I hope this finds all better than I have been.
Shannon~I hope the moving is going ok, and no more pipe trouble.
Lori~I hope you are breathing ok.
The rest of you, I hope your Christmas prep is going ok. I had my infusion on Wed. It was a whoppin' 700mg. I can surely tell the difference with nasua and sores in my mouth, and tiredness. I am hoping it will work. Doctor is not impressed with my lack of progress and we will be evaluating whether we need to move them up to every four weeks instead of six. I am hoping for four, because I would really like to have a life again. I am tired of hurting and just gritting my teeth...hoping it goes away.
My mother in law is here, and boy have I had all kinds of things that I have just had to bite my tongue. Maybe that is why my mouth hurts so badly(besides the sores). I tell ya, I really want to practice respect for the people my kids choose to love. Yesterday, (day after infusion) I had two stops I really need to make for Christmas pressies, and I wanted to get them both in before I lost my energy. I was facing JCPenny's and needed to go there, and all of a sudden my MIL insists on going to LOWES to look at wallpaper. So, I went...well...after standing and hemming and hawing over price etc. and her needing to go to the restroom...I just felt my energy go and my tummy turn over. I was done. Needless to say....I went home and only made one of my stops. I was frustrated, but I was too tired to care. I came home laid down and crashed for two hours. She said...I think you were tired. Yep...I was.
I am so hoping that I can respect those around me!
I know the feeling exactly.
When we came home to Canada a couple of years ago for my mothers 80th birthday, hubby and I, my 2 brothers and their wives and mum spent a week at a cottage. My SIL and my mother don't see eye to eye. Karen would let out a biting comment ( which by the way we all agreed with cause mum and be a tyrant) when mum was out of hearing and then smack her wrist and say, 'oops, that was my inside voice'. By the end of the week, we were all using our 'inside voices' alot as we tried to cope with the living arrangements. We kids all made a game of it and it really lightened the mood at a few really stressful times.
The heat and humidity of the last few days have been playing havoc with my RA. I ache all over. And I'm tired and a bit nauseous cause its MTX day. I got a bit of a jump on tomorrow night's party. I have the BBQ pork in the crock pot to cook through the night. I made 3 litres of egg nog and that is chilling and mellowing in the fridge. I did the shopping for the party today and got all the stuff for the huge salad I'm making. I just need to get some fresh rolls tomorrow, and make the rice and a potatoe salad. Someone is bringing dips and nibblies, someone else is bringing a big fruit salad and someone is bringing a chocolate mousse. I've got my squares in the freezer and might whip up some more butter tarts if I feel the need. Apart from that hubby will tidy for me and then we can just enjoy a lovely evening with friends.
pammy that sounds wonderful but so much work. I am not sure I would have the energy.
I had a horrible night I could only last in one position thirty minutes tops and then would have to move and was in alot of pain. I kept having the strangest dreams that I was swollen like a football. This morning I am a little puffy but nothing like a football.
I have so much to do today to get ready for family to arrive on Monday. I still have to clean and finished wrapping presents. So I can start cooking later.
Sorry to vent I hope everyone else has a better day.
nora
Goodmorning.....Moving is going alright. Today I have to finish packing up and then tomorrow is the big day!!! Just one more day till I have a dishwasher!!!!!
Hope everyone is has a great day!
[QUOTE=nvrules]I am just so tired my dh tries but just is not very compasionate when it comes to my fatigue and pain. [/QUOTE]
I can relate. My dh was brought up to "suck it up" and he makes it obvious he's tired of hearing about "what's the matter now". I try not to talk about my pain too much but if I don't he seems to think I'm feeling fine and expects me to do all the things I used to do. Seems like a no-win situation sometimes.
FormerMermaid~ GO STEELERS!!!!![QUOTE=kelsaysmommy]FormerMermaid~ GO STEELERS!!!!![/QUOTE]
Hey KM! <waves terrible towel> Where in the Steelers Nation are you? Did you watch the game last night? Too bad about Willy Parker : (
Im not in Steelers country...Im in IL My family is from westen PA/Ohio border....I didnt watch the game, had to finish making some Christmas gifts. Where in PA are you?
My kitchen is almost finished...YAY!! What a mess and I have not evenAt the moment I'm about a block away from Heinz Field, on the Northside. I live in the South Hills, just outside the city limits. My family is from Beaver County which is closer to the Ohio border. When the game's on my DH turns on every radio in the house to the broadcast (including the basement and bathroom) so no matter where you go you can follow the action : )
Thats how my one cousin is with the Steelers games. My family is from some very small towns in western PA, I cant even remember them right now...but very itty bitty Oh, one of them is called Smock and the other one is Royal (Chestnutridge)Oh the pain days but we have to keep going don't we?
I was invited to go to Christmas dinner with my daughter and her bfriend to his parents house which will be nice. I will get a break from mother and also her negative attitude, plus have company with some really nice people. I now have something more to look forward to.
My daughter is helping me to find a part time job so that I can pay mother back, and for the rent she wants. It is tough at 50 to start all over again with an old degree.
WHo knows where my RA is at this point, it is painful that is for certain. MAybe within a year or two I will have a full time job with a bit of insurance but I am not gonna hold my breath on that. THis year will have to be part time only, then the baby comes and I will help with that.
It is difficult at times to keep the happiness that the CHristmas season represents, but I refuse to give in to the pain and anguish this disease can cause. On top of that, I have learned to ignore our mother's "constant nasty comments". It is her mental illness coming through and this arrangement will not be forever. I doubt that her knee surgery in January will help too much, may make her more mobile to a certain degree but then I am sure she will have something else to complain about. THat is just the way she is.
Regardless of all my dynamics here, I hope everyone has a HAPPY day with less pain than the day before.
Jode
Shelly - Hope the infusion works and makes ya feel a little better.
Man, that radioactive shot they gave me yesterday made me soo tired. I came home went to sleep and then hubby woke me up to eat dinner, and then right back to sleep I went until 1am when I had to pee REALLY BAD. Them went back to sleep and got outta bed around 11:30am.
I feel like I could still go back to sleep. I am tired my head hurts, my nose is running, and my side hurts. I think that part is gas
Both kids were home today. They have not really fought much today... which is a good thing.
And my hair is nice and greasy. I have not took a shower in a day & half. I did not want to take one yesterday morning because it was COLD out and I did not want to get sick, so I went without a shower. Then today... I am working on getting a shower. I just do not feel like taking one yet. I am thinking of going back to bed.
Hope everyone has a good day.
Yeah... almost sounds like Grandpa's when I went to school, we had to walk 10 miles one way in the snow and 10 miles the other way back home in the snow.
It is COLD!!!! I am about to freeze to death. My fingers feel like popsicles!!
Hey Joonie! How's it going girl? glad to read you're doing better!
Are you guys ready for Christmas? Boy I'm not!
Mo'Nana!! With as much as you have been away from the board, you would have thought you were ready for Christmas by now and got the North Pole all set up to boot
Hope you are doing well!
Miss Ya!