Thinking about the marshall protocol | Arthritis Information
I haven't been around much for several reasons, one, they don't think I have ra but do know that I have sarcoidosis, which causes many ra like symptoms and two, I have been spending all my free time researching the Marshall protocol.
The MP for short, is a much more complicated version of antibiotic therapy. They know for sure that sarcoidosis is caused by a pathogen and its that pathogen that supposedly sets off the immune response, which is why its labeled as an ai disease.
Its a long process and requires me to avoid sun light, bright lights, remove vit d from my diet and some other very inconvenient things. Just like antibiotic therapy, I can expect herx reactions which may even be stronger because the MP uses a drug called benicar to actually boost the immune system to help the antibiotics kill off the pathogens.
The MP was actually designed specifically for sarcoidosis but there are people on the MP site that say its helped their ra, fibro, cfs and a host of other illness. If anyone is interested, the site is http://www.marshallprotocol.com/category1/. If anyone has any comments on it, I'd love to hear them, good or bad. Just remember, this is one option and I am not saying its better than your current ra meds or anything like that.
micheleb39450.4596875I'm really glad you are feeling better, and I think you are doing the right thing - considering all of your options. I think I would keep lurking on the MP site; following those stories will tell you if it is right for you. I think not being in such pain might make it easier to decide, to not feel like it is a desperate move, if that makes sense. Good luck with whatever you decide, and if you decide on MP, I think you should keep posting since some RA patients use it (well, really you should keep posting no matter what LOL).
Michele -
I am seriously thinking of doing the MP - and I live in the land of sunshine! LOL
I think Suzanne has a great suggestion - lurk - and just think about it for a bit. I've put off making a decision but the more I learn the more I lean towards them.
Hugs,
Pip
P.S. And please don't stop posting!
Michelle, I'm considering MP, too, mostly cause I have a great MP doctor
nearby. Please don't stop posting here---I'd really like to hear your
thoughts and see your progress. Also, I can only imagine there's not a lot of
sarcoidosis message boards and you need the support!Hi Michelle
my Brother has Sarcoidosis . he has had it for about 18 years .
and it is BAD .( I come to this site for my daughter though who is still in the process of being diagnosed with arthritis)
it is everywhere in his body but started in his lungs.
my 83 year old mother (amazing lady) takes care of him as I live too far away and my sister helps .
he can not work .
His quality of life is very poor . I had never heard of the MP so I am going to check it out . they do not have a computer and I have always worried that the Doctors just go through the motions with him.
he has been on a morphine pump for a few years now and they just switched it to the sea snail venom ! strange eh?
any way glad you are doing better right now , I just wanted to say hi.
Thanks girls. Its hard because I have yet to find an actual doctor that has used the mp!! I talked to an infectious disease dr last night, I saw him a few years ago when I was going through the fertility stuff. He is willing to do at least the minocin and said he would look over the mp stuff. I am to drop off copies of my records from my past hospital stays as well for him to review.
I am stressing over the vit d thing, my dr has been out but I am promised the script for the blood test will be mailed out Monday.
I agree that since I am feeling better that I do not have to make a rushed decision. I however, do not want the sarcoidosis to spread and get worse. The humira seems to be keeping it to a dull roar at the moment but I know that can change any minute!
Thanks for letting me stick around! I have not been able to find a good, friendly support board for the sarcoidosis and since a lot of the symptoms are so close to ra, I was hoping it would be ok.
The boss is in today, gotta run for now!
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