Hello, Is there anybody else out there with adult onset stills disease?
I know it is rare but I really would love to chat with someone as to what I went through and what I go through not knowing about this diesease. There is so much doubt as to what I really have eventhough deep down I do believe the diagnosis, I just guess I am having a hard time accepting it. Maybe because it is not a definitve diagnosis but a disease of exclusion, they have to tell you what you don't have to tell you what they think you have.
I am only 35 and the uncertainty of living with this the rest of my life, not knowing when or if it will flare up is down right depressing. I would love to hear from anyone, are there any other Canadians out there? I asked my doctor and I think I am one of the only ones he has ever treated in Winnipeg with this.