Anyone got a good article on ap and sarcoidosis? I have been googling but not finding much good info. I would like something to print out and take to the pulmonologist this Friday. If he says he won't do it should I go against his wishes and try to seek out a dr that will? It all seems like it takes so much energy and I am not sure if I am up to another fight at the moment.
However, if sarcoidosis has been my problem all along and I don't have ra than we know that the humira kept it suppressed because it wasn't until I stopped all my meds that it exploded with no uncertainty. But even while it was supposedly suppressed with the small dose of pred and the humira, I still felt like crap. Is that the fibro or do I really have some micro organism running rampid in my body?
Hi Michele,
I haven't read these studies myself but a quick google dug up this
little list of medical studies and links to pubmed which are all to do
with healing sarcoidosis with antibiotics. I may have had more luck
finding them because I googled "Marshall Protocol" instead of
"antibiotic protocol". Marshall Protocol is the specific antibiotic
protocol used for sarcoidosis. There are actually entire websites
devoted to MP. I'm sorry I don't know much about the specifics. AP is
sort of a broad general loosy goosy approach and MP is a lot more
structured. Pip knows way more about MP than I do.
I would say if you decide to do MP finding a doctor who does it would
be a big help. I don't know much about Sarcoidosis either, such as if
there are effective mainstream treatments or what the options are. (I
know Dr Blaney in my town healed himself of Sarcoidosis using MP).
Hope this helps, here's that link:
http://www.marshallprotocol.com/forum32/3195.html
http://www.marshallprotocol.com/forum32/3195.html
Actually, I was just browsing one of those studies and I came across this:
"Jarisch-Herxheimer Shock is a major problem.
Unless the antibiotic dosage is carefully controlled, adverse events
may include both life-threatening pulmonary insufficiency and
life-threatening cardiac events."
So in light of that information I would say if using MP for Sarcoidosis you would definately want a doctor conversant in that method.
Hey Michele -
I've seen a bunch of studies on use of antibiotics to reduce pulmonary fibrosis and I'm looking for them right now. You might do a search on www.sarcinfo.com (same as marshallprotocol.com just easier to spell) and see what you can pick up there.
Also try http://bacteriality.com This woman is totally into the MP. I'm not sure about it myself, but I'm leaning there. I just have some serious questions on the use of Benicar etc.
And try http://autoimmunityresearch.org to see if there are different studies not listed.
I'm having a heck of a time with my AOL - stupid thing is dying every other minute. I know I have something on lungs there but I can't seem to find it. Below is all I can find right now - I'll try later after my daughter's in bed.
http://www.ingentaconnect.com/content/ben/aiamc/2007/0000000 6/00000004/art00001?crawler=true
I emailed you.
Pip