I have not disappeared but we have had a busy and tough month.
my daughter has been doing "ok" the medicine that they put her on
helped a lot ! enough to let her skate again ! What a beautiful site
that smile was when she could get back out and play the sport she so loves .
she has been to the Rheumy and they now feel that she does not have JRA but that instead she may have undifferentiated juvenile spondyloarthropathy.
I know this is the RA site but I posted here originally so I thought I would touch base and find out if any one knows anything about this.
I am not sure if this is good news or bad news.
But her blood came back mostly negative except that her complement
proteins are mildly decreased in her blood. The doctor says a number of
things could cause this but they are going to recheck that in 3 weeks.
it may even be lab error .
She has started to have pain in her elbows and knees but not as
bad as her ankles were.
They also think that she has Osgood Schlaters in both
knees which is not a big deal but could be causing some of the pain.
anyway we are getting ready to hunker down for a few weeks of R
and R over the holidays and if she is not feeling a lot better after the new year then they are going to start her on sulfasalazine(any one been on this) in addition to the feldene
well thats my news ...
happy holidays! Everyone
It works very well for me. At high doses you can feel like you have the flu with constant stomach upset. So be on the lookout for that.
If it does work well, there may be underlying digestive problems. It was what tipped me off to my own. Have a happy holiday!
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