I am pleased to
tell all that it feels like, in the last week or so, that something maybe be
happening with my Rituxan infusions kicking in.
My pain patch is also working and has stabilised the pain but there are noticeable
changes in me that tell me the Rituxan is kicking in. It can take up until week
16 after these infusions for anything to happen and I am at week 10. Nothing
usually happens before week eight. What a lesson in patience.
I am in much less pain, my swelling is reduced, the Odema has nearly gone too
which helps, I have more energy, I am less stiff, crippled and debilitated in
general and I actually feel better. No, I still have symptoms but they are
minor but there is definite improvement going on.
Another thing that has happened with it is...I can think...I feel like I have
my brain back somewhat. Yippee!!!
At first I thought I was imagining it because I have been in a huge flare for a
year and a half basically, but feeling better has hung for quite a while now.
Please, all keep your fingers crossed with me that this is it and it will keep
improving.
I am scared at times, that I am wrong and I am imagining the whole thing but
yep, I am feeling better. It is true.
Twice this week I have taken Neve on two social outings...once to the swimming pool, we both had a swim and the other to a friend's house for coffee after school. These outings would not have been possible a week or so ago. I could barely get dressed, and do basic things. And yes, I was tired after the swim but I did it. This kind of stuff is miraculous from where I have been.
In the last few days with the changes...I just keep thinking to
myself..."I am going to beat this disease." I am determined too. I
will accept it allow it's presence in my life but I will always be finding ways
to rise above it and live my life in a fulfilling way regardless.
Oh, and I do believe that one of the ways to beat this thing is to keep
moving!!! Now that seems impossible when you are crippled and in pain but every
single bit of movement helps...don't give in...keep moving. MOVE!!!
I am excited and happy as you can imagine...I am also grateful and feel
incredibly blessed.
Who needs a Christmas present now? What material object could even come close to
getting one's whole life back.
I wish you all as joyous holiday season as I am experiencing. It is always
possible to find ways to realise that 'life is good'. If we choose to see it
that way.
For all of you my friends, in mega pain and crippled, I wish for you comfort
and ease, hope and faith. Please know my thoughts are with you because, see, I
know what that is like, oh, so well.
thats great to hear!!!
don't over do it
That is GREAT NEWS, Cordy!
I am happy for you.
Oh Cordy, thank you for that wonderful post. I'm sitting here with a smile on my face feeling so happy that you're getting some relief. You deserve it girlfriend. I wish you continued health, pain free days and many happy outings with your little sweetheart. What wonderful news!!!!yay for Cordy, yay yay yay, I am so glad, you can have a wonderful Christmas now.....yipppppeeeeeeeeee love Janie.
WHOOOPPPIIIEEEEEE!!!!!!!
I am SOOOOO happy to hear this!!!! I thought my eyes were gonna pop outa my head when I read the title of the thread.
*hugs!* Oh, my Dear Cordy! What a wonderful thing to hear! I know how you have suffered, so I'm sure this seems like a miracle. And I think it is! Imagine, a swim and another outing with your precious Neve! My prayers are with you that you have continued improvement and are able to do many more things with your little one. What a wonderful Christmas gift! Who could ask for more? Enjoy, Sweetie! You have earned this and more. I know you have gone through some very rough times with this dreadful disease, but hopefully those days are in the past for good. But, no matter what, I know you will treasure this time, and have a wonderful Christmas. Stay well! My best wishes are with you! Much love, Nini Cordy, you have the best timing ever. I just got back from my RD where I confirmed to him that other than my ankle swelling going down the next day, nothing has happened since the Rituxan infusions. He wants me to wait ahile yet, but is already talking about Orencia, so he's probably getting discouraged like I am. I know it can take a long time for Rituxan to do its work, and I am a few weeks (a month?) behind you, but your message is just the little bit of hope I needed tonight. When I read your post, I started to cry. You have been through so much and so deserve to have some relief, and to get out and live. I am so glad that you and Neve got this piece of joy for an early Christmas present.
Thanks Innerglow. I am now blubbering away too.
I am so glad to hear how well you are feeling. I so hope it continues. Oh Sweetie, I am so happy for you, and I will keep everything crossed for you to feel better. I am so glad you were able to get out of the four walls and feel like a member of society again. I hope it continues and gets better and better everyday!!! You are a strength and an encourager to everyone on this board, and it is about time you start feeling like the strong person you are. Now, when are you going to write your novel, so you can get rich and come see me! My weather is cold, but my heart is warm! Lots of love, and clear your PM box honey!!!
Thanks, everyone. Yes, I am not doing too much too soon, Miss Katiekins. I know that would be unwise.
Let's celebrate!
Cordy, know that all the way up here in the Northern Hemisphere, in the freezing cold Michigan winter, I am celebrating with you your very very good news.I didn't say anything for a few days as I wanted to be sure it was real and not just one or two days that I was imagining.
Now, Shelley friend, how did you know that was my big plan??? Bother!!! And now you've ruined it.
Thanks Cordelia, and it's good to be back!! And of course, good to have the time to be back!!! Keep up the improvements!!
Cordy~ I am so happy for you!
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