about their wife's illness...let alone inlist the help of complete strangers to help support their wives through a difficult time. Don't be too hard on him. You're going to depend on his love and friendship so much...don't let it drive a wedge between the two of you.
I'm real glad you're be coming involved with us Julie.
nah you will be there to join in the chat. I will wake up especially for you in the mornings.Me too - It's the only place i feel safe at the moment - there is no way I could get through this without you all - I've never even been on a forum before and its true - you are the only people who understand - I've been offered so much help, info, support and genuine caring - I just hope you all know how great you are and what big hearts you have to spend time reassuring others when you're dealing with the same thing yourselves.Eventually Julie; you'll be here doing the same for others. Trust me we get as much out of it as you are.
Hopefully you'll find a place here and stay with us. Not many of us come here in a time of need and then leave when we're feeling better. Even when we're feeling better we still face daily struggles and it helps us all just to be together.
Like I said before; even though we may not look like it, and no one else may even know we have it...RA is on our minds everyday. That's not to say it overwhelms us or consumes us...but it won't let us forget. Eventually you;ll come to understand my meaning in that.
Yeah, it is always on our mind because we HAVE to REMEMBER to take our MEDS! Otherwise we will just be back a square one and hurting more then need be...lol.
What? I have a problem with remembering to take my meds, especially when I am feeling better. I know shame shame on me. Hi Julie! On my second visit to my Rheumatologist he did order blood tests to prepare for my taking mtx, and at the same time ordered the anti-ccp test. However, he didn’t tell me about the test before hand, so I had know knowledge of it until I saw him again! So that was good for me…no stress from waiting. I’m sorry you are having to wait until next week. It is so hard when given a certain expectation only to have it put off. Don’t know why medical people do that, because like you, I would be constantly waiting by the phone. Ughh!
Anyway, from what my RD told me, if you test positive for ccp, it ‘s pretty sure that you have RA, that it is probably in it’s early stages, and you need to start aggressive treatment. Now, to be honest, I am a little confused. He told me I did test positive for CCP…does that mean I am positive CCP or positive anti-ccp? Does that make sense group?? Hang in there Julie and keep us posted!!!
Now as for food I do not forget to eat...lol.
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