Well, I'm still struggling with the ringing in my good ear and will call the RD tomorrow, since the ENT was of no help. I'm also going to go for yet another hearing test to see if the latest one was correct in showing a slight additional hearing loss in my good ear. That may be the reason for the ringing. I can only hope not.
Which brings me to my question. I've chickened out out about cutting back on the Plaq. in case the doctors are right and it's the disease and not the meds causing the problem. I'm having some pain and stiffness, especially around my neck which makes me wonder if that's related to my ear problem. I've taken some Aleve but would like to move up to the naproxen instead which I have a prescription for. I'm really uncomfortable adding this additional med to the mix, especially since today is MTX day. Do you spread out your meds in any way if you are adding a pill you don't take on a daily basis? I'm not even sure if it makes any difference to my liver, stomach, etc. but I feel like if I spread them out a bit, even by just a couple of hours, it's less assault on my body overall. Have your doctors told you anything about timing of extra meds?
Look, no, I have to say I don't in particular.Thanks Cordy. You're probably right about the meds and the liver/stomach anyway. I'm grasping at straws, I guess.
Yes, Milly it is serious and I'm very worried. I'm about to do some research on autoimmune and TMJ because my jaw on that side just started to ache. I seem to remember someone here saying something about a connection with AI disease and TMJ. I wonder if it has anything to do with the ringing.
As for the RD and ENT, I feel like the ENT has handed me over to the RD for any other treatment because he thinks it's AI related. I may just have to find another ENT. Thanks for your post and your prayers.
I am very sorry about your ear problems too, Jesse. I have had very bad ear and jaw pain in the past with RA. It's awful. I have read what you have been going through and it just sounds like it would drive you crazy. I believe your doctors could be right and it could the the disease, in fact, I would bet on it.Hi Cordy, I've been searching past threads and I did find that you, among others have in fact had TMJ pain associated either with RA or FM. I don't know if this qualifies as true TMJ but it sure does hurt and that along with my very sore, stiff neck the past week makes me think there's a connection with my ringing ear. I can't wait to talk to the RD tomorrow. I think I will take a naproxen tonight so I can get some sleep, MTX or not. I think you're right that I can take it and thanks for the help. I'm just overly cautious sometimes and I need a little push from others who have had experience with good results. I probably should have called the pharmacist, but honestly, I didn't even think of it, duh. I always think of this place first because I get good answers from people who have "walked the walk."
Milly, I had asked the ENT if he thought the deafness in my left ear was from AI disease and he said no, but he thinks this problem is. He sort of left me hanging by just telling me not to take the pred. unless the ringing gets louder but didn't offer any help. And that info came via the nurse when I called a week later. He wouldn't even talk to me. So much for him. He did do an exam of my ears and down my throat and everything was normal at that time.
The RD told me once before he's concerned about AI inner ear disease which is why he wants me to stay on the meds. I think maybe now I need something stronger. Damn. Up the medical ladder I go. But if it will save my ear, I'll do it. I just want this to stop.
Gosh, Milly, your ear has been throbbing since September? How can you stand it? Couldn't they do anything for you before this? How awful!
I get extreme neck and jaw pain and paproxen is a godsend and I take mtx tooWell yes i guess they can or they could if i can get my teeth and infection straightened out. I am on prednisone and taking vicoden for pain. I start taking Arava as soon as i get rid of the infection. I mean argggg. I am not just sitting around in pain. Well somedays i guess have been very painful. I can hear at the moment. Well i am in a bit of pain but it is more my back and shoulder that the pain meds are not entirly covering today. I would fight for a sooner appiontment but i have to deal one problem at a time i guess. Dentist tomorrow then I will fight this RA with all of my energy. I am really almost done with the dentist. He wanted to try to fix a tooth instead of pull it and it didn't work other wise i would have been done with it last week.
Jesse, update us tomorrow after talking to dr. I been having ear aches and neck pains off and on for awhile. One time I went to primary dr and she said the ear looked ok. In fact this weekend my jaw and ear both hurt and I have had a very sensitive tooth on the same side for a long time. I had a filling put in when I was 16 and now I'm 41 and the filling has worn down and it is sore. I probably oughta get it taken care of but I keep putting it off and it comes and goes.
I hope you get some good answers tomorrow. Let us all know.
good luck & take care
All of that can be RA, Jesse. RA can cause the weirdest pain in the weirdest places.